18/11/2024 (星期一）
https://www.orientaldaily.com.my/news/central
/2024/11/17/693656
17/11/2024 (星期日）
5岁小女生患第四期神经母细胞瘤, 急需筹募医药费延续性命
5岁的阿菲雅不幸患上第四期神经母细胞瘤，急需筹募23万2000令吉购买昂贵药(Qarziba)以改善免疫系统来延续孩子的性命！
孩子的母亲诺拉（31岁，家庭主妇）接受访问说，去年女儿的双腿突然无法行走，并伴有间歇性发烧。于是就携带女儿去私人诊所照双脚X光片，医生却说一切正常，并没有骨折或裂缝，但是当时孩子还在发烧，医生只是建议吃退烧药。
“一周后，孩子退烧，也能正常走路，可是不久又开始发烧，双脚再次无法行走。我带孩子去私人诊所，医生说是扁桃体发炎，他开了抗生素药物，但发烧依然没有好转。”
她说，去年6月16日 她带孩子去吉隆坡政府医院检查身体，医生抽血检查后，医生读取血液报告后，他怀疑孩子患有贫血，因为孩子的血红蛋白低至8，所以医生建议去附近的政府诊所做进一步的贫血检查。
她忆起，去年6月18日，她再次带孩子去同一间政府医院检查，因为孩子哭说脊椎疼痛，医生再次抽血检查，发现血红蛋白依旧很低，因此医生安排了另一日期为孩子做进一步的贫血检查。
“两天后，我再去一趟医院，因为孩子的脊椎疼痛到无法入睡，而且还发烧。从这一天起，孩子就住院近两个月，最终确诊为第4期神经母细胞瘤（neuroblastoma，NB），因为癌细胞已扩散至脊椎，导致部分脊椎骨折。这是通过MRI扫描发现癌症母体位于腹部靠近肾上腺的位置。”
“7月26日孩子被安排切除肿瘤手术，同时置入中央静脉导管，然后安排8月7日开始化疗。”
“今年9月开始，阿菲雅被安排做一些列骨髓移植手术, 并在指定日期将骨髓重新注入他的体内。”
移植手术过程：
* 9月6日 —— 孩子入住干细胞移植（SCT）病房。
* 9月11日 ——进入手术室，提取260毫升的骨髓。
* 9月12日 ——医生允许孩子暂且回家休息。
* 9月16日——再次入院开始移植过程，这期间会进行为期5天的高强度化疗。
* 9月26日和27日 ——开始为期两天的移植过程，将孩子的骨髓重新注入体内。这时，孩子开始经历术后所带来的副作用，最严重是频繁呕吐甚至吐血，还伴有持续几周的腹泻。
* 10月22日—— 医生允许出院。孩子在SCT病房住了1个月零6天，现在孩子的血液正在修复中，然而血小板却频繁下降，因此需要每两天前往医院进行血液检查。
诺拉表示，目前尚未完成的治疗包括：Rapid Cojec方案（8个疗程）、低剂量化疗（7个疗程）、TVD方案（4个疗程）。
她说，接下来预计12月初进行放疗和预计明年2月进行Qarziba药物疗程，医生说需要购买10瓶Qarziba治疗孩子疾病，由于这是外国入口的药物，所以价钱非常昂贵。
“目前孩子的情况算是稳定，只是每天需要使用外壳铸模(Body Cast)支撑身体，睡觉时可以被允许脱下。”
“现在孩子没有上学了，因为几乎每两天就必须去医院抽血检查以做进一步了解；我们就只有这一个女儿，就尽我们能力治疗她，医生说很多治疗过程都会有副作用，所以我们就只能听从医生的指示。”
CCEP首席执行长余宝橒解释，神经母细胞瘤是一种在身体几个区域内发现的由未成熟神经细胞发展而成的癌症，最常出现在肾上腺内或其周围，其与神经细胞的起源相似，位于肾脏的上方。然而，神经母细胞瘤也可能发生于存在神经细胞群的腹部、胸部、颈部和脊柱附近。最常发生在5岁或以下的儿童。
“它一种在胚胎发育过程中产生的未成熟的神经细胞，胎儿出生时，大部分神经母细胞已经成熟，但新生儿体内仍有少量未成熟的神经母细胞。大多数情况下，这些神经母细胞会逐渐成熟或消失。但有一些会形成肿瘤，即神经母细胞瘤。”
“由于孩子患上第四期神经母细胞瘤，癌细胞已经扩散到脊椎，必须进行一系列疗程，而且必须最短时间内筹足医药费购买Qarziba药物来维持孩子生命，希望大家慷慨解囊协助孩子度过难过。”
捐款可直接汇款至 ：
CCEP Foundation – RHB 26219300009342
捐款注明 ：Nur Zara
询问电话 ： 010-2798849 / 03-7955 9999
WhatsApp : whatsapp ：https://wa.link/9e6uw7
Five-year-old girl has stage 4 neuroblastoma and urgently needs funds to save her life!
Five-year-old Nur Zara has unfortunately been diagnosed with stage four neuroblastoma and urgently needs to raise RM232,000 to purchase the expensive medication Qarziba to boost her immune system and save her life!
Afia’s mother, Nora (31, a homemaker), shared in an interview that her daughter’s legs suddenly became paralyzed, accompanied by intermittent fever, last year. She took her daughter to a private clinic for an X-ray of her legs, but the doctor found no fractures or cracks and said everything was normal. However, since the fever persisted, the doctor only recommended fever-reducing medication.
“A week later, the fever subsided, and my daughter could walk again. But shortly after, the fever returned, and her legs became paralyzed again. I took her to the clinic, where the doctor diagnosed tonsillitis and prescribed antibiotics, but the fever didn’t improve.”
She recalled that on June 16 last year, she brought her daughter to the Kuala Lumpur General Hospital for a check-up. After a blood test, the doctor suspected anemia because her hemoglobin level was as low as 8 and advised a follow-up at a nearby government clinic for further anemia testing.
On June 18, she returned to the same hospital because her daughter complained of severe spinal pain. Another blood test showed persistently low hemoglobin levels, prompting the doctor to schedule a follow-up appointment for more tests.
“Two days later, I went back to the hospital because my daughter was in so much spinal pain she couldn’t sleep, and she was still feverish. From that day, my daughter was hospitalized for nearly two months, and she was eventually diagnosed with stage four neuroblastoma (NB). The cancer cells had spread to her spine, causing partial spinal fractures. The MRI scan revealed the primary tumor was located in her abdomen, near the adrenal glands.”
“On July 26, she underwent surgery to remove the tumor and had a central venous catheter inserted, followed by chemotherapy starting August 7.”
“In September this year, Nur Zara began a series of bone marrow transplants, during which her bone marrow was reintroduced into her body on scheduled dates.”
She added that radiotherapy is expected to begin in early December, followed by Qarziba treatment in February next year. The doctor informed them that 10 vials of Qarziba are required to treat her, and since this medication is imported, it is very expensive.
“Currently, Nur Zara’s condition is relatively stable, but she needs to wear a body cast for support throughout the day, only removing it during sleep.”
“She can’t attend school anymore because she needs to go to the hospital for blood tests almost every two days. We only have one daughter and are doing our best to treat her. The doctor warned us that many of the treatments would have side effects, so we are strictly following their advice.”
CCEP CEO Yvonne Yee explained that neuroblastoma is a type of cancer that develops from immature nerve cells in several areas of the body, most commonly in or around the adrenal glands. These glands, located above the kidneys, share the same origin as nerve cells. However, neuroblastoma can also occur in the abdomen, chest, neck, and near the spine, where clusters of nerve cells are found. It most frequently affects children under five years old.
“It originates from immature nerve cells formed during fetal development. At birth, most neuroblast cells mature, but some remain immature. In most cases, these cells eventually mature or disappear. However, some develop into tumors, known as neuroblastoma.”
“Since Afia is suffering from stage four neuroblastoma and the cancer has spread to her spine, a series of treatments are necessary. It is crucial to raise funds for the Qarziba medication as soon as possible to sustain her life. We sincerely hope everyone can generously contribute to help her through this difficult time.”
News published in Oriental Daily: 5-year-old girl with stage 4 neuroblastoma needs to raise RM232,000 for medical expenses:
https://www.orientaldaily.com.my/news/central/2024/11/17/693656
CCEP Foundation official website:
https://ccep.org.my/en/?post_type=product
Those who are interested in donating can deposit their donation directly into the following account:
Bank A/C: CCEP FOUNDATION – RHB 26219300009342
Donation Please remark: Nur Zara
Contact number: 03-7955 9999 / 010-2798849
If u need receipt pls WhatsApp us the Transaction details：https://wa.link/tzmmgy
Website: ccep.org.my
～款项筹足～
小佳文手术费已筹足 – 停止代收捐款
CCEP扶贫基金会衷心感激广大善心朋友捐助小佳文，让她顺利完成手术!
小佳文妈妈致电告知，小宝贝已在昨天24/10/24做手术，手术非常成功，目前还需要在PICU观察，预计两天后可以转去普通病房了。
小佳文爸爸和妈妈热泪盈眶的在电话感动的说到，感恩大家的帮忙，感恩CCEP的协助，小佳文才有机会重获健康的身体。
妈妈说以后等孩子长大一点，她也会尽自己的能力回馈给需要的病人，或抽时间去做义工来报答所有关心小佳文的善心人士。
Donations Closed
3个月大患严重心脏病 小佳文急需3万手术费 | 中马 | 地方 | 東方網 馬來西亞東方日報
（吉隆坡23日讯）3个月大的刘佳文患严重先天性心脏疾病，情况紧急被安排进行心脏手术，目前需要筹募3万令吉来挽救小生命！
小佳文母亲黄玉玲（34岁，家庭主妇）透露，小佳文在出生时就陷入昏迷，医护人员看到不对劲，马上叫儿科医生前来抢救，大约10分钟后，终于听到宝宝的哭声。
“小女儿被送进加护病房，详细检查发现患有心脏疾病。几天后，被送去另一间政府做详细扫描，诊断患上完全型肺静脉回流异常（TAPVR），这是一种罕见的心脏疾病。”
23/10/2024 (星期三）
小佳文心脏有孔, 需紧急进行心脏手术
（吉隆坡22日讯）3个月大的刘佳文由于患有严重先天性心脏疾病，在情况紧急下先被安排进行心脏手术，目前需要筹募3万令吉来挽救这个小生命！
母亲黄玉玲（34岁，家庭主妇）说，自己是剖腹产的，小佳文出生后是昏迷的，全身软绵绵，看到宝宝不对劲后，医护人员马上叫儿科医生前来抢救，大约10分钟后，终于听到宝宝的哭声。
“我的小女儿被送进加护病房详细检查，他们发现孩子患有心脏病，至于那一种心脏疾病就不晓得了。几天后，小女儿被送去另一间政府做详细扫描，发现她患上完全型肺静脉回流异常（TAPVR），这是一种罕见的心脏疾病。”
“小女儿除了患上TAPVR，她的心脏出现两个孔，医生说，幸好还可以保住孩子的命，不然她一出世就会夭折。”
她表示，小佳文一出世就一直留在医院观察和治疗，一直靠仪器来维持生命，从未回过家。
“医生说要尽快施手术，因为这是属于罕见又是严重先天性心脏疾病，如果一直拖延的话，当孩子逐渐长大就需要更多氧气时，却负荷不来，万一氧气筒提供的氧气不足的话，她会渐渐缺氧，最后会脑缺氧。”
她说，她听过小佳文的哭声，但声音很微弱，必须要靠得很近才能听到，如果宝宝缺氧时，脸色会转紫色。
“每一天我都会待在医院，帮小女儿换上衣服，用输液软管喂奶。”
“小女儿手脚都被针扎过，医护人员经常都要抽血检查，所以她的手脚到处都是淤青；有一天，他们要给女儿注射抗生素时，在女儿手脚上已找不到血管可注射了，他们尝试从女儿的脑部血管下手，我看到女儿哭闹，一直挣扎，于是我跟医生说，就让孩子休息一下吧！”
她说，当她看到这一个情景时，她已经受不了，她真的感到很心痛。
“让女儿休息半天后，医生在女儿的脚找到血管，就从这个血管注射药物。”
她回忆说，在她怀孕期间发现自己的血糖高，一直没有办法控制血糖指数，最后注射胰岛素，当时她真的很害怕孩子出生后会有状况，没有想到孩子一出世真的受到影响。
“我很少吃甜食，在怀孕期间做产检喝糖水时，才发现自己血糖有问题。”
她每天都跟小佳文说：“宝宝，你一定要坚强，你一定要熬过去，因为这里有很多人帮助你，所以你要熬过去，等你康复后，我们一起回家。”
“小女儿是听到我说的话，因为她会一直看着我，当我伸出我的手时，她会紧抓着，反复是抓住一个希望，我会很努力给她希望。”
“我是很担心很紧张明天的手术，但我相信奇迹，所以我尽量让自己充满正能量，用正能量才能让孩子更坚强。”
CCEP首席执行长余宝橒说，完全型肺静脉回流异常（TAPVR）是一种出生时即存在的罕见心脏问题。也就是说，它属于先天性心脏缺陷,是肺部血管（称为肺静脉）连接至心脏中错误的部位。
“正常心脏中的富氧血液从肺部流向左心房，然后流经全身。患有TAPVR者，静脉连接会发生改变，血液流经右心房。这种血流变化导致贫氧血与富氧血混合。结果，流经全身的血液没有足够的氧气。”
她说，由于小佳文的情况严重，提早安排她在国家心脏中心（IJN）进行手术，手术日期定于10月23日。
“我们会为小佳文筹募3万令吉，作为手术费和出院后资助费用，我们会继续资助1千令吉复诊费以及购买昂贵营养奶粉，为期一年。”
“我们了解宝宝的爸爸是一名冷气技工，每个月薪金不到2500令吉，当靠他的收入来支撑整个家是很不容易，更不用要承担宝宝的手术费，对这一家人来说是非常辛苦，所以我们才决定资助他们一年费用。”
Three-month-old baby with congenital heart disease urgently needs heart surgery
Three-month-old Lew Jia Wen, born with a severe congenital heart disease, urgently underwent heart surgery. Now, RM30,000 is needed to save this little life!
Her mother, Wong Yoke Ling (34, a housewife), shared that Jia Wen was delivered via C-section and was unconscious at birth, with her whole-body limp. She was immediately transferred to another government hospital for detailed scans, where doctors discovered she had Total Anomalous Pulmonary Venous Return (TAPVR), a rare heart condition.
“In addition to TAPVR, my baby also has two holes in her heart. The doctors said it was fortunate that her life could still be saved; otherwise, she could have passed away right after birth.”
Yvonne Yee, the CEO of CCEP Foundation, explained that TAPVR is a rare congenital heart defect present at birth. Due to the severity of Jia Wen’s condition, her surgery was scheduled early at the National Heart Institute (IJN) on October 23.
“We aim to raise RM30,000 to cover the surgery and post-discharge expenses. We will also continue to support the family with RM1,000 for follow-up medical consultations and provide expensive nutritional formula for one year.”
“We understand that Jia Wen’s father, a technician specializing in air-conditioning, earns less than RM2,500 per month. Supporting the entire household on this income is already challenging, not to mention covering the surgery costs. Therefore, we decided to offer financial assistance to the family for a year.”
捐款请直接汇款至以下银行：-
户口名字：CCEP FOUNDATION
户口号码： RHB 26219300009342
询问电话☎：03-7955 9999/ 010-2798849
If u need receipt pls whatsapp us the Transaction details ：https://wa.link/tzmmgy
请游览网页 / Website: ccep.org.my
～款项筹足～
03/10/2024 (星期四）
华裔男童心脏有孔急需动手术 单亲爸望大众助筹儿6万手术费
02/10/2024 (星期三）
8岁心疾男童急需筹6万手术费
（吉隆坡10日讯）8岁儿童陈冠宇4年前被诊断心脏有孔，今年发现心脏孔从8mm扩大至12mm，加上心脏出现部分型肺静脉回流异常，必须在最短时间内筹足6万令吉手术费。
孩子爸爸陈志辉（43岁，装修工人）说，4年前，由于新冠肺炎导致封城封国，在新加坡工作的他没有办法回来新山，刚好孩子不舒服，呼吸道敏感，且有咳嗽比较难受，就请他的姐姐带孩子求诊儿科专科医生，医生检查孩子身体时发现心脏有杂音，就建议孩子的爸爸带孩子求诊心脏专科医生。
“当我在新加坡忙碌工作时，都是请我的姐姐帮忙照顾儿子，她拨电跟我说关于儿子的情况时，我就直接说儿子不可能心脏有孔，他从小到大看过这么多医生，从来没有一位医生跟我说过儿子的心脏问题，一定是这位儿童专科医生搞错了，所以只相信其他医生，就当作没有一回事。”
“一年后，我可以回来新山，当时我已经把这件事情忘得一干二净，所以就没有带儿子去看医生，过后儿子生病带他去看医生，医生要求我带儿子去看心脏专科，因为医生听到儿子心脏有杂音，于是医生写信，请心脏专科医生为儿子检查。”
他回忆说，他带儿子去一家私人医院接受心脏专科医生为检查，为二子扫描心脏后，发现心脏出现8mm洞孔，医生鼓励他每年带孩子复诊检查心脏状况。
“第二年儿子经过身体检查后，医生说儿子虽然长大，然而心脏的小孔维持8mm，到了第三年，也就是今年7月，医生发现小孔扩大至12mm。”
“医生解释有些小孔会随着年龄长大而慢慢闭合，而且闭合机率超过60%，这必须视小孔处在心脏的哪一个部分，然而儿子心脏小孔的闭合机率只有20%，所以医生推荐我来吉隆坡国家心脏中心儿科心脏专科检查。”
他表示，经过详细检查后，儿子除了心脏有孔，心脏还出现部分型肺静脉回流异常（partial anomalous pulmonary venous return ，简称PAPVR），儿子的血液回流情况有异，导致其中一个心房肿胀。
他说，之前那位柔佛专科医生安慰我说，由于现在科技发达，不需要施手术，直接用一些医学工具直接把小孔闭合，刚开始觉得没什么，然而多了一个心脏问题，必须要开刀，对他来说是大手术，的确会让他担心的。
他表示，孩子的病情让他的心情复杂，会让他想很多，一直在想孩子长大后会怎样？能不能过正常人生活？目前自己会经常上网搜寻相关资料，以进一步了解孩子的病情。
“儿子心脏有孔问题，并没有让他感觉有任何不舒服，表面上跟一般孩子无异，只是他比较瘦和脸色苍白，他怎么吃也吃不胖，胃口比较小，吃的饭量很少。”
“小时候，儿子会一直吐奶，我没有特地带他看专科医生，只是定时带他去看儿科医生做身体就检查和打针而已，医生也没说什么，只是说儿子长大后不会有事。”
他说，他们家族并没有家族心脏问题，他的前妻有跟他提过她有一些心脏问题。
“如果儿子痊愈的话，我会带他进行户外运动，比方说打羽球，以他目前状况是不能够做激烈运动的。”
CCEP扶贫基金会首席执行长余宝枟表示，部分型肺静脉回流异常，这是一种先天性的心脏缺陷。
“肺部的一些血管附在心脏上错误的位置，这些血管称为肺静脉；正常的心脏是让富含氧气的血液从肺部流向左心房，然后流经全身。”
“而PAPVR的患者是来自肺部的血液流向右心房，从而会有多余的血液流到心脏右侧，这可能导致右心腔肿胀。”
她说，我们尽快筹到这笔款项让陈冠宇顺利施手术，以恢复他的健康。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
捐款请注明： Tan Kwan Yu
An 8-year-old boy with heart disease urgently needs to raise RM60K for surgery
An 8-year-old boy, Tan Kwan Yu, was diagnosed with a heart defect four years ago. This year, doctors found that the hole in his heart has grown from 8mm to 12mm, and he has also developed a condition called Partial Anomalous Pulmonary Venous Return (PAPVR). He urgently needs RM60,000 for surgery.
His father, Tan Chee Fui (43, a renovation worker), explained that four years ago, during the COVID-19 lockdown, his son had breathing issues and a persistent cough. His sister took the boy to a pediatrician who detected a heart murmur and referred him to a cardiologist, leading to the diagnosis of a heart defect with an 8mm hole. Initially, doctors recommended monitoring the situation yearly, as small holes can close naturally. However, this year, the hole increased to 12mm, and the child developed PAPVR, causing swelling in one of his heart chambers due to abnormal blood flow.
Tan Chee Fui described the emotional toll, of constantly worrying about his son’s future. While his son shows no outward symptoms, he is thin, pale, and has a small appetite. Despite his son’s relatively normal appearance, his heart condition prevents him from engaging in strenuous physical activity.
CCEP Foundation’s CEO, Yvonne Yee emphasized the urgency of the situation. PAPVR is a congenital heart defect where blood vessels from the lungs are incorrectly attached to the heart, leading to excess blood in the heart’s right side, causing it to swell. The surgery is crucial to restore Tan Kwan Yu’s health.
For those wishing to donate, contributions can be made directly to the following account:
Account name: CCEP FOUNDATION
Bank: RHB 26219300009342
For inquiries, contact: 03-7955 9999
Please send donation receipts to: https://wa.link/tzmmgy
Website: ccep.org.my
Donation Please remark: Tan Kwan Yu
～款项筹足～
06/08/2024 (星期二）
8个月大婴儿患胆道闭锁 急需13.5万赴中国进行肝移植
https://www.orientaldaily.com.my/news
01/08/2024 (星期四）
8个月大婴儿急需筹前往中国进行肝脏移植手术费
（吉隆坡1日讯）8个月大的婴儿不幸患上先天性胆道闭锁，急需筹足13万5千令吉前往中国动手术进行肝脏移植手术挽救生命!
亚什瓦丹的父亲沙拉瓦南（左一）说希望孩子可以健康长大。右一起为马大医院儿童肠胃肝胆内科医生周其翔医生、余宝枟和贾亚帕塔。
来自八丁燕带的亚什瓦丹出生4个月后，被诊断患上胆道闭锁（Biliary Atresia，简称BA），这会引起胆汁在肝脏内聚积，可以引起肝脏不可逆的损伤，所以必须尽早动手术。
亚什瓦丹的父亲沙拉瓦南是一名项目经理助理，他受访时表示，孩子出世后的4个月发现孩子黄疸，眼睛发黄，于是就携带孩子到附近诊所检查，医生说黄疸对新生儿来说是正常的，两三天后会消失的，劝他不需要担心。
“可是两三天天后，发现孩子的眼睛越来越黄，于是就去了私人医院进行血液检查，报告显示孩子的肝脏有不寻常的状况，医生怀疑是胆道闭锁，该医生就介绍我们去另一间私人医院做进一步检查。”
“我们带孩子到另一家私人医院检查后，确实孩子确诊胆道闭锁，孩子需要接受肝门空肠吻合术（Kasai手术），医生说由于在私人医院动相关手术费用昂贵，就建议我们到政府医院。”
他说，当孩子接受手术后，首个月胆红素（Bilirubin）指数低，然而到了第二个月胆红素指数偏高了，接下来数个月就一直偏高，手术是失败的。
“后来我们去马大医院，医生说孩子需要接受肝脏移植手术，建议我们前往中国，他会把相关报告交给中国的医院。”
“亚什瓦丹是我们的次儿，大儿子并没有这方面的健康问题，所以当孩子出生后就发现患上胆道闭锁，我们难过的心情真的不敢想象，我们对这个健康问题是完全不了解的，所以我就不断上网查寻相关资料。”
沙拉瓦南自称自己拥有健康身体，他做过身体检查，报告显示身体无恙，一切正常，只是太太患有高血压，所以当孩子出世后，发现健康异常时，夫妻俩是有点不知所措，尤其是太太贾亚帕塔经常以泪洗脸，身为丈夫的他就只能不断安慰太太。
他表示，目前孩子在喝奶或吃辅食时都没有问题，只是粪便颜色变浅，尿液颜色较深，然后每天必须服用6种药物（早上服用4种，晚上服用两种），都是由他的太太负责喂药。
“药物方面有液体和药片，我们会把药片压碎，混合食水再给孩子服用。坦白说，给孩子服用药物过程有点不容易，有时孩子真的不想开口喝药，甚至会哭，前后大概要花10至15分钟给孩子喂药，这些药物都是苦的，孩子需要生存，所以他需要服用这些药物。”
他说，孩子的身体受不了过热气温，不然身体会发红，所以必须要开冷气。
“这几个月天气很热，孩子感觉不舒服，我们都会尽量让他吹冷气。由于他只有8个月大，没有办法表达自己是否痕痒，不过我看到他会用双手碰他的小肚子。”
他说，带孩子前往中国治疗是他唯一希望，因为他得知很多成功例子，所以他是有信心的。
“刚开始对孩子的健康问题真的不了解，除了上网找寻资料，在马大医院认识一位马来朋友，他的孩子也是胆道闭锁患儿，我们相互了解彼此孩子状况。”
“我们给予孩子生命，希望他健康成长，并且可以成为好人，当他身体出现这个问题时，我们才体会到健康的重要，我们真的希望孩子动了手术后可以过一个正常生活，希望未来我们可以帮助其他新生儿。”
“当这一切处理后，未来可能会搞一个非政府组织，类似疗愈群组, 当别人给予我们的孩子机会时，我们也可以给予其他婴儿机会。”
CCEP扶贫基金会首席执行长余宝枟表示，胆道闭锁是婴儿期常见的严重肝胆系统疾病之一，婴儿出生后不久胆管发炎并被阻塞，这导致胆汁残留在肝脏中，在那里胆汁开始迅速破坏肝细胞并引起肝硬化。
她说，一般上做了Kasai手术的小病人，肝脏的功能还可以维持二至三年才渐渐丧失功能，然而亚什瓦丹的肝功能只剩下20%，所以其主治医生建议他尽快进行肝脏移植手术。
她续说，亚什瓦丹和母亲的血型是吻合的，都是O型血，母亲最合适的捐肝者可以拯救孩子，由于母亲的肾脏有问题，加上患有高血压，没有办法把肝捐给孩子。
“经过肝脏移植团队开会研究商讨后，决定让B型血的父亲捐肝，但是由于不同血型，目前马来西亚肝脏移植手术的技术还不够完善，所以不得已的情况下，主治医生建议把孩子送去中国上海仁济医院接受手术。”
“这个家庭本来是属于小康人家，父母的薪金可以维持一家大小的生活，然而亚什瓦丹的病情需要庞大的手术费，在不得已的情况需要向大众募款，希望让这个孩子尽快前往中国上海仁济医院进行手术。”
CCEP扶贫基金会希望集合广大群众的力量，希望可以尽快筹足亚什瓦丹手术费，好让他尽快前往中国上海仁济医院进行手术。
捐款可直接汇款给CCEP扶贫基金会的户口，汇款银行 ： RHB 26219300009342， 或游览CCEP网页 ccep.org.my，任何询问也可以Whatsapp至 010-2798849 或致电 03-7955 9999 捐款单据请发至：https://wa.link/tzmmgy
An 8-month-old baby unfortunately suffers from congenital biliary atresia and urgently needs to raise RM135,000 to go to China for a liver transplant surgery to save his life!
YAASHVATHAN from BATANG BERJUNTAI was diagnosed with biliary atresia (BA) at 4 months old. This condition causes bile to accumulate in the liver, leading to irreversible liver damage, so surgery must be performed as soon as possible.
YAASHVATHAN’s father, SARAVANAN, an assistant Project Manager, said in an interview that when the baby was 4 months old, they noticed jaundice and yellowing eyes, so they took him to a nearby clinic. The doctor said jaundice is normal for newborns and would go away in two or three days, advising them not to worry.
“But after two or three days, the baby’s eyes became yellow, so we went to a private hospital for a blood test. The report showed an unusual condition in the liver, and the doctor suspected biliary atresia. He referred us to another private hospital for further examination.”
“After examination at another private hospital, it was confirmed that the baby had biliary atresia and needed a Kasai procedure. The doctor said the surgery was expensive at the private hospital and suggested we go to a government hospital.”
He said that the bilirubin levels were low in the first month after the surgery, but they increased in the second month and remained high in the following months, indicating the surgery had failed.
“Later, we went to University Malaya Medical Centre (UMMC), where the doctor said the baby needed a liver transplant and suggested we go to China, providing the relevant reports to a hospital there.”
“YAASHVATHAN is our second child, and our first son has no health problems. We were heartbroken to find out that our second child had biliary atresia. We knew nothing about this condition, so I kept searching for information online.”
SARAVANAN mentioned that he has a healthy body, as shown by his medical reports. However, his wife has high blood pressure. When they discovered the baby’s health issue, they were both at a loss, especially his wife, who often cried. As her husband, he constantly comforted her.
He said the baby currently has no issues drinking milk or eating solid food, but his stool is pale, and his urine is darker. The baby also needs to take six medications daily (four in the morning and two at night), and his wife is responsible for administering them.
“There are both liquid and tablet medications. We crush the tablets and mix them with water before giving them to the baby. Administering the medication is not easy; sometimes the baby doesn’t want to open his mouth and cries. It takes about 10 to 15 minutes to give him the medicine. These medicines are bitter, but they are necessary for his survival.”
He said the baby’s body cannot tolerate high temperatures, or his skin turns red, so they need to use an air conditioner.
“These past months have been very hot, making the baby uncomfortable, so we try to keep him cool with air conditioning. As he is only 8 months old, he cannot express if he is itchy, but I notice him touching his tummy.”
He said taking the baby to China for treatment is his only hope, as he knows of many successful cases and feels confident.
“In the beginning, we didn’t understand the baby’s health problem. Besides searching for information online, we met a Malay friend at UMMC whose child also has biliary atresia, and we shared our experiences.”
“We gave life to our baby, hoping he would grow up healthy and be a good person. When he developed this condition, we realized the importance of health. We hope the surgery will allow him to live a normal life and that we can help other newborns in the future.”
“Once everything is settled, we might start a non-governmental organization, similar to a support group, to give other babies the opportunities our child received.”
CCEP Foundation CEO Yvonne Yee Poo Yoon said that Biliary Atresia is a severe liver and bile duct disease common in infancy. Shortly after birth, the bile ducts become inflamed and blocked, causing bile to remain in the liver and quickly damaging liver cells, leading to cirrhosis.
She said that generally, the liver function of patients who undergo the Kasai procedure can be maintained for two to three years before gradually losing function. However, YAASHVATHAN’s liver function is down to 20%, so his doctor recommended a liver transplant as soon as possible.
She continued, saying that YAASHVATHAN and his mother both have type O blood, making her the most suitable donor. However, due to her kidney issues and high blood pressure, she cannot donate her liver to the child.
“After discussions by the liver transplant team, it was decided that the father, who has type B blood, would be the donor. However, due to the different blood types and the current limitations of liver transplant technology in Malaysia, the doctor recommended sending the child to Renji Hospital in Shanghai, China, for the surgery.”
“This family was originally middle-class, with the parents’ salaries supporting the household. However, YAASHVATHAN’s condition requires a large sum for the surgery, so they are seeking public donations to quickly get the child to Renji Hospital in Shanghai for the operation.”
For more information please visit: ccep.org.my Donation please remark: Baby YAASHVATHAN, for further inquiry please contact: 03-7955 9999 or WhatsApp: 010-2798849
21/05/2024(星期二）
（吉隆坡21日讯）1岁3个月患有心脏有孔宝宝，急等著4万5000令吉手术费救命！
https://www.orientaldaily.com.my/news
/central/2024/05/21/653411
20/05/2024 (星期一）
患心脏有孔3个月大宝宝 急筹4.5万手术费救命
（八打灵再也20日讯）1岁3个月患有心脏有孔宝宝，急等着4万5000令吉手术费救命！
来自柔佛哥打丁宜的1岁3个月的宝宝苏菲尔，在出生时被证实患有先天性室间隔缺损(ventricular septal defect, VSD)也称心脏有孔。
苏菲尔母亲诺法拉（25岁，家庭祝福）表示，当时医生说，基于宝宝还很小，有可能在成长后心脏的洞孔会自动封闭，因此建议观察一段时日再做定夺。
“现在宝宝已经1岁多了，他心脏洞孔并没有闭合，而且每每发烧咳嗽等小病，都可能引发他心脏的不适，甚至需要入院观察或佩戴氧气管。”
她说，为此医生建议他们及早给宝宝进行手术，这么一来宝宝就可以像正常人一样成长，否则则需一辈子服用药物。
她指出，苏菲尔是她和丈夫的第一个孩子，一家都只靠担任罗里司机丈夫每月3000令吉的微薄收入支撑，基于孩子需要特殊照顾她页没办法外出工作。
“婚前我是一名服装售货员，赚的工钱不多，如今丈夫的收入扣除400令吉的房租和400令吉的汽车贷款，加上生活费每月几乎没有存款。”
看着苏菲尔一天天长大，开始学习讲话也越来越喜欢找人一起玩，夫妻俩更是担心心脏的问题，会影响其未来的生活和学习。
+++
CCEP扶贫基金会首席执行长余宝枟表示，这对年轻夫妻才20出头，出来社会工作也没有多少年，两人的收入也不高，储蓄和公积金也没有多少钱，就算打破扑满也筹不到4万5000令吉；因此基金会在审核后决定给苏菲尔提供援助。
“他们原本是在政府医院治疗的，但因医院那里没有提供心脏有孔手术，因此才被转介到国家心脏中心。”
目前国家心脏中心已经为苏菲尔安排6月1日进行手术，所以我们这里也得尽快给孩子筹募手术费。
CCEP扶贫基金会希望集合广大群众的力量，希望可以尽快苏菲尔筹足手术费，好让他如期进行手术。
捐款可直接汇款给CCEP扶贫基金会的户口，汇款银行 ： RHB 26219300009342， 或游览CCEP网页 ccep.org.my，任何询问也可以Whatsapp至 010-2798849 或致电 03-7955 9999
～款项筹足～
02/04/2024（星期一）
脑积水加S骨矫正手术费需5万 徐佩晏家人盼公众伸出援手
吉隆坡2日讯）原定在2022年凑足3万5000令吉手术费就进行S骨矫正手术的S骨少女徐佩晏，在术前检查被发现小脑下垂，原有的3万5000令吉只能用来处理小脑下垂以及脑积水的手术费，如今要重新接受S骨矫正手术面对5万令吉的手术费，令全家又陷入愁云惨淡的困境。
其父亲徐应昌（63岁，送煤气）表示，2022年在CCEP扶贫基金会等造协助下，女儿已成功筹获3万5000令吉的手术费，奈何手术前的例行检查医生发现女儿有先天性小脑下垂的问题，倘若不立即手术，女儿的手脚迟早也会有问题。
“所以我们只能立即让她先进行手术，原以为手术后就能重新安排S骨矫正手术，怎知手术后佩晏脑积水，医生只能再安排软管植入手术，将脑里的水排出来。”
他指出，2个手术下来至康复的过程不知不觉耗费了1年多了，直到今年医生再次捎来好消息，佩晏的身体准备好了，可以接受S骨矫正手术。
“可是之前大家筹给我们的钱，已经用作小脑下垂和脑积水的手术费了，如今S骨矫正的手术费已经增加到5万了，对我们来说又是一个更庞大的数字了 。”
他披露，佩晏自从在11岁被发现脊椎有问题后，就从未以平躺的姿势一觉到天明，由于脊椎的压迫上学背书包就会感觉疼痛，加上少女青春期发育，让本来就 内向的她更加沉默。
“佩晏的问题早在疫情之前就发现了，奈何碰到管制令我们也无法求医，开放后又因手术拖到现在，如果再拖下去对她的骨骼和心理成长都会造成影响，并错过 了发育时期。”
他也希望透过媒体，感谢一直以来给予女儿协助的CCEP、29爱心老板、双溪毛糯的居民以及善心人士，若非大家的鼎力相助他和家人也无法让女儿接受手术治疗。
CCEP扶贫基金会执行长馀宝枟表示，基于佩晏的脊椎倾斜程度从之前的63度已经变成了78.3度，手术的难度以及所需的铁片和螺丝数量也增加，以致手术费也比2022年 增加了。
“之前我们的帮他们筹到的3万5000令吉，其实经历2次手术下来已经所剩无几了，所以才要再次筹款。”
她认为，佩晏从被诊断至今已经6年了病情一拖再拖，这对佩晏的情况非常不利，所以当下之急就是赶快让进行手术。
“医生已经为她安排了4月7日进行手术，所以希望可以筹集民众的力量，尽快筹集这笔手术费，免得夜长梦多。”
“有意捐款者可拨电010-2798849向基金会谘询，捐款单据请发至：https://wa.link/tzmmgy，基金会网站为ccep.org.my。”
https://www.orientaldaily.com.my/news
11/03/2024 (星期一）
Woman seeking aid for cochlear implant
KIEW Tze Mei from Sibu, Sarawak, has severe damage to her cochlea which makes hearing aids ineffective.
Doctors have recommended a cochlear implant but Kiew’s family cannot afford the RM72,000 needed for the surgery.
Her family has reached out to CCEP Foundation for help.
In response, foundation chief executive officer Yee Poo Yoon flew all the way to Sibu to visit Kiew and gather more information.
Kiew has been gradually losing her hearing in both ears over the years and was fitted with a hearing aid.
Her family could only afford one hearing aid.
However, in recent years, the effectiveness of the hearing aid has diminished and she needs to get an artificial cochlear implanted.
Her husband Leong Chee Ann runs a small noodle stall,
She has three sons with the eldest working in a paint shop, the second managing a stall at the market and the third unable to work due to prolonged illness and his own child to care for.
The family is facing significant challenges.
In the past when Kiew’s hearing aid was still effective, she helped Leong operate the stall and managed to do household tasks.
However, due to her complete loss of hearing, she is now confined to her home.
She also suffers from diabetes and low blood pressure, leading to falls and injuries.
Her inability to hear prevents her from caring for her grandchild.
Although the hospital did arrange an operation, a fall at home led to Kiew getting an infection which required over a month of hospitalisation, delaying the cochlear operation.
“With so many worries, we just take things one step at a time. It is difficult,” said Leong.
Yee said the foundation would assist in fundraising for Tze Mei’s surgery.
For details, call 03-7955 9999 or email admin@ccep.org.my
https://www.thestar.com.my/metro/metro-news/2024/03/11/woman-seeking-aid-for-cochlear-implant
詩巫人士邱智美，因耳蝸嚴重受損，助聽器已沒辦法讓她聽到聲音，醫生也確診她需要植入人工耳蝸。但原本就僅能勉強維生的家庭，如何能承擔約7萬2000令吉的耳蝸植入手術？
在主治醫生的協助下，她的家人聯絡上了CCEP扶貧基金會，希望能在該基金會的協助下，向社會大眾籌款7萬2000令吉，購買耳蝸進行手術。CCEP扶貧基金會首席執行長余寶枟也於今日飛抵詩巫，前往其住處進行家訪，及到醫院了解近況。
邱智美今年近50歲，聽力於早年逐漸喪失。丈夫梁志安在求醫後，為妻子換上助聽器。雖然兩耳都聽不到，受限於經濟因素只能裝一邊的助聽器，先應付生活再說。但這幾年，助聽器的作用越來越低，甚至在換到第三個助聽器後，還是聽不到聲音，醫生確診她是耳蝸嚴重受損，必須植入人工耳蝸。
今年已60餘歲的梁志安，有租了一個面檔作營生，每天5時30分開工到傍晚收工。有3個兒子，老大在噴漆行工作，老二在市場經營檔口，老三因病痛長期跟醫生拿藥看診無法工作，且還有一個孩子要照顧。邱智美在助聽器還有用的時候，會到檔口幫忙梁志安，家事也可以承擔一些，但完全失去聽力後，只能留在家中。
但她本身也有糖尿病和低血壓，常因身體無力會不受控地跌倒和受傷，也因聽不到，無法避開一些意外，也因聽不到，無法照顧孫子，因為孫子若跑出去，聽不到聲音的她也無法及時阻止。原本院方已為她安排手術，也因為她在家中跌倒導致傷口受感染，住院治療月餘而無法手術。
梁志安說，這些年是自費求醫和裝置助聽器，這次若不是實在沒辦法，他們也不致求助。“很多事不敢去多想，走一步是一步。也不敢把事情記到太清楚，很難…..”說著，也哽咽起來。
這次他也是在醫護人員建議後，聯絡了CCEP扶貧基金會，希望能籌到錢做手術。
CCEP扶貧基金會首席執行長余寶枟表示，該會將協助邱智美籌款動手術，希望社會善心人士能慷慨解囊，使其順利籌到7萬2000令吉。其中7萬1500令吉是購買耳蝸費用，剩餘就購買營養食品給邱智美，希望她盡快康復，家庭也可以早日回復正常軌道。
有意捐款者可撥電：010-2798849向基金會洽詢，捐款單据請發至：https://wa.link/tzmmgy，基金會網站為ccep.org.my。或可匯款到：CCEP Foundation（RHB 26219300009342）
詩巫人士邱智美，因耳蝸嚴重受損，助聽器已沒辦法讓她聽到聲音，醫生也確診她需要植入人工耳蝸。但原本就僅能勉強維生的家庭，如何能承擔約7萬2000令吉的耳蝸植入手術？
在主治醫生的協助下，她的家人聯絡上了CCEP扶貧基金會，希望能在該基金會的協助下，向社會大眾籌款7萬2000令吉，購買耳蝸進行手術。CCEP扶貧基金會首席執行長余寶枟也於今日飛抵詩巫，前往其住處進行家訪，及到醫院了解近況。
邱智美今年近50歲，聽力於早年逐漸喪失。丈夫梁志安在求醫後，為妻子換上助聽器。雖然兩耳都聽不到，受限於經濟因素只能裝一邊的助聽器，先應付生活再說。但這幾年，助聽器的作用越來越低，甚至在換到第三個助聽器後，還是聽不到聲音，醫生確診她是耳蝸嚴重受損，必須植入人工耳蝸。
今年已60餘歲的梁志安，有租了一個面檔作營生，每天5時30分開工到傍晚收工。有3個兒子，老大在噴漆行工作，老二在市場經營檔口，老三因病痛長期跟醫生拿藥看診無法工作，且還有一個孩子要照顧。邱智美在助聽器還有用的時候，會到檔口幫忙梁志安，家事也可以承擔一些，但完全失去聽力後，只能留在家中。
但她本身也有糖尿病和低血壓，常因身體無力會不受控地跌倒和受傷，也因聽不到，無法避開一些意外，也因聽不到，無法照顧孫子，因為孫子若跑出去，聽不到聲音的她也無法及時阻止。原本院方已為她安排手術，也因為她在家中跌倒導致傷口受感染，住院治療月餘而無法手術。
梁志安說，這些年是自費求醫和裝置助聽器，這次若不是實在沒辦法，他們也不致求助。“很多事不敢去多想，走一步是一步。也不敢把事情記到太清楚，很難…..”說著，也哽咽起來。
這次他也是在醫護人員建議後，聯絡了CCEP扶貧基金會，希望能籌到錢做手術。
CCEP扶貧基金會首席執行長余寶枟表示，該會將協助邱智美籌款動手術，希望社會善心人士能慷慨解囊，使其順利籌到7萬2000令吉。其中7萬1500令吉是購買耳蝸費用，剩餘就購買營養食品給邱智美，希望她盡快康復，家庭也可以早日回復正常軌道。
有意捐款者可撥電：010-2798849向基金會洽詢，捐款單据請發至：https://wa.link/tzmmgy，基金會網站為ccep.org.my。或可匯款到：CCEP Foundation（RHB 26219300009342）
～款项筹足～
13/01/2024 (星期六）
华裔少女罹患脊椎侧弯症 家长急筹8万令吉手术费（斗湖10日讯）来自沙巴斗湖的陈祖恩，年仅15岁，不幸罹患脊椎侧弯症，急需筹募8万令吉手术费，期盼社会各界能伸出援手，慷慨解囊，帮助她早日接受手术治疗。
得益于大马善心组织的介绍，陈祖恩获得CCEP扶贫基金会首席执行员余宝枟的帮助。在安排前往吉隆坡马大医院检测的这次求医之旅中，她得到了好心人士的资助，包括飞机票和住院检测费。
另外，CCEP 扶贫基金会还协助她申请免费宿舍，并安排助理亲自去机场接她们，第二天陪同她进院接受检查。
根据医院主治医生的检测报告显示，陈祖恩脊椎弧度已经弯曲超过100 度，状况十分严重。若不尽快接受矫正手术，情况可能加剧，甚至有生命危险。
鉴于此，主治医生强烈建议陈祖恩在今年农历新年期间尽快接受手术。由于手术费用高达8万令吉，陈祖恩来自清寒家庭，无法负担这笔费用。
因此，她通过CCEP扶贫基金会向社会热心人士发起筹款行动。捐款可直接汇款至 CCEP Foundation（RHB 26219300009342），请在备注中注明：“Chan Zou En”。
CCEP扶贫基金会呼吁社会各界慷慨解囊，希望能够共同帮助陈祖恩尽快筹集所需手术费，让她早日接受治疗，摆脱生命危险，实现康复之路。
欲询问或了解更多有关陈祖恩病况的民众，可联系：010 – 279 8849或游览网站www.ccep.org.my。
https://www.orientaldaily.com.my/news/east-malaysia/2024/01/10/623466
得益于大马善心组织的介绍，陈祖恩获得CCEP扶贫基金会首席执行员余宝枟的帮助，在安排前往吉隆坡马大医院检测的这次求医之旅中，她得到了好心人士的资助，包括机票和住院检测费。
另外，CCEP扶贫基金会还协助她申请免费宿舍，并安排助理亲自去机场接她们，第二天陪同她进院接受检查。
根据医院主治医生的检测报告显示，陈祖恩脊椎弧度已经弯曲超过100 度，状况十分严重，若不尽快接受矫正手术，情况可能加剧，甚至有生命危险。
有鉴于此，主治医生强烈建议，陈祖恩在今年农历新年期间尽快接受手术。届时，陈祖恩将会被安排，在马大医院进行脊椎侧弯矫正手术。
由于手术费用高达马币8万令吉，而陈祖恩来自清寒家庭，无法负担这笔费用。因此，其家人通过CCEP扶贫基金会向社会热心人士发起筹款行动。
捐款可直接汇款至CCEP Foundation（RHB 26219300009342），并在备注中注明：“Chan Zou En”。
CCEP扶贫基金会呼吁社会各界慷慨解囊，希望能够共同帮助陈祖恩尽快筹集所需手术费，让她早日接受治疗，摆脱生命危险，实现康复之路。
欲询问或了解更多有关陈祖恩病况的民众，可联系手机010-2798849，或游览网站 www.ccep.org.my。
https://news.seehua.com/post/1102331?fbclid=IwAR0xAUCnWlUf8q7_EkCmI1e1DRX0
(TAWAU, 9th News) – Chan Zou En from Sabah’s Tawau, a 15-year-old, unfortunate to suffer from scoliosis, urgently needs to raise RM80,000 for surgery. The hope is that various sectors of society can extend a helping hand, generously contribute, and assist her in receiving treatment as soon as possible.
Thanks to the introduction by a Malaysian charity organization, Chan Zou En received assistance from Ms Yee Poon Yoon the CEO of CCEP Foundation. During this medical journey arranged to Kuala Lumpur’s Hospital UMSC for testing, she received support from kind-hearted individuals, including airfare and hospital testing fees. In addition, CCEP Foundation assisted her in applying for free accommodation, arranging an assistant to personally pick them up at the airport, and accompanying her to the hospital for examination the next day.
According to the test report from the hospital’s attending doctor, Chan Zuo En’s spinal curvature has already exceeded 100 degrees, and the condition is very serious. If corrective surgery is not done soon, the situation could worsen, even posing a risk to her life.
Given this, the attending doctor strongly recommends that Chan Zou En undergo surgery as soon as possible during the upcoming Chinese New Year. As the surgery costs as much as RM80,000, and Chan Zou En comes from a financially challenged family unable to bear this expense, she has initiated a fundraising campaign through the CCEP Foundation. Donations can be directly transferred to CCEP Foundation (RHB 26219300009342), with a note specifying “Chan Zou En.”
CCEP Foundation appeals to all sectors of society to be generous and hopes to collectively help Chan Zou En raise the necessary surgery funds quickly, allowing her to receive treatment, escape life-threatening conditions, and embark on the road to recovery.
For inquiries or to learn more about Chan Zou En’s condition, please contact: 010-279 8849 or visit the website www.ccep.org.my.
～款项筹足～
11/12/2023（星期一）
CCEP Foundation is extending support to little Rizky, a 1-year and 4-month-old baby from the Iban tribe in Miri, East Malaysia. Unfortunately, he has been diagnosed with a very rare condition – Citrullinaemia type 1. Children with this condition cannot absorb any protein from their diet. The inability to break down proteins leads to the accumulation of toxins in the body, requiring blood dialysis to remove these toxins. If not treated, the toxins can damage various organs, especially the brain, resulting in intellectual disabilities, and the patient may become intellectually disabled for life.
To identify the cause of Rizky’s condition, genetic testing is recommended by the genetic specialists at the University Malaya Medical Centre. This testing involves sending his blood to the United States for analysis, incurring a cost of approximately USD 350.00.
Rizky’s parents, coming from the impoverished mountainous region, face financial challenges. His father is a casual laborer, and his mother is currently unemployed, making it impossible for them to cover the cost of the genetic testing.
The attending physician has sought assistance from charitable organizations to help Rizky. CCEP Foundation has graciously agreed to cover the expenses for the genetic testing, ensuring that he receives a timely and comprehensive treatment plan.
7/11/2023 （星期四）
伦乐医院设备老旧 地方人口增加 CCEP发动筹款添购器材
https://news.seehua.com/post/1088934
如图：医院的桌子外皮在长久使用后，早已斑驳脱落，
医护人员只能用胶纸贴了再贴，
已经看不出桌子原来的模样了。
（古晋7日讯）砂拉越伦乐医院成立60年至今许多设备已经老旧，加上地方人口增加，设备也不足以应用，为此CCEP社会扶贫基金会发起筹款，希望能为该医院添购所需器材。
CCEP社会扶贫基金会首席执行长余宝枟表示，她在这一次东马医疗交流会中，亲自探访伦乐医院，发现这家医院面对设备老旧及不足的问题。
“尤其这里的床架，已经使用了非常多年，整个医院只有区区2张现代化的病床，其余的都是已经很残旧的铁床。
她透露，除此之外，该医院的一些设备，比如LED光疗灯、雾化吸入器等，也已陈旧不堪，甚至已经不能操作，导致数量不足以使用。
“虽然东西能用就用，无可否认，有了先进的设备，确实可以减轻医务人员的工作量，也能使病人更方便；所以几经讨论后，CCEP扶贫基金会决定为该医院筹募3万5000令吉，以购置10张病床、1台黄疸婴儿使用的LED光疗灯，以及2台哮喘病人使用的雾化吸入器。
如上图：医院的床架的使用年限几乎是“古董级别”的老东西了，CCEP希望拥有新的病床后能让病患更舒适方便。
她指出，CCEP扶贫基金会希望12月能完成筹款目标，并成功安排将这些物资送到医院，而她本人也会亲自飞到古晋协助安排相关事宜。
她希望透过CCEP走进地方医院，可将他们的真实情况展现，让更多东马的朋友了解，并为这些有需要的医院和病人伸出援手。
与此同时，砂拉越伦乐医院院长陈仕豪表示，伦乐医院成立已有60年，是伦乐唯一的地方医院；距离最靠近的专科医院还有100公里。
“我在这里已经12年了，据说，在我到来之前，有些病人要来看病，还得乘坐船过河才能抵达，还好政府修建了桥，这才完善了来往医院的陆路建设。
他指出，伦乐医院规模不大，只有46个床位，也设有一个洗肾中心。
“我们这里的设备确实已经使用蛮久了，有些床架估计也使用将近60年，这么久以来，扶贫基金会是第一家非政府组织走入医院，并愿意提供我们设备上的协助。”
他披露，随着人口及糖尿病患者的增加，去年该医院的洗肾中心才刚刚从6台洗肾机器增至10台，不到一年时间，就已经不负应用了。
“4台机器添购不足1年，新的洗肾者等候名单已经在排队了。”
CCEP社會扶貧基金會首席執行長余寶枟（右2）
到訪倫樂醫院時，與倫樂醫院院長陳仕豪（中）合影。
右1為該基金會行政主任張苑貞、
左1與左2為張喜財及丘秀鳳。
他也披露，最近政府也打算重启兴建伦乐医院，目前这项计划也在讨论阶段，因此他也希望这项计划尽早落成，让更多民众受惠。
欲捐款的善心人士，可以将善款转到一下户口： CCEP Foundation ， RHB 26219300009342，询问电话或Whatsapp 010-2798849。
～款项筹足～
星洲日报（东马）
03/11/2023（星期五）
02/11/2023（星期四）
https://www.orientaldaily.com.my/news/
central/2023/11/02/60802331/10/2023（星期二）
东马一男婴患心脏有孔 尚缺手术费 RM 22750
（古晋31日讯）一家7口仅靠父亲每月500令吉的微薄收入支撑，偏偏1岁4个月大的小儿子莫哈末亚当又患有先天性心脏有孔，手术费需马币5万2750令吉，让原本就赤贫的家庭陷入困境。 幸在国家心脏中心基金会的协助下，拨出马币3万令吉给亚当，惟尚差马币2万2750令吉，由CCEP社会扶贫基金会发动募捐及代收义款。 来自沙巴山打根的亚当，出生5天就被医生诊断患有心脏有孔，出生至今，小小的身躯就已经经历了8次大小手术，如今心脏情况越发严重，不得不再次进行手术。
亚当妈妈伊娜表示，亚当从小就一直不断进出医院，由于情况严重，亚当的身体越来越虚弱，所以不得不从当地的医院转换至国家心脏中心，如今呼吸和饮食都需要依靠机器辅助。
她指出，亚当一家7口成员，包括爸爸、妈妈、姐姐、爷爷、奶奶、外公以及外婆全部住在一起，全家只靠亚当爸爸一人做维修汽车散工，每月收入大约马币500令吉左右，偶尔其家婆也有接一些裁缝手工活来做赚点费用，要供给全家的生活费，根本没有能力负担亚当的医药费。 其母亲表示，家里的长辈都上了年纪，她则要照顾两个小孩，尤其是经常需要进出医院的亚当，根本没有外出工作的机会。 与此同时，CCEP社会扶贫基金会首席执行长余宝枟指出，亚当的家庭收入状况可说是非常贫穷，而且其父亲没有收入证明，很难向政府单位申请拨款；若政府或慈善机构不给予协助的话，他们是完全负担不了医疗费用。 “国家心脏中心基金会已经拨出3万令吉的款项，给亚当用作部分手术费了，剩余的2万2750则由CCEP协助筹款完成。”
她说，东马许多家庭都处于赤贫的状况，不管居住环境或者是医疗条件都欠佳，因此CCEP也会深入当中给予协助。 “我们的救助对象，是没有东西马、种族和宗教之分，只要是迫切需要的，经由我们调查，以及院方的证实，我们都会给予协助的机会。”
欲捐款的善心人士，可直接汇款至CCEP FOUNDATION RHB 26219300009342，捐款请注明MUHAMMAD ADAM，询问电话或WhatsApp，手机010-2798849。
～款项筹足～
生来帅气的刘天浩小弟弟，是来自古晋新生村，即将年满13岁天浩，之前被诊断患上“莱伯遗传性视神经病变”，必须及时获得医治，否则最终会导致双眼失明。 而唯一能医治此病的方式，就是为眼睛进行“细胞疗法”，才有机会恢复视力。
但由于进行“细胞疗法”医疗费昂费，约需马币19万5000令吉，此费用并非其家人所能负担，因此，当时其家人寻求CCEP扶贫基金会协助发动及代收捐款。
令人欣慰的是，在短短48小时内，天浩的医药筹款就已经达标，让他及时获得治疗，並希望他早日找回视力。
图为天浩在莎阿南中央医院手术前和干细胞研究中心与父母合影。
AFFLICTED with Crohn’s disease, Chai Yao Jiunn isn’t living the life of a typical nine-year-old boy in Kuala Lumpur.
Due to inflammatory bowel disease, Yao Jiunn has been hospitalized for months.
He has not been able to eat for the past few months, and solely subsists on nutritional fluids.
This has caused great suffering for the child who used to enjoy eating.
His mother, Lee Sew Ken, 41, said her son had always been healthy.
However, since his Crohn’s disease diagnosis last February, Yao Jiunn has been constantly afflicted by infections leading to fever, mouth ulcers and wound inflammation, leaving his body in a very weakened state.
His doctors are planning to conduct a two-year treatment for Yao Jiunn, who will be receiving Infliximab injections to manage his condition.
However, the treatment costs RM56,000, which Yao Jiunn’s family cannot afford.
“To take better care of Yao Jiunn, I have stopped working as a salesperson so I can stay in the hospital with him.
“We currently depend entirely on my husband’s income as a store manager,” said Lee.
She said they had been forced to borrow money from relatives and friends to cover their son’s medical expenses.
Even then, this hasn’t been enough to cover Yao Jiunn’s monthly medical costs.
In order to manage Yao Jiunn’s condition, he has received 10 Infliximab injections over the past six months.
Leaving the hospital would increase his susceptibility to infection.
“To assist in his waste elimination, the doctors have created an artificial opening for him.
“He needs two to four ostomy bags per day and these bags range in cost between RM400 and RM500 per month.
“This doesn’t even include the expenses for injections, lubricants and ointments.
“Yao Jiunn really enjoys going to school. The hospital has an affiliated school and whenever his condition allows, he will attend classes.
“He loves learning and he looks forward to being discharged and going back home to attend school. Yao Jiunn’s sister also misses him a lot,” Lee said.
Moved by the family’s plight, CCEP Foundation will assist in fundraising to cover the boy’s treatment expenses.
Foundation chief executive officer Yee Poo Yoon said while Crohn’s disease was not an urgent illness, prolonged illness could lead to malnutrition and trigger other serious complications.
As Yao Jiunn’s treatment extends over two years and the medication cost is exceptionally high, she said it was beyond what an average family could afford.
“During this period, Yao Jiunn’s condition has led to recurrent fever, diarrhoea, mouth ulcers and might even require the removal of the affected parts of the colon.
“This is an agonising experience for anyone, let alone a child.”
CCEP will help raise RM56,000 for Yao Jiunn’s medical expenses and is appealing for public support.
To donate, WhatsApp 010-279 8849 or visit www.ccep.org.my.
善心人士热烈响应 刘天浩医药筹款达标喊停
（古晋14日讯）在社会善心人士的热烈响应下，为患上眼疾刘天浩小弟弟所发动的筹募医药费活动，在短短48小时内，已达到筹款指标马币19万5000令吉，所以“喊停”。
负责为天浩发动筹款的CCEP扶贫基金会及天浩家属，对各界善心人士的热心捐助，表达了衷心感激。
这名来自古晋新生村，即将年满13岁，成绩优异的刘天浩，今年3月刚获选进入一所政府职技中学就读，且攻读音乐系，但仅上课3个星期，从4月份开始，就因为眼睛视力忽然下降，后被诊断患上“莱伯遗传性视神经病变”而无法继续上学，所有向校方申请“病假”至今已有5个月。
患上此病，眼睛视力会逐渐衰退，所以必须及时获得医治，否则最终会导致双眼失明。
而唯一能医治此病的方式，就是为眼睛进行“细胞疗法”，才有机会恢复视力，但由于进行“细胞疗法”医疗费昂费，约需马币19万5000令吉，此费用并非其家人所能负担，因此，当时其家人寻求CCEP扶贫基金会协助发动及代收捐款，CCEP扶贫基金会也毅然答应接下此个案
院方正安排时间医治天浩
随着今天刘天浩医药费的筹足，目前莎阿南中央医院正安排天浩飞往医治的时间，届时，天浩将会在该医院及干细胞研究中心接受“细胞疗法”。专家与医生建议进行3个疗程，即一个疗程，时隔一个月，为期3个月。
与此同时，天浩的父亲刘心祷感谢CCEP扶贫基金会与田志和帮助他的爱子发动筹款。
“感恩大家大力帮助，感谢大家的善心捐款。我与家人衷心谢谢大家，感激不尽，大家的行动，让我们体会到这个世界依然有爱。”
身为虔诚基督教徒的他，也愿上帝祝福大家。据悉，天浩的父亲刘心祷，现年40岁，是名建筑工地督工，而母亲Nelida Anak Jawa，现年38岁，是在新生村当地一间华小幼儿园任助教，两人育有3个孩子，而天浩是他们唯一的儿子，另有2个女儿，分别是9岁（学生）及2岁。
此外，CCEP扶贫基金会首席执行长余宝枟表示，让她感到惊讶，在短短的2天内，就筹到这笔医药费，也让她感觉到，其实东马有好多热心人士，并感谢捐款人对CCEP的信任。
“更重要的是，天浩小弟弟将在近期内获得治疗，因为CCEP已经直接与负责提供干细胞的供应商对接上，而该供应商也已经与莎阿南中央医院眼科医生联系，由院方安排天浩的治疗时间。”
CCEP扶贫基金会是一个有公信力，而且透明度高的慈善基金会。
另一方面，砂拉越古晋、三马拉汉与西连省华人社团总会福利组主任彭国良今午移交马币1万3700令吉予刘天浩，作为他的医药费。惟此笔款项已直接汇入负责代收捐款的CCEP户口。
今午陪同出席移交捐款者，有刘天浩的父亲母亲、晋汉连省华总青年团团长甲必丹陈德明、华总妇女组主任张慧娇、华总福利组组员李国豪，以及CCEP古晋副执行长田志和。
（古晋12日讯）即将年满13岁，成绩优异生刘天浩，虽获选进入一政府技职中学就读，且攻读音乐系，但仅上课3个星期，就因为眼睛视力忽然下降，后被诊断患上“莱伯遗传性视神经病变”而无法继续上学。
此病只有为眼睛进行“细胞疗法”，才有机会恢复视力，但由于进行“细胞疗法”医疗费昂费，约需马币19万5000令吉，而此费用并非其家人所能负担，因此其家人盼获得社会热心人士的捐助，让天浩的眼睛能早日得到治疗。
CCEP扶贫基金会在获到其父亲刘心祷的请求后，决定为刘天浩发动，筹募马币19万5000令吉的医疗费用。
根据刘心祷告知，其儿子天浩于今年2月曾发高烧，而且维持两个星期才康复，3月份他就向父母投诉，其视线模楜，当时他便带天浩佩眼镜，岂料佩眼镜后，其老师仍投诉天浩在上课时“看不到”而无法学习，并建议给天浩佩戴“更好”的眼镜。
起初以为患上眼疾
因此，当时身为父亲的他，便带天浩到专业眼镜店，准备为他佩“更好”的眼镜，但被专业验眼师告知，其眼视力没有问题，并怀疑天浩可能是眼神经出现问题，因此建议带他到专科医药中心，向专业眼科医生问诊。
经过两家医疗中心眼科医生验测后，皆确认天浩是眼睛神经病疾，所以建议带他到“神经科”验测及进行断层扫描。今年4月初，天浩眼睛视力忽然下降，当时医生判断他是视神经炎，由于如果在私人医疗中心接受治疗，费用昂贵，家人无法负担，所以被推荐到砂中央医院接受治疗，并在中央医院接受治疗期间，注入了5剂类固醇，但始终不见眼视力有所好转。
“直到今年8月间，眼科医生才诊断，天浩是患上‘莱伯遗传性视神经病变’，以传统方式没得治疗。”
他说，经过他们多番查寻后，获知细胞疗法对此病有效，而且在西马就有干细胞研究中心，并在听取了砂中央医院眼科医生的建议后，决定给天浩接受细胞疗法，届时将在莎阿南中央医院及干细胞研究中心进行。
盼9月底赴西马接受治疗
专业与医生建议进行3个疗程，即一个疗程时隔一个月，估价治疗费为马币19万5000令吉。
他表示，即将找到治疗方式，当然希望天浩能接受治疗，但由于治疗费用非常昂贵，并不是他们所能负担，所以希望能获得社会人士的捐助。
“希望能在9月底，给天浩接受细胞疗法。”
他说，因为天浩的眼视力快速下降，所以自今年3月开课后，他只读了3个星期，就因为入院接受治疗而向学校申请“病假”至今。
“天浩已经5个月没有上课了，所以只要治疗后，他的视力有改善，我们希望尽快送他回学校上课。因为我和太太都是上班族，所以天浩现在家，由我父母照顾。”
他披露，砂中央医院眼科医生已承诺，在天浩进行“细胞疗法”后，他们将会后续跟进天浩的病情。
他也感谢CCEP扶贫基金会答应协助发动筹款，只要能帮助到他的孩子，他都愿意配合安排。
据悉，居住在新生村，现年40岁的刘心祷，是名建筑工地督工，而现年38岁的太太Nelida Anak Jawa，是当地一间华小幼儿园助教，两人育有3个孩子，而天浩是他们唯一的儿子，另有2个女儿，分别是9岁（学生）及2岁。
有才华青少年若失明可惜
另一方面，CCEP扶贫基金会首席执行长余宝枟指出，该基金会受理此案例，因为天浩年龄还小，如果就这样失明，对他日后的生活会造成很大的影响，所以该基金会认为，应该帮助此个案，因为他还有大好前途，尤其他从小就对音乐很有兴趣，现已练到钢琴第四级。他是一个很有才华的青少年，如果从此失明，那真的是非常可惜。
“CCEP非常同情天浩的遭遇，所以希望能集合大家的爱心，尽快筹到这笔医药费来帮他，让他能重见美好的世界，也让他有机会在音乐方面，发挥他的才华。”
有意捐款予刘天浩的热心人士，可以将善款汇入银行户口：CCEP FOUNDATION，RHB 26219300009342，捐款可注明Alyster Liew Tian Hao。询问电话010-2798849，或游览网页www.ccep.org.my。
9岁男童不幸患克隆恩氏肠炎 2年疗程需5.6万家长一筹莫展
（吉隆坡21日讯）9岁来自吉隆坡的蔡耀俊，自今年2月不幸患上克隆恩氏肠炎后，因病情反复住院至今，目前已有4个月未曾进食，全靠营养液维系身体所需。
为了改善其健康状况，医生打算为耀俊进行一个为其2年的疗程，这期间将为他注射支英夫利西单抗（Inflixmab）药物，但2年下来所需费用高达5万6000令吉，对其家庭状况而言是一个无法负担的数目，因此CCEP扶贫基金会将协助其筹募款项，以应付疗程期间的所需费用。
其母亲李晓燕（41岁）表示，一直以来儿子的身体都非常健康，今年2月患上克隆恩氏肠炎后，就不断引发感染导致发烧、口腔溃烂、伤口发炎等问题，身体状况非常虚弱；近4个月以来更未曾进食，都是靠营养液来维持身体所需，让一个原本爱吃的孩子饱受病痛折磨。
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“为了更好的照顾耀俊，我暂停了原本的销售员工作留在医院照顾他，目前家里只靠我丈夫担任店长的收入来维持一家的生计。”
她指出，为了控制耀俊的病情，耀俊在过去6个月已经陆续打了10支英夫利西单抗（Inflixmab）针，目前情况虽有稍微好转，但是只要离开医院很容易又会被感染， 导致发烧等症状一再重复。
“耀俊很喜欢上学，医院有附属的学校，只要情况允许他都一定会去上课的，他很喜欢学习，他也很期待自己可以出院回家，像以前那样回到学校上课回到家里， 耀俊的姐姐也很想念弟弟。”
她披露，这期间为了医治耀俊，夫妻两被迫向亲友借钱支付医药费，可惜这些钱都还是不足以应付耀俊每月庞大的医药费。
“为了帮助他排出排泄物，医生给他开了一个人造口，每天需要使用2至4个造口袋，单是这笔费用每月就要400至500令吉不等了，这还不包括打针、 润滑剂、药膏等的费用。”
她说，耀俊懂事且生性开朗的孩子，但他很在乎妈妈的感受，所以那怕妈妈有一丝丝心情低落，他也会跟著难过，所以为了让孩子的心情愉悦，即便再心疼她也不敢在耀俊面前面露一丝难过。
“他对我的情绪很敏感，所以我现在时刻也提醒自己要坚强和乐观，因为孩子感受到我感受，我希望孩子快乐。”
CCEP执行长余宝枟指出，克隆恩氏肠炎虽非紧急性的疾病，但长时间患病将使病患营养不良而引发其他严重病症，而且医治疗程长达2年之久，药物又非常昂贵不是一般家庭能够负担的数目。
“其实这期间耀俊的病情反复发烧、泻肚子、嘴巴溃烂、大血便等，严重的话还可能要切除溃烂的大肠部分，这对各任何人而言都是苦不堪言的，何况是一个孩子 。”
因此，CCEP将会为耀俊筹募5万6000令吉的医药费用，以应付未来2年的医药开销，希望可以获得善心人士的协助。
捐款详情请Whatsapp至 010-279 8849或游览网页www.ccep.org.my。
～款项筹足～
4岁邱毅恒筹足12万令吉动手术 换肝手术预计8月下旬进行
https://www.orientaldaily.com.my/
news/central/2023/07/26/583226
（吉隆坡26日讯）4岁胆道闭锁男孩邱毅恒12万令吉换肝手术费筹齐，预计8月下旬就会进行肝脏移植手术。
男童父亲邱维楗表示，大众们的爱心与捐款他和孩子都收到了，衷心地感谢大家慷慨解囊和无私帮助。
“谢谢您们，在我困难的时候向我伸出援助之手，相信爱会有无限的希望，因为有这么多爱的托付和期望！我非常感谢所有捐献善款的好心人，感谢你们的爱心捐助，谢谢你们！”
CCEP扶贫基金会首席执行长余宝枟表示，12万筹款目标在短短3天内就成功达标，这样的速度还得归功善心人士的热心帮忙。
“他们除了给毅恒捐款外，还纷纷在我们面子书留言给毅恒加油打气，我们都收获满满的祝福。”
接下来，该会将会与院方紧密配合，以跟进毅恒手术事宜，并给大众做进一步的报导。
2023年7月26日（星期三）
https://news.seehua.com/?p=1021147
星洲日报（东马）
2023年6月6日（星期二）
3岁胆道闭锁男童肝脏移植手术在即，父母仍筹不出12万令吉的手术费。左为马大医院肝胆胰肠胃内科医生伍瑞腾副教授，母亲朱慧敏（右起）和父亲邱维楗；左2为余宝枟。
3岁男童须动肝脏移植手术保命 父母筹不出12万手术费
（吉隆坡24日讯）为减低肝脏移植后感染风险，3岁胆道闭锁男童被迫拔光30颗牙齿，无奈距离肝脏移植手术不到1个月了，父母仍筹不出12万令吉手术费。
来自沙巴的3岁男婴邱毅恒63天大曾进行葛西式手术（Kasai operation），术后健康情况良好，但今年初其父母发现毅恒肚子越来越胀，脸色渐黄且手心发黑，经多次求医于3个月前被通知，孩子的肝脏情况严重必须进行肝脏移植手术保命。
其父亲邱维楗（28岁，厨师）表示，经过检验其太太的肝脏适合移植给毅恒，预计手术将在8月16日在马大医院进行。
“不过这个肝脏移植手术费用需要12万令吉，目前全家也只靠我一个人在新加坡当厨师工作支撑，扣除家里两老的家用以及孩子和太太的生活费，我们的经济条件也是属于小康之家而已，去年年底太太才刚刚产下小儿子，年初大儿子就病发了，为了更好的照顾孩子太太被迫辞职，经济担子全落在我一个人的身上。”
他透露，早前医生检查后发现毅恒有蛀牙，医生担心蛀牙可能会引发术后的感染，所以已陆续拔掉了他14颗牙齿，之后还会再拔掉他剩下的牙齿，这对孩子的心灵和生活都有一定的影响。
“他只有30颗牙，目前已经拔掉的有14颗，之后还要陆续再拔，自从没有牙齿后他的食欲也变得更差，甚至不吃不喝，所以我们只能跟孩子简单的解释他的状况，他看起来似懂非懂，但也没有特别哭闹；他的肚子也因生病比之前胀大了2至3倍，看在我们眼里心里是很痛的。”
他说，为了方便毅恒看医生，夫妻俩这几个月在医院附近租房以便就近照料，加上毅恒这期间的医药费、特殊奶粉等费用，夫妻俩都被经济重担压得喘不过气。
“我曾尝试跟公司以及亲友借钱，奈何数目太大了单靠这样也无法在这么短的时间筹足手术费，还好我们遇到马大医院的伍医生，他将我们的情况转告CCEP社会扶贫基金会，基金会也很尽心的帮助我们，如今大众的善款是我们唯一的希望。”
CCEP首席执行长余宝枟表示，毅恒只有3岁多，这么一个可爱的小生命本该健康开心的成长，如今却要在病床上遭受病魔的折磨，真的让人十分不忍。
“CCEP这些年来帮过许多胆道闭锁的孩子康复出院，这孩子是有机会康复的，所以我们不会放弃任何一个可以给他重生的机会，希望热心大众可以帮忙让毅恒可以早日筹到这12万的手术费。”
邱毅恒父母委托CCEP扶贫基金会全权募款，希望热心人士可以帮助毅恒尽快筹到手术费，捐款请注明:HIEW YI HENG，询问电话010-2798849
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
～款项筹足～
METRO NEWS
—LOW BOON TAT/THE STAR
LEUKAEMIA patient Soo Ayi Wen is appealing to compassionate contributors for financial assistance to pay for a bone marrow transplant.
The 26-year-old was diagnosed with B-acute lymphoblastic leukaemia (ALL) in February.
ALL is a fast-growing cancer which starts in the lymphoid cells and since her diagnosis, Ayi Wen has endured four cycles of intensive chemotherapy at Hospital Ampang, Selangor.
Doctors say her condition is stable but as chemotherapy offers only temporary remission, they have recommended an allogeneic stem cell transplant to eliminate the leukaemia entirely.
An allogeneic stem cell transplant uses healthy blood stem cells from a donor to replace bone marrow that is not producing enough healthy blood cells.
Ayi Wen’s family has sought assistance from CCEP Foundation, a charity organisation, to raise the RM150,000 needed to pay for the medical procedure.
During a press conference at incumbent Seri Kembangan assemblyman Ean Yong Hian Wah’s service centre, CCEP Foundation group chief executive officer Yee Poo Yoon said the funds would be used for the extraction, processing and transport of the bone marrow.
“This will also include bone marrow matching through human leukocyte antigens (HLA) typing as well as getting the bone marrow from a donor,” she said.
She elaborated that Ayi Wen and her only sibling, her sister Ayi Yee, 31, were not a match.
“A donor from Thailand, who is a 99.9% match to Ayi Wen’s HLA type has been found.
“The search was aided by a Singaporean NGO’s bone marrow donor programme that manages a registry for donors,” said Yee.
“It is not easy as only one match can be found out of every 40,000,” she added.
HLA matching is used to match patients and donors for blood or bone marrow transplants.
If two people share the same HLA type, they are considered a match.
According to Yee, the doctors said that in view of her age, Ayi Wen would have a good chance of recovery upon a successful transplant procedure.
“Repeated marrow tests are showing good remission after chemotherapy.
“However, her type of cancer is aggressive and chemotherapy can only achieve temporary suppression.
“A bone marrow transplant is her only chance for complete recovery,” Yee added.
Ayi Wen’s mother, Yap Kum Leng, 53, a housewife, said her greatest wish is to see her child healthy again.
“I felt her pain every time she went for chemotherapy as she suffered side effects such as nausea as well as mouth and throat ulcers.
“As her immune system was at its most vulnerable then, she would be in isolation and we could only comfort her through video calls.
“Even when we brought her meals, we could only hand it through a nurse over the counter,” said Yap.
Ayi Wen’s father, Soo Chee Wah, 56, hopes that the public can help as he is unable to afford the transplant with his monthly salary of RM4,000 working as a construction supervisor.
Ayi Wen works in the partner care department of an online food and grocery delivery platform.
All donations can be directed to CCEP Foundation, RHB26219300009342. For inquiries, please contact 03-7955 9999 and their website address is ccep.org.my.
26岁即患上急性血癌苏爱雯急筹15万购买骨髓
（八打灵再也5日讯）ALL急性血癌病患苏爱雯在完成4个化疗疗程后，依旧无法将癌细胞根除；医生推测，若不尽快进行骨髓移植手术，癌细胞将在2个月后复发或26岁的大好生命进入生命倒数期。
苏爱雯来自沙登新村的一个小康之家，爸爸是建筑工地工人，妈妈则是家庭主妇，其与姐姐在一家送餐平台担任客服人员，小康之家的财力实在无法承担15万令吉购买骨髓的费用。
今年农历新年时，她因胃部不适进院检查才被发现换上急性血癌，虽然这期间已经成功熬过艰苦的4次化疗疗程，但医生发现药物非但不能永久性压抑其癌细胞，而且癌细胞已经扩散至大脑。
“其实第四个疗程的时候大脑的癌细胞已经被清除了，但是医生说我的癌病种类较为凶险，单靠药物的话只能做到短暂性的压制，只有骨髓移植才能让我有机会完全康复。”
她披露，目前医生已经在泰国找到最合适的骨髓，但是政府医院只承担手术的费用，购买骨髓的费用则需自己承担。
“我的家境并不富裕，可以说非常普通，患病这期间家人已经为我倾出了所有，实在无法负担15万的巨额费用。”
她说，感谢医生在了解其家境状况后协助寻找非政府组织，否则她只能的进行无数次化疗药物控制，或是进入生命的倒数期。
“我的体重向来偏瘦，加上化疗的副作用，一度让我暴瘦至皮包骨的程度，很多个夜里药物的副作用让我腹痛无法入眠，为了能让我增加体重，医生只能让我服药增加食欲。”
她说，为了不让疼爱她的家人难过，她只能鼓励自己坚持下去；因此她和家人都非常希望可以进行骨髓移植手术，因为化疗的过程真的太艰辛了。
“我很喜欢旅行，疫情之前我曾在旅行社工作，如果不是突然患病的话，我本来打算今年带妈妈去日本看樱花或者感受那里的秋天，但如今这个计划也只能成为一个奢望。”
她指出，父母为其和姐姐的教育辛苦了大半辈子，好不容易姐妹两都已经完成大学学业进入职场，正当她准备好好孝顺两老时，却突来迎来这场意外，让她和家人再这一年顿时陷入非常艰辛的日子当中。
“其实在确诊前的几个月，我身体就感觉到一场疲惫、经常头晕，甚至连上个厕所头会头晕喘气，我一直以为自己是工作太疲累了，没想到我的身体已经严重到这样的地步了，医生说我还算是幸运的，倘若再迟点发现，我很可能只剩下2-3个月的寿命。”
为此，她也呼吁大家，不要忽视身体对我们发出的每个讯息，以免错过可以自救的机会。
“我每每想到我只有26岁，就要经历这样可怕的病，加上这期间面对药物副作用的折磨，让我每天都面对很多恐惧，但为了家人我都要在他们面前表现的坚强，因为我知道他们比我更担心。如果我可以康复，我答应自己我会努力工作，也会帮助更多人。”
CCEP扶贫基金会首席执行长余宝枟表示，苏爱雯是一个年轻、青春且秀丽的女生，所以希望集合大家的力量可以给她帮忙。
“爱雯是一个很孝顺的孩子，她深知从小靠爸爸一个赚钱养家的不容易，所以特别懂事和贴心，她也很积极面对自己的病。”
这么一个优秀的孩子，任谁了解了她的状况都会很心疼她，如今我们一定要在最短的时间筹到款项她进行骨髓移植，不用再经历那么煎熬的化疗疗程。
CCEP扶贫基金会恳请广大热心人士伸出援手帮助苏爱雯，询问电话：010-2798849
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
2023年6月12日（星期一）
失去听力还要照顾年迈双亲 诗巫华裔女需各界援助植耳蜗
（诗巫12日讯）单身女钟小燕，完全失去听力，需要照顾年迈父母亲的她极需要进行人工耳蜗植入手术，CCEP扶贫基金会希望各界善心人士伸出援手，协助钟氏渡过难关。
因为钟氏的听力情况，助听器已经无法协助她的听力，唯一的途径只有接受人工耳蜗植入手术。基于她的家境情况清寒，无法负担得起昂贵的人工耳蜗的费用。
CCEP扶贫基金会于上周接获此项寻求援助申请后，马上对钟氏家庭情况进行考察，该基金会总执行长余宝枟今日也飞抵诗巫，前往钟氏住处进行拜访，并为钟氏进行是项筹款活动。
钟小燕，现年51岁，无业。她在年轻时发现听力下降，后来就需要佩戴助听器。
但在去年12月的时候发现就连着助听器也无法协助她听见外面的声音，经医生检查后发现她已完全失去听力。经过医生评估后，唯一可以协助她听到声音的方式，就只能进行人工耳蜗植入手术。
除了手术费之外，单单人工耳蜗这个医疗器械的价格就非常的昂贵，一边价格就需要至少7万2000令吉。这个昂贵的价格已大大超出了钟氏家人能负担的范围，但她需要照顾失去行动能力的母亲和年迈父亲，如果完全听不见声音，影响甚大。
前不久，年迈的父亲因为夜晚在客厅处跌倒，钟氏因为听力完全受损，根本听不见父亲跌倒和求救声，直到隔天早上才发现，头部受伤的父亲倒在客厅的地板上。
事后，老父亲被送往医院，在头部缝了好几针，所幸没有发生太严重的事故。
对于需要照顾家里两老的钟氏，恢复听觉功能是非常迫切的，但由于完全无法负担得起该昂贵的医疗器械，最终在医生的介绍下，其家人向扶贫基金会求助，希望能为她捎来好消息。
CCEP扶贫基金会的宗旨是提供贫困家庭粮食，协助贫病患申请医药援助。每个月固定发放食物干粮予贫困家庭，尤其是单亲家庭。
该基金会为患病者寻求医疗咨询及协助申请手术费医疗费等。同时也为特别贫病患者提供需要的辅助品；协助长者申请福利援助金，咨询有关需要人士或已故者申请社险等。
总执行长余宝_表示，该基金会会为钟氏进行筹款，以筹获购买人工耳蜗的医疗器械。因此，她呼吁各界善心人士能慷慨解囊，对钟氏伸出援手。
欲捐款的善心人士，可直接汇款致以下CCEP FOUNDATION，RHB银行户口号码为 26219300009342，捐款单据可发送至https://wa.link/tzmmgy 。有关询问可联络03-7955 9999，其网站地址为ccep.org.my。
星洲日报（东马）
诗华日报
（Monday,12 Jun 2023）
SEEHUA NEWSLost Hearing and Caring for Elderly Parents: Sibu Chinese Woman Seeks Assistance for Cochlear Implant
A single woman Chung Hsiao Yen from Sibu has completely lost her hearing and needs to take care of her elderly parents. She is in desperate need of a cochlear implant surgery. The CCEP Foundation appeals to kind-hearted individuals from all sectors to extend a helping hand and assist Chung in overcoming this challenging situation.
Due to Chung’s hearing condition, hearing aids are no longer effective in assisting her hearing. The only solution is to undergo a cochlear implant surgery. However, her impoverished financial situation makes it impossible for her to afford the expensive cost of a cochlear implant.
After receiving the request for assistance last week, the CCEP Foundation immediately conducted an investigation into the situation of the Chung family. Today, Ms Yvonne, the CEO of the foundation, arrived in Sibu and visited the Chung residence to conduct a fundraising activity for the family.
Ms. Chung Hsiao Yen, aged 51, is unemployed. She experienced a decline in her hearing at a young age and has been wearing hearing aids since then.
However, in December of last year, she discovered that even with the assistance of hearing aids, she could no longer hear external sounds. After a medical examination, it was determined that she had completely lost her hearing. The only way to assist her in hearing sounds, as assessed by doctors, is through a cochlear implant surgery.
In addition to the surgical costs, the price of a cochlear implant alone is extremely high, amounting to at least 72,000 Malaysian Ringgit. This exorbitant price far exceeds the financial capacity of the Chung family. However, Ms. Chung needs to take care of her disabled mother and elderly father, and the inability to hear sounds would greatly impact her ability to do so.
Not long ago, her elderly father had a fall in the living room during the night. Due to her complete hearing loss, Ms. Chung couldn’t hear her father’s fall or his cries for help until the next morning when she discovered him injured and lying on the living room floor.
Afterward, her father was rushed to the hospital and received several stitches on his head. Fortunately, the accident was not too severe.
A cochlear implant is a medical device used to assist individuals with severe hearing loss or deafness in restoring their auditory function. It is an electronic device that directly stimulates the auditory nerve to transmit sound signals to the patient’s brain, providing auditory perception.
For the Ms Chung, who needs to take care of their elderly parents, restoring auditory function is highly urgent. However, due to their inability to afford the expensive medical device, they sought assistance from the CCEP Foundation, hoping for good news.
The mission of the CCEP Foundation is to provide food supplies to impoverished families and assist underprivileged patients in applying for medical aid. They distribute monthly food rations to impoverished families, especially single-parent households.
The foundation seeks medical advice and assists in the application for surgical and medical expenses for patients in need. They also provide necessary aids to critically ill patients and assist the elderly in applying for welfare assistance. They provide consultation services for individuals in need or for deceased individuals applying for social insurance.
Ms Yvonne Yee, the CEO of foundation, stated that the foundation would raise funds for Ms. Chung to acquire the cochlear implant medical device. Therefore, he appealed to kind-hearted individuals from all walks of life to generously contribute and lend a helping hand to Ms. Chung.
All donations can be directed to CCEP Foundation, RHB26219300009342. For inquiries, please contact 03-7955 9999 and their website address is ccep.org.my.
2023年6月6日（星期二）
血癌妈妈急需9万保命!
血癌化疗后仅7个月又复发，好妈妈急需9万令吉移植骨髓方能保命！
55岁来自纳闽的艾努在2021年11月间因频繁头痛以及缺血到医院求诊后才发现自己患上急性血癌，在完成化疗后以为从此可以告别癌症，怎知7月后癌症再次复发。
( Saturday, 03 Jun 2023 )
Mum with leukaemia needs RM90,000 for urgent bone marrow transplant
A MOTHER from Labuan urgently needs RM90,000 for a bone marrow transplant to save her life.
Only seven months after chemotherapy for leukaemia, Ainun Muin’s cancer has relapsed.
She was diagnosed with acute leukaemia in November 2021.
“The doctor told me that chemotherapy is no longer effective for me.
“Only a bone marrow transplant can save my life.
“At the moment, all I can do is wait for a bone marrow match,” said Ainun in a statement.
She said her husband, a contract worker, earns about RM5,000 a month.
“But after deducting living expenses, rent and other costs, we don’t have much savings.
“Although our three children are adults, only our eldest son is working. He earns RM1,500 a month.
“We spent a considerable amount of money on my treatment last year.
“Our family is truly facing financial difficulties.”
CCEP Foundation group chief executive officer Yee Poo Yoon said two suitable bone marrow donors had been identified.
“We want to raise RM90,000 to provide enough funds for the transplant.
“We must complete the transplant before Ainun’s physical condition deteriorates.
“Otherwise, even with a suitable bone marrow match, it will be too late to save her life,” said Yee.
Donors should indicate that their contribution is for Ainun Muin.
For details, call 03-7955 9999 / 010-279 8849.
星洲日报(东马)
https://news.seehua.com/?p=989291
2023年05月24日 (星期三) – 东方日报
血癌化疗后仅7个月又复发 好妈妈急筹9万移植骨髓
（亚庇24日讯）血癌化疗后仅7个月又复发，好妈妈急需9万令吉移植骨髓方能保命！
55岁来自纳闽的艾努在2021年11月间因频繁头痛以及缺血到医院求诊后才发现自己患上急性血癌，在完成化疗后以为从此可以告别癌症，怎知7月后癌症再次上门。
“医生说我换上的是急性血癌，化疗对我已经不管用了，唯有移植骨髓才可以保住我的性命，否则我血癌的问题是没有办法被根治的。”
她难过的指出，原本以为熬过化疗就可以了，如今不过短短7个月癌症又再到回头，让刚刚元气大伤的身体再经历重重一击。
“目前我只能等待骨髓配置，这期间医生什么都不能做，只能给我药物，让我的血量不要太低，如果找不到合适的骨髓移植，我就只能等死。”
她说，婚后20几年她把大部分时间投入在孩子和家庭上，原本打算在纳闽文化部工作的丈夫退休后，随丈夫返回家乡过著退休生活，可是一场大病下来打乱了一家的原本的计划。
“我的老公只是一名合约员工，每月薪水虽有5000令吉，但扣除生活费、孩子教育租金等，我们的储蓄并不多。虽然目前三个孩子已经成年，但是只有大儿子有固定收入，每月1500令吉的薪金也只够应付自己的生活而已，加上去年为我治病也花费了不少钱，家里的经济确实很困难。”
她透露，自己心里的愿望就是希望可以康复，继续照顾家庭，有机会看著孩子们成家立业，所以我一直抱著这个信念，希望自己能早日康复。
“其实我很怕自己会离开他们，如果可以我也希望我们可以有机会一家人一起去走走看看，所以移植骨髓是我如今唯一的希望。”
CCEP扶贫基金会首席执行长余宝枟指出，院方已经在新加坡骨髓捐献者计划（BNDP）中找到到2个合适的骨髓，如今需要位于第一个捐赠的骨髓，进行一个人类白细胞抗原系统检验（HLA），确定配对合适后，就可以做出最后确定。
“这个HLA的检验需要另外缴付950新币，为了节省时间CCEP扶贫基金会已经把配对的费用先转账到新加坡骨髓捐献者计划（BNDP）。”
她解释，艾努的骨髓移植费用大约84000馀令吉，加上950新币的配对费以及汇率差额等，CCEP决定为他们筹集9万令吉，好让她有足够的钱可以进行移植。
“一旦HLA检测通过，医院会安排艾努过来安邦医院再进行一连串的详细检查，就可以进行骨髓移植了，我们一定要在她的身体机能开始退化前完成移植，否则即便有合适的骨髓也来不及挽回她的性命了。”
欲捐款的善心人士，可联络询问电话:010-2798849。
(Kota Kinabalu, Sabah, 24th News)
A loving mother urgently needs RM 90,000 for a bone marrow transplant to save her life!
Only 7 months after chemotherapy for leukemia, the cancer has relapsed. A loving mother urgently needs RM 90,000 for a bone marrow transplant to save her life!
Ainun Bt Muin, a 55-year-old from Labuan, was diagnosed with acute leukaemia in November 2021 after frequent headaches and ischemia led her to seek medical consultation. She thought she could bid farewell to cancer after completing chemotherapy, but to her surprise, cancer returned within 7 months.
“The doctor told me that I have acute leukaemia, and chemotherapy is no longer effective for me. Only a bone marrow transplant can save my life. Otherwise, my leukaemia cannot be cured.”
She expressed sadness, stating that she thought she had endured chemotherapy and believed it was over, but now, within a short span of 7 months, cancer has come back, dealing another blow to her already weakened body.
“At the moment, all I can do is wait for a bone marrow match. During this period, the doctors can’t do anything except provide me with medication to keep my blood count from dropping too low. If a suitable bone marrow transplant cannot be found, I will have no choice but to wait for death.”
She mentioned that for over 20 years of marriage, she dedicated most of her time to her children and family. Her husband, who planned to work in the cultural department in Labuan after retirement, had his retirement plans disrupted by this serious illness.
“My husband is just a contract worker. Although he earns RM 5,000 per month, after deducting living expenses, children’s education, rent, and other costs, we don’t have much savings. Although our three children are now adults, only our eldest son has a stable income of RM 1,500 per month, which is barely enough for his own expenses. Moreover, we spent a considerable amount of money on my treatment last year. Our family is truly facing economic difficulties.”
She revealed that her heartfelt wish is to recover, continue taking care of her family, and have the opportunity to witness her children start their own families and careers. Therefore, she is holding onto this belief, hoping for a speedy recovery.
“Actually, I’m very afraid of leaving them behind. If possible, I also hope that we can have the chance to travel together as a family. So, bone marrow transplantation is my only hope now.”
Yee Poo Yoon, Group CEO of the CCEP Foundation, pointed out that the hospital has found two suitable bone marrow donors through the Bone Marrow Donor Program (BNDP) in Singapore. Now they need to perform a Human Leukocyte Antigen (HLA) Typing on the first donated bone marrow to determine a suitable match.
“The HLA Typing requires an additional payment of SGD 950. To save time, the CCEP Foundation has already transferred the matching cost to the Bone Marrow Donor Program (BNDP) in Singapore.”
She explained that the estimated cost for Ainun’s bone marrow transplant is about RM 84,000, including the SGD 950 matching fee and exchange rate differences. The CCEP has decided to raise RM 90,000 to provide enough funds for the transplant.
“Once the HLA Typing is approved, the hospital will arrange for Ainun to come to Ampang Hospital for a series of detailed examinations, and then the bone marrow transplant can proceed. We must complete the transplant before her physical condition deteriorates; otherwise, even with a suitable bone marrow match, it will be too late to save her life.”
All donations can be directed to CCEP Foundation, RHB 26219300009342. For details, 03-7955 9999 /010-279 8849.
Please indicate the donation for AINUN BT MUIN
～款项筹足～
03-04-2023 (Monday) -The Star
https://www.thestar.com.my/metro/metro-news/2023/04/03/funds-needed-to-settle-boys-cochlear-implant-bill
Funds needed to settle boy’s cochlear implant bill
CCEP Foundation helped Luk Yi Ho raise RM25,000 of the RM75,000 cost of his cochlear implant.
NINE-year-old Ho Luk Yi, who underwent cochlear implant surgery in December last year, still needs RM50,000 to settle his medical bill.
The Kepong boy was diagnosed as hearing-impaired when he was just a toddler.
“He previously could not hear in his right ear while he had 25% hearing in his left ear,” said CCEP Foundation vice-chairman Lim Chin Chuan.
Luk Yi Ho after cochlear implant surgery.
Luk Yi underwent successful cochlear implant surgery on his right ear in 2017 and was able to start speaking and go to school.
However, the hearing on his left ear began to deteriorate soon after, despite the boy using hearing aids.
His father, Ho Seow Son, 52, worked as a tour bus driver and his income was severely affected during the Covid-19 pandemic.
Luk Yi’s mother, Chan Fam Ling, 48, became a full-time housewife to take care of Luk Yi.
Due to financial constraints, Seow Son approached the NGO for help to raise funds for a second operation at HUKM Specialist Centre.
Lim said despite only raising RM25,000, the hospital’s senior consultant otorhinolaryngologist decided to go ahead with the implant surgery to ensure that speech therapy for the boy was not delayed.
The cochlear implant device cost RM74,400 and was supplied by Labchem Sdn Bhd, which had supplied the device for the first surgery as well.
“A patient needs the cochlear implant device from the same company as the brands cannot differ,” said Prof Dr Goh Bee See.
Lim is proud to have helped make a difference in Luk Yi’s life.
“With Dr Goh’s medical support, we are allowed to pay later once we have enough funds,” said Lim.
CCEP Foundation needs RM50,000 for the cochlear implant device.
All donations can be directed to CCEP Foundation, RHB 26219300009342. For details, 03-7955 9999 /010-279 8849.
～款项筹足～
31/03/2023 (星期五) – 诗华日报
砂2岁男童获母捐赠肝脏 父亲掏空积蓄仍不够移植费
（古晋30日讯）砂州2岁巫裔男童莫哈末虽获父亲工作单位帮忙支付高昂的肝脏移植手术费，但家里早已为他掏空积蓄，父亲仍无力为其缴付剩馀的5106令吉的医疗用品费，不得不对外求助。
男童父亲马斯里表示，儿子在2个月大是被证实患上胆道闭锁，去年8月起连续3个月高烧不退，情况快速恶化因此不得不尽快进行手术。
砂州2岁巫裔男童莫哈末患上胆道闭锁，需进行肝脏移植手术，目前获得母亲捐赠肝脏。左为马大医院儿科肝胆肠胃医生伍瑞腾副教授，右为男童父亲马斯里，中为余宝枟。
https://news.seehua.com/?p=962254
30/03/2023 (星期四) – 东方日报
2岁男童获母捐赠肝脏 父亲掏空积蓄支付高昂移植费仍欠数千
（古晋30日讯）砂州2岁巫裔男童莫哈末虽获父亲工作单位帮忙支付高昂的肝脏移植手术费，但家里早已为他掏空积蓄，父亲仍无力为其缴付剩馀的5106令吉的医疗用品费，不得不对外求助。
男童父亲马斯里表示，儿子在2个月大是被证实患上胆道闭锁，去年8月起连续3个月高烧不退，情况快速恶化因此不得不尽快进行手术。
砂州2岁巫裔男童莫哈末患上胆道闭锁，需进行肝脏移植手术，目前获得母亲捐赠肝脏。左为马大医院儿科肝胆肠胃医生伍瑞腾副教授，右为男童父亲马斯里，中为余宝枟。
https://www.orientaldaily.com.my/news/east-malaysia/2023/03/30/556543
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION – RHB 26219300009342
询问电话: 03-7955 9999 / 010-2798849
Family of Samarahan toddler who underwent liver transplant seeks help with medical fees
～款项筹足～
询问电话：03-7955 99999-year-old Luke Yi Hoe has a hearing impairment. The hearing function of his left ear is degenerating slowly. Even being seated in the front row of his class he is not able to hear when the teacher is teaching and this has affected his learning. To help him with his condition, Doctors recommended a cochlear implant. Unfortunately, his family cannot afford the RM75,000 cost for the implant.
Yi Ho from Kepong was diagnosed to be hearing impaired from birth when he was 2 years 8 months old. According to the Doctors, his hearing condition is 0% in his right ear whilst he has 25% hearing ability in his left ear.
His father, Ho Seow Son (52 years old) works as a driver cum delivery man with a low income. Due to his financial constraint, he has approached an NGO for assistance to raise funds publicly. This enables Yi Ho to have an implant in his right ear and a hearing aid for his left ear. “
“As he grows with age, hearing in his left ear also degenerates even if he sits in the first row in the class, he is still not able to hear clearly and that affects his learning and results in school,” said his doctor. After knowing Yi Ho’s condition, his mother, Chan Fam Ling (48) took on the full-time housewife role to better care for Yi Ho and also to help him in his education.
His mother further explained that even with the transplant, Yi Ho’s hearing function in his right ear is 90%, and 25% in his left ear. Thus, most of the time he is not able to hear clearly. Though with limitations, he is able to express himself with simple words. “
” We are concerned that his condition will affect him emotionally and his well-being, we spent as much time as possible being with him and supporting him
The weakening of his hearing in his left ear has caused him to hear unwanted sounds causing him not able to hear clearly.
” The inability to clearly affects him in his daily living. That is why we hope Yi Ho can have the implant soon so that he will not lose out on his learning and educational process and also to avoid his withdrawal from social activities.
His mother shared that Yi Ho is an extrovert and well-loved by his friends but there are schoolmates who shied from him because of his condition generally most have showered him with love and care.
” His father and I hoped that Yi Ho can have the implant done as soon as possible. His father, who is a tourist bus driver is affected by the pandemic. His family of 5 barely survives on his RM5,000 monthly income. Yi Ho has 2 sisters who are still in school.
Ho Seow Son expressed that if he is able to pay the cost of RM75,000 for the implant in installments he will not make a public appeal as there are many patients out there who also need help.
” Unfortunately, the cochlear can only be purchased on cash term and we do not have the means.
He is very grateful that CCEP Foundation, after their assessment of the case, is willing to extend their assistance. This truly warms our hearts.
CCEP Foundation CEO, Ms. Yvonne Yee expressed that at this young age, Yi Ho’s journey in life is long, and its a pity that his future is hampered by his handicap in hearing.
” If his learning process is hampered he may not be able to continue his education in a normal school but will have to be moved to a school for the handicapped. In 2017 he already had an implant in his right ear and what he needs now is the implant for his left ear for him to lead a more normal life
Considering the father’s financial condition, CCEP Foundation will assist to help the much-needed RM75,000 for the implant operation which has been scheduled for next month which we hope to be able to achieve within this month.
～款项筹足～
03-01-2023 – The Star
Boy with aggressive cancer needs RM480,000
https://www.thestar.com.my/metro/metro-news/2023/01/03/boy-with-aggressive-cancer-needs-rm480000
27/12/2022 (星期二)– 东方日报
8岁王铭轩患4期细胞瘤 急筹30万令吉买免疫药
https://www.orientaldaily.com.my/news/
central/2022/12/27/536374
27/12/2022 (星期二)
8岁王铭轩患4期细胞瘤 急筹30万令吉买免疫药
（雪兰莪27日讯）“学校老师曾让班上同学许愿，同学们的愿望大都数是礼物、出去玩、变聪明等，只有铭轩的愿望却是希望一家人都不会死，他不想离开我们；如今活检报告显示，这一切都有转机，所以我们一定要在这2个月内为铭轩筹到48万的买药钱，他是有机会康复的。”
8岁来自雪州的王铭轩，早在3岁时被诊断出患有 4 期高危神经母细胞瘤，是一种发病迅速且危险的罕见癌症，一般上患上此病的孩子多数都只能送往安宁病房倒数生命。
铭轩母亲王凯欣（38岁，家庭主妇）表示，当时铭轩在接受一系列治疗后，情况已经稳定下来；原本以为孩子从此就能过上健康平凡的生活，奈何10月的体检再次给一家人带来沉重的打击。
“经活检后已经确定铭轩的癌症复发，这次复发的位置位于左下颌的下颌骨，并患有分化亚型的神经母细胞瘤。”
她解释，这个被号称为“儿童癌症杀手”的高危神经母细胞瘤复发率和杀伤力极高，与铭轩同期接受治疗的病童们都已陆续离开人世，只有铭轩坚持到现在；然而从最新的活检报告，医生也发现铭轩的细胞没有再增长的迹象，这也意味只要能将现有细胞切除后，再以药物控制就能避免癌细胞复发。
“医生建议先开刀切除左下颌的下颌骨切除术、再造、进行放射性治疗，然后再以免疫疗法(Qarziba)进行控制避免癌细胞再次复发，但是这个免疫疗法的药物源自国外，价格非常昂贵要价将近48万令吉。”
她透露，自从铭轩生病后，她便辞职在家专心照顾铭轩以及小儿子王铭扬（3岁），经济负担全落在丈夫王邦瀚（38岁，电脑工程师）一个人身上，扣除每月的房贷、生活费、保费、铭轩的医药费以及退休父母的家用等，一家人勉强够用。
“一直以来铭轩都在吉隆坡东姑阿兹莎医院接受治疗，政府医院的费用并没有很高昂，我们都还能够负担；唯一负担比较重就是之前我们在医院推荐下参与美国研究药物实验，需要亲自飞往美国领取铭轩的药，这才让我们耗费了将近10万令吉的费用。”
如今为了能在2个月内筹到48万令吉，购买免疫药物的费用，王凯欣夫妇不得不与时间赛跑，于是在上星期开始在面子书上筹款，并在短短1星期内筹获16万令吉。
她解释，这个免疫疗法将6次进行，预计完成整个疗法需耗时6个月时间；免疫疗法的价格非常昂贵，若非铭轩之前有参与过药物实验，否则是不可能得到这个优惠价格来购买此药。
“多年来亲友们都知道铭轩的情况，所以大家都一千，五百的这样给孩子捐钱，所以才能在这么短时间筹获这么一笔数字，但是当身边亲友们能帮都帮了，捐款数额就一直停滞不前了。我们也尝试将贴文发到各大平台，但是这种自己发的捐款贴文缺乏公信力效果也不大。”
她指出，当夫妻俩为此感到沮丧时，一名小学同学将他们的情况转介给CCEP扶贫基金会，经由该会审核、调查以及基金会的顾问医生审批后，一家人才看到另一曙光。
“铭轩是个特别懂事和自律的孩子，学校的成绩优越从来都不需要我去监督他的功课，她还会自己报名参加学校的英文朗诵、科学和数学比赛，甚至还回合同学组团参加运动会，学校课业或课外活动获奖无数。”
”他对死没有很具体的概念，但从小到大他看着身边同期的病友一个个离开，我都告诉他，他们去当小天使了；3岁病发至今，打针吃药都无需我们做父母的担心，就连开刀他也是自己走进手术室，爬上手术台与麻醉师沟通和了解自己手术过程，而他不过是个不到8岁的孩子。“
CCEP社会扶贫基金会执行长余宝枟表示，神经母细胞瘤是一种极为凶悍的病，因为细胞会不断繁殖子细胞，所以一旦患上的儿童几乎都是等待善终的，但是铭轩的个案却让大家看到一丝希望。
她透露，原本铭轩已经被医生下令转到安宁病房了，但在最近一次的活检报告中显示，他的神经母细胞已经没有再长出新的细胞，加上其主治医生也有了相应的对策，经由基金会的顾问医生群商讨后，都认为铭轩是有机会可以康复的，这是一个珍贵的小生命，所以我们希望可以集合大家的力量去协助他们。
她解释，由于这次是向国外购买药物，因此中间必须计入汇率的差价，因此购药价格将整数定在48万令吉；扣除之前铭轩的父母已经再网上筹得16万令吉了，所以基金会只会帮他们筹集剩余的30万令吉。
她披露，30万不是一个小数目而且时间可谓相当紧迫，但是这是铭轩可以康复的一个机会，所以希望各界可以加速筹款目标，好让孩子可以尽早康复。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话: 03-7955 9999 / 010-2798849
An 8 years old boy suffered from Stage 4 high-risk neuroblastoma
When teachers asked their students what are their wishes, most answered presents, and a fun day out to be smarter but 8-year-old Jarvis Ong Ming Xuan’s answer is no one in the family will die, and I don’t want any of them leaves me. Now the report shows that this is now possible! We are now racing with time to raise RM480k within 2 months to buy the much needs medication for Jarvis an opportunity to keep him alive.
8-year-old Jarvis Ong Ming Xuan from Selangor was diagnosed to be suffering from Stage 4 high-risk neuroblastoma when he was 3. Stage 4 high-risk neuroblastoma is a serious fast spreading rare type of cancer. Generally, children suffering from this type of cancer will only be given palliative care.
Jarvis’s mother 38-year-old housewife Karen Ong Kai Syne expressed that after a series of treatments his condition. His condition stabilized which gave him hope that Jarvis will lead a healthy life. Unfortunately, his medical check-up in October brought bad news.
“The marker report confirmed that Jarvis’s cancer has relapsed and has spread to his differentiated subtype of neuroblastoma
She further explained that children with differentiated subtypes of neuroblastoma this is a killer of children
Those who were being treated with neuroblastoma succumbed one by one. Jarvis is the only one who is still here to fight the disease. The report shows that there is no new growth of cancer cells which means that by removing the growth coupled with using the medication, there is a possibility of controlling a relapse and growth of cancer cells.
Doctors suggested removing the left jaw and jaw bone and reconstructing them followed by treatment using the chemotherapy method then applying the Qarziba method to control the growth.
When Jarvis was diagnosed, she gave up her job to take full care of him. The financial responsibility thus fell solely on the shoulders of her 38years old husband Ong Pang Han, who is a computer engineer. Taking off their financial commitment of housing loans, the family’s living expenses, insurance premiums,
Jarvis’s medical fees and his retired parents’ living expenses, there is not much left.
All the while Jarvis was receiving treatment at Tengku Azizah General Hospital. As it is a government-run public hospital the cost of treatment is manageable. The burden becomes heavy when we accepted the Doctors’ recommendation to join the US hospital’s medical research where we have to fly to the US to collect the medicine in person. That trip cost more than RM100k.
Now, the Ong family is faced with the challenge to raise RM480k in 2 months to buy the medicine.
With this race against time, the Ong family has no choice but to turn to social media to appeal for financial support which they managed to raise RM160k in a week.
She explains that the whole treatment procedure involves 6 treatments and the medication is very costly. “We are able to get a reduced price for the medicine because we participated in the research program.” All these years relatives and friends who knew our condition have generously supported us with their donations but over the long period funds depleted and financial support eventually comes to a standstill. We tried various channels but without much success.
When all efforts are fruitless, we couldn’t help feeling helpless.
It was a schoolmate who related our plight to the CCEP Foundation who straightaway processed their investigation and assessment and finally with the approval of their medical advisory board, agreed to help to raise the funds which bring relief to the family.
Jarvis is a mature and well-behaved child who has been doing well in school with the least supervision. On his own initiative, he registered to participate in various contests and activities and has also brought back many trophies regardless of educational or extra mural activities.
At his age, he did not understand much about death. He was curious and asked a lot of questions when he saw his fellow patients passing. I told him they have become angels. From the age of 3, he never worries us when taking medicines and injections. Even when he has to go into the operations theatre for his procedures he goes in on his own and would even communicate with the esthetician to understand the procedure. He was just 8 years old!
The CEO of the CCEP Foundation, Ms. Yvonne Yee said neuroblastoma is ferocious as it creates new cells speedily. Generally, children diagnosed with this will just have to wait for their fate but in Jarvis’s case it opens up a ray of hope.
Jarvis was already being transferred to palliative care but a recent medical report shows the cancer cells have stopped growing and also his medical team has found a treatment. After rounds of discussions with the medical team and CCEP, the team felt positive about his condition and felt Jarvis should be given the opportunity to receive the treatment and hope that with the combined effort we can give Jarvis the chance at life.
She explains that because the medicine is to be purchased outside our country the cost of medicine has to take into consideration the exchange rate and cost of money transfers, the cost is locked at RM480k. As the family has earlier raised RM160k through social media CCEP is committed to raising RM300k.
RM300k is not a small amount and coupled with the time constraint, it is a challenge. We appeal to your support to give Jarvis a chance.
All donations can donate directly to :
CCEP FOUNDATION
RHB 26219300009342
Inquiry: 03-7955 9999 / 010-2798849
～款项筹足～
02/12/2022 (星期五) – 诗华日报
02/12/2022 (星期五) – 东方日报
短短2天筹足22万 古晋男婴黄凯泽料明年初手术
（八打灵再也12日讯）砂州6个月大患有胆道闭锁男婴黄凯泽的22万令吉手术费和医疗费，已在短短3天筹足！
CCEP扶贫基金执行长余宝枟表示，本想这次的筹款数目较高，基金会打算先筹6万令吉，以解决小凯泽目前所需的医疗费；待小凯泽体重达标后再展开第二次筹款，没想到大家的捐款踊跃，捐款数额在短短3天即筹获22万令吉，就连小凯泽国外的手术费也一同解决了。
为此，她也一一列出22万令吉用途，其中包括：印度手术费16万令吉、3个月医疗费和特殊奶粉1万5000令吉、移植后1年复诊费2万令吉、术后洗肾和洗血的术后储备金2万5000令吉。
她强调，倘若小凯泽手术后没有出现其他并发症，其术后储备金将转用在下一个求助个案。
“这也是CCEP扶贫基金会成立以来对外筹集的最高款额，感谢大家对CCEP的信任，尤其东马的朋友在看到新闻刊登以后反应尤其快速。”
她解释，CCEP是一家获得首相署旗下部门认证的合法基金会，并由国内多名权威医生、律师、会计师以及著名企业家担任顾问共同监管，基金会的每个个案都必须经过家访、院方的证明、以及医生的推荐等才能立案，而且每份花费都必须申报，这也才能成为一个具有公信力的慈善基金会。
“这些钱都是来自社会热心人士的血汗钱，任何质疑的人士都可以向政府的相关单位进行查询。”
++
小凯泽父亲黄东福（33岁，销售员）哽咽道，夫妻俩为了照顾小凯泽已经1个多月未曾返家，大女儿也1个多月未曾看见父母和弟弟，思念之情时刻煎熬。
“好在医护人员的努力下，小凯泽的体重已经从5.6公斤增加到6.2公斤了，气色和精神都开始越来越好，也开始会和我们玩了，让我们看到了希望。”
如今CCEP扶贫基金会又给他捎来手术费和医疗费都筹足的消息，夫妻俩都感动万分。
“在这里我希望可以代表孩子，感谢每一位善心人士，是你们给与小凯泽一个重生的机会；我也要感激伍医生，在了解我们的经济状况后，将我们的个案交给CCEP扶贫基金会，否则小凯泽不知要到何时才有钱可以动手术。”
他透露，虽然小凯泽的小脸蛋看起来已经越来越圆润了，但医生还是希望他能达到9公斤的体重才进行手术，这也成功率也会更高些。
“目前我们什么都还不能做，因为他太小体重也不足，所以要等到9公斤了医生才能进行CT检测，然后为他安排最后的医疗方案。”
他披露，如果小凯泽体重顺利达标，医生预计手术将在明年1月或2月进行。
Medical fundings collected enough for Cyrus Bong
(Kuching, 02) The RM220,000 liver transplantation fee and medical expenses of Cyrus Bong Khai Tze, a 6-month-old baby boy with biliary atresia in Sarawak, have been fully raised in just 2 days!
Ms. Yee Poo Yoon, CEO of CCEP Foundation, said that the foundation intends to raise RM60,000 first to solve the current medical expenses of Little Cyrus. After Cyrus’ weight reaches the standard that’s sufficient for operation, then only commence the second round of fundraising. Unexpectedly, the response was overwhelming. The amount of donations was raised in just 2 days. RM220,000, even Little Cyrus’s foreign surgical expenses were also sorted.
She also itemized the uses of RM220,000, including RM160,000 for foreign liver transplantation operation, RM15,000 for 3 months of medical expenses and special milk powder, RM20,000 for a follow-up visit in one year after transplantation, and RM25,000 for medical expenses that may occur after the operation.
She emphasized that if there are no other complications after the operation of Little Kaiser, its postoperative reserves will be transferred to the next case that was raised to CCEP Foundation.
“This is also the highest amount raised by the CCEP Foundation since its establishment. Thank you for your trust in CCEP Foundation, especially friends in East Malaysia who responded very quickly after seeing the news.”
She explained that CCEP Foundation is a legal foundation certified by a department of the Prime Minister’s Department, and is jointly supervised by a number of doctors, lawyers, accountants, and famous entrepreneurs as consultants. Each case of the foundation must go through home visits, hospital certification, and doctor recommendations before it can be filed, and every expenditure must be declared, in CCEP Foundation is a credible charitable foundation.
“This money are all hard-earned money from people in the society. Anyone who needs further clarification on the entity and the uses of funds, they can inquire with the relevant government units.”
++
Little Cyrus’ father Bong Tong Fook (33 years old, salesman) said that the couple had not returned home for more than a month in order to take care of Little Kaize, and the eldest daughter had not seen her parents and younger brother for more than a month. The feeling of missing is always suffering.
“Fortunately, with the efforts of the medical staff, Little Cyrus’ weight has increased from 5.6 kg to 6.2 kg. He has begun to play with us, giving us greater hope.”
Now that the CCEP Foundation has brought him the news that the surgical expenses and medical expenses have been fully raised, the couple is very moved.
“Here I hope to represent my children and thank every kind-hearted person. It is you who have given Little Kaiser a chance to be reborn. I would also like to thank Prof. Dr. Ng for handing over our case to the CCEP Foundation after understanding our financial situation. Otherwise, we will not know when we will have the money to have the operation for Little Cyrus”
He revealed that although Little Cyrus’ face looks more and more rounded, the doctor still hopes that he can reach a weight of 9 kg before undergoing the operation, which will also have a higher success rate.
“At present, we can’t do anything, because he is too small and underweight, so the doctor can’t perform a CT test until he is 9 kilograms, and then arrange a final medical plan for him.”
He disclosed that if Little Cyrus’ weight is successfully up to standard, the doctor expects the operation to be performed in January or February next year.
01/12/2022 (星期四) – 东方日报
6月大男婴患胆道闭锁 双亲为12万令吉手术费愁
https://www.orientaldaily.com.my/news
/central/2022/12/01/530731
30/11/2022 (星期三) – 诗华日报
来自砂拉越6月大男婴需尽快进行换肝手术
（八打灵再也30日讯）来自砂拉越6月大男婴黄凯泽患有胆道闭锁，目前肝功能仅剩下50%至60%，医生建议尽快进行换肝手术，以确保男婴能健康成长；无奈此病不符合医药卡索赔条件，以致男婴双亲为12万令吉手术费和6万令吉的术前医疗费用四处奔走。
CCEP扶贫基金会执行长余宝枟指出，凯泽的情况相当严重不排除需要送往国外就医，为了加速筹款速度，CCEP将为其医疗费进行筹款。
“CCEP扶贫基金会将会负责为凯泽对外筹集6万令吉术前医疗费，以用协助应付每天的昂贵的特殊奶粉、医疗用品、医药费等开销。”
她透露，医生也有给与心理准备，可能术后需要进行洗血、洗肾，以及长期服用抗排斥药物，到时可能还需要一笔庞大的费用。
“这个我们就待手术后，若真有这个需求才另外进行筹款，目前希望孩子是一切顺利的。”
她透露，为了节省黄氏夫妇的开销，凯泽在接受治疗期间CCEP扶贫基金会中心也会为夫妻俩提供住宿，好让他们可以轮流接班照顾孩子。
++
男婴父亲黄东福（33岁，销售员）表示，基于肝脏发炎以致凯泽喝下的奶水无法被消化，经常有呕吐的现象，进而导致体重不足，所以手术前必须要再增重2至3公斤方能进行手术。
“目前他的体重只有6公斤，这对于一个6个月大的小孩来说也不达标，所以我们必须加紧时间让他尽快能增加至8或9公斤，可是每天单是特殊奶粉费用就要90令吉，这还不包括其他费用。”
他指出，目前医生还无法确定手术是否能在马大医院完成，他是目前暂定的捐赠者，不过一切还得待详细报告出炉后才能确定，如果情况过于复杂，那就必须送往国外方能进行换肝手术，到时估计手术费将高达20万令吉以上，这还不包括其他费用。
“目前我们也没想太多，一切以眼前的手术为目标，所以为凯泽增重是我们首要考验。”
他透露，目前医院有提供自动输液机器，即便在凯泽睡觉的情况下依旧能将奶水输送至他胃里，否则父母则要每3小时进行喂食一次，对其睡眠品质造成一定的负面影响。
他透露，原本他和太太刘嘉妮（32岁）都是双薪家庭，育有一名3岁的女儿，凯泽是他们的第二个孩子，结果孩子出月不久就被诊断出患有胆道闭锁疾病，为了照顾好凯泽，太太只能辞职，如今原本2人分担的家计全落在他的身上。
“我每月的收入大约3000令吉多至4000令吉左右，加上老婆那一份我们的生活开销还是足以应付的，可是这几个月下来，太太辞了工作，每个月单是两个孩子的保险费就要980令吉，房贷1600令吉、供车424令吉，这还不包括3岁女儿的教育费，以及小儿子的医药费用和一家人的生活开销。”
他指出，这6个月以来都是入不敷出的状况，都是用着之前的储蓄，但如今面对高额的手术费、特殊奶粉费用、以及术后医药费等，他和太太已经无力负担了。
“还好我们遇到好的医生，知道我们的情况，帮我们介绍给CCEP社会扶贫基金会，经过他们调查以后决定协助我们对外筹款。”
如今为了照顾小儿子，黄东福夫妇被迫将3岁的女儿独自留在砂拉越岳父母家，对此他也对大女儿深感愧疚。
“她只有三岁理解能力有限，我只能告诉他弟弟肚子有水，需要做手术，医生会在爸爸身上开刀去救弟弟。”
他指出，医生目前估计手术成功率达75%，一切还得等孩子增重之后在做详细检查方能确定，否则凯泽的情况很可能会持续恶化。
他哽咽道，身为父亲他只是希望孩子能如同一般孩子一样健康成长就好，为此他也提早为孩子购买医药保险，但没想到这个病症并不在受保范围里面，对此他也深感无奈。
##
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
30/11/2022 (Wednesday)
6-month-old baby boy urgently needs a liver transplant
(Kuching 01 news) Cyrus Bong Khai Tze, a 6-month-old baby boy from Kuching Sarawak, suffers from biliary atresia. At present, only 50% to 60% of liver capacity is functioning. The doctor recommends liver transplant surgery as soon as possible to ensure the healthy growth of the baby; However, this disease does not meet the requirements for insurance claims, so the baby needs RM120,000 for his liver transplant surgery fees and RM60,000 for preoperative medical expenses at UMMC.
Ms. Yee Poo Yoon, CEO of CCEP Foundation, said that Cyrus situation is serious and does not rule out the need to be sent overseas for a liver transplant and medical treatment.
“CCEP Foundation will raise RM60,000 for his preoperative medical expenses, which including the special milk powder, medical supplies, medical expenses, and other expenses.”
She revealed that the doctor has informed that blood washing, kidney dialysis, and long-term anti-rejection drugs may be required after the operation, and huge expenses may be required after the transplant.
“We will raise funds separately for the postoperative part after the operation. If there is such a need. At present, we hope that everything will go well for the baby.”
She revealed that in order to reduce the burden on Bong’s family, our CCEP House will provide accommodation for the couple during the treatment period, allowing them to take turns taking care of the baby.
++
Bong Tong Fook (33 years old, salesman), the father of the baby, said that due to inflammation of the liver, the milk that Kaiser drank could not be digested, and he often vomited, which led to being underweight, so he had to gain another 2 to 3 kilograms before the operation.
“At present, his weight is only 6 kilograms, which is not up to standard for a 6-month-old child, ideally, he can increase to 8 or 9 kilograms as soon as possible, but the cost of special milk powder alone is RM90 per day, which does not include other expenses.”
He pointed out that at present, doctors are not sure whether the operation can be completed at the University of Malaysia Hospital (UMMC). He is currently the tentative donor, but everything will have to be determined after the detailed report is released. If the situation is too complicated, it must be sent oversea for a liver transplant. At that time, it is estimated that the cost of the operation will be as high as RM200,000 or more if Cyrus liver transplant surgery is done it oversea, which does not include other expenses.
“At present, we haven’t overthought. Everything is aimed at the surgery in front of us, so gaining weight for Cyrus is our primary target.”
He revealed that the hospital currently provides automatic infusion machines, which can still deliver milk to his stomach even when Cyrus is sleeping, otherwise his parents will have to feed him every 3 hours, which will have a certain negative impact on his sleep quality.
He revealed that initially, he and his wife Jianny Liew (32 years old) were both dual-wage families and had a 3-year-old daughter. Cyrus was their second child. As a result, the child was diagnosed with biliary atresia disease soon after birth. In order to take good care of Cyrus, his wife had to resign. Now all the family expenses shared by the two of them fall on him.
“My monthly income is about RM3,000 to RM4,000, plus my wife’s share of our living expenses is still enough to cope with, but in the past few months, my wife has quit her job. Every month, the insurance premium for the two children alone is RM980, the mortgage loan is RM1,600, and the car loan is RM424. This does not include the education expenses of the 3-year-old daughter, the medical expenses of the younger son, and the family’s living expenses.”
He pointed out that in the past six months, he has been unable to make ends meet, using his previous savings, but now facing high surgical expenses, special milk powder expenses, and postoperative medical expenses, he and his wife can no longer afford it.
“Fortunately, we met a good doctor who knew about our situation and introduced us to the CCEP Foundation. After their investigation, they decided to assist us in raising funds.”
Now in order to take care of their youngest son, Bong Tong Fook and his wife are forced to leave their 3-year-old daughter alone at the home of his parents-in-law in Sarawak. He also feels deeply guilty for his eldest daughter.
“She is only three years old and has limited comprehension. I can only tell him that his younger brother has water in his stomach and needs surgery. The doctor will operate on his father to save his younger brother.”
He said that doctors currently estimate that the success rate of the operation is 75%, and everything will have to wait for the baby to gain weight before a liver transplant can take place. before a detailed examination can be determined, otherwise Cyrus condition is likely to continue to deteriorate.
He choked and said, as a father, he just hopes that his children can grow up as healthy as ordinary children. For this reason, he also purchased medical insurance for his children early, but he didn’t expect that this condition was not covered by the insurance, and he was also deeply helpless about it.
Donations can be made directly to the following banks:
CCEP FOUNDATION
RHB 26219300009342
Inquiry phone: 03-7955 9999
～款项筹足～
28/09/2022 (Wednesday)
陈丽玲的心脏手术费已经筹足了
The heart surgery fee has been collected enough
陈丽玲的心脏手术费已经收够了。 李玲很感动也很开心。 她非常感谢所有帮助过她的捐助者。 她很惊讶在这么短的时间内为她的手术筹集了足够的资金。
Chan Li Ling’s heart surgery fee has been collected enough. Li Ling is very touched and happy. She is very grateful to all the donors who helped her. And she was surprised that enough funds were raised for her surgery in such a short period of time.
26/09/2022 (Monday) – The Star
Analyst needs funds for heart surgery
https://www.thestar.com.my/metro/metro-news/2022/09/26/analyst-needs-funds-for-heart-surgery
The first and second from the left are Chen Li Ling’s parents, and the third is Chen Li Ling. The first from the right is Yee Poo Yoon, CEO of the CCEP Foundation.
AN ATHLETIC young woman who suffered a minor stroke last month and was diagnosed with a congenital heart disease needs RM35,000 for surgery immediately.
Analyst Chan Li Ling, 29, from Bentong, Pahang, has always been a sports lover and exercises at least three days a week.
However, on Aug 25, she suddenly felt dizzy and vomited repeatedly. The next day, she had difficulty moving half her body, and she only then realised that she had suffered a stroke.
“I was at work and had to call my parents to pick me up. At first I thought I was just having a little unbalanced ear fluid and so I took one day off.
“The next day, I found that I couldn’t control one half of my body. On admission, it was found to be a cerebellar stroke,” she said.
Li Ling said all the indicators of her physical examination were normal, and there was no diagnosis of diabetes, high blood pressure or high cholesterol.
Because of her age, doctors suspected that other factors had caused the stroke.
“Later, I was diagnosed with Patent Foramen Ovale (PFO) — a small flap or opening between the upper right and left chambers (atria) of the heart — that causes blood to flow from the right atrium to the left atrium and then to the brain, causing strokes,” she said, adding that patients with PFO could experience a stroke at any time if they do not receive a PFO closure procedure.
Doctors at the National Heart Institute (IJN) said she was lucky because the stroke was in the cerebellum and it was curable, said Li Ling.
After physical therapy, she gradually regained mobility but still needs surgery soon, failing which she could have another stroke that could lead to paralysis.
Li Ling has medical insurance, but since she was diagnosed with a congenital disease the insurance company has rejected her eligibility to claim for these medical expenses.
“I have only been working for a few years, earning RM4,000 per month.
“After paying all the bills I don’t have much left every month. My parents have retired,” she said.
CCEP Foundation chief executive officer Yee Poo Yoon said although government hospitals could perform similar minimally invasive procedures, from a physical point of view, Li Ling’s condition was not life-threatening, so it was common practice in government hospitals to put her on a waiting list.
“She already had a stroke and the risk of a second stroke is high and can happen at any time.
“We had a patient in a similar situation, but he couldn’t get the surgery on time and was paralysed for life,” said Yee.
She said Li Ling was a very sensible and caring daughter.
“Her parents are old and have no source of income. She is the breadwinner of the family,” said Yee.
Those who wish to help Li Ling can call 03-7955 9999 or visit ccep.org.my
16-09-2022 (星期五) 诗华日报
华裔女患先天性疾病保险不赔 急需3.5万令吉进行手术
https://news.seehua.com/?p=875428
16-09-2022 (星期五) 东方日报
https://www.orientaldaily.com.my/news/central/2022
/09/16/512653?source=editors-pick%E6%96%B0%E9%97%BB%E7%B2%BE%E9%80%89
15-09-2022 (星期四)
患卵圆缝未闭女生急需35K手术费
（八打灵再也14日讯）热爱运动的健康女青年，上月突然轻微中风才惊觉自己患有未关闭卵圆缝症（PFO），如今急需3万5000令吉进行手术，否则就会犹如定时炸弹随时发生中风。
来自文冬的陈丽菱（29岁，分析员）一直以来都热爱运动，每星期至少3天都会进行身体锻炼，从小到大身体也非常健康；但却在上个月25日再上班时突然感觉晕眩呕吐不止，并在第二天发现半边身体不协调，才惊觉原来自己小脑中风。
“当时我在上班，一直晕眩呕吐不止最后只好叫父母来公司接我回家休息，原本我以为自己是耳水不平，想说休息一天应该就好了，结果第二天发现我半边身体仿佛不受控制，入院检查后发现原来我是小脑中风。”
她指出，由于其体检的各项指标显示正常，没有三高问题，加上她的年纪尚轻，因此医生怀疑是其他因素导致其中风，因此再做进一步检查。
“结果发现我患有未关闭卵圆缝症（PFO），简单来说就是“心脏有缝症”，这将导致含有瘀血的血液从右心房流进左心房，再流进大脑造成中风。”
她披露，医生说她非常幸运，因为这次的中风位置位于小脑的部分，所以问题还不大，如今配合物理治疗后，我的半边身体已经逐渐恢复活动能力，但是如果不尽早进行手术的话，就有可能再次发生中风。
她转述医生的分析，一旦中风发生在大脑的部分，严重的话将有可能造成瘫痪，所以尽快进行手术将可以避免不幸发生。
“医生说这样的情况几乎每四个人就有一个人有卵圆空未闭的问题，其实这样非常普遍，但如果像我这样已经导致中风的状况，就必须尽快医治，否则就像是一个定时炸弹随时随地爆炸。”
她指出，自己有购买医疗保险，但基于这个病症属于先天性的疾病，所以保险拒绝为其医药费埋单。
“我刚出社会工作没几年，每月收入4000令吉，扣除房租、车贷、自己生活费以及给父母的生活费，每月也所剩无几；父母年迈早已退休，剩下一个姐姐也有自己本身的家庭负担。”
CCEP扶贫基金会执行长余宝枟表示，虽然政府医院也能完成类似的微创手术，但是从物理角度来看丽菱的情况还不至于危及性命，所以政府医院一般的做法会将她列入等候名单。
“但是丽菱已经有过一次中风的经历，因此第二次中风的风险很高，而且随时都可能发生，我们曾经有过一个个案就是这样，结果还没来得及手术就中风，结果终身瘫痪了。”
她说，丽菱是个非常懂事且顾家的孩子，父母年迈并失去工作能力，她是家里的经济来源。
“这么好的一个孩子，万一真的中风导致残疾，这就一辈子了。”
她指出，丽菱的情况以如今看来，已经算是迫切且紧急了，犹如一个不定时炸弹，切勿等到事情无法挽救才来后悔。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
并注明：CHAN LI LING
网站: ccep.org.my
An athletic young woman suffered from a congenital heart disease
(Petaling Jaya, 14th) An athletic young woman suffered a minor stroke last month and was diagnosed with a congenital heart disease called Patent Foramen Ovale (PFO). RM35,000 is urgently needed for a procedure called Patent Foramen Ovale Closure, otherwise, a stroke could happen like a ticking time bomb at any moment.
Chan Li Ling (29 years old, analyst) from Bentong, Pahang has always been a sports lover and physical exercises at least 3 days a week. She has been very healthy since childhood; However, on August 25, she suddenly felt dizzy and vomited all the time. The next day, she found that half of her body was out of coordination, and she only realized that she had suffered a cerebellum stroke.
“I was at work and I was throwing up and dizzy and had to call my parents to pick me up and at first I thought I was just having a little unbalanced ear fluid and then so I took one day off. The next day, I found that I couldn’t control the other half of my body. On admission, it was found to be a cerebellar stroke. “
She said that all the indicators of her physical examination were normal, and there was no diagnosis of diabetes, high blood pressure, and cholesterol. Because of her young age, doctors suspected that other factors caused the stroke.
“Later, I was diagnosed with patent foramen ovale (PFO), which is because of ‘heart suture disease’, which causes blood containing stasis to flow from the right atrium to the left atrium and then to the brain, causing stroke. “
She revealed that doctors said she was lucky because the stroke was in the cerebellum, so it could still be cured. Now after physical therapy, half of her body has gradually regained mobility, but she needs surgery as soon as possible, otherwise, she may have another stroke.
The doctor analyzed her condition, and once the stroke, it may lead to paralysis, so early surgery can avoid her misfortune.
“The doctor said that patent foramen ovale (PFO) is a very common problem, but if there is a situation like Li Ling, it must be treated as soon as possible, otherwise it will cause a catastrophe.”
She said that she has medical insurance, but based on this situation, she was identified as having a congenital disease, and the insurance company refused to pay for her medical expenses.
“I have only started working for a few years, earning RM 4000 per month, after paying all the bills such as car loan, rent, parents living expenses, and my own, I don’t have much leave every month. My parents have retired, and my sister has her own burdens. “++
Yee Poo Yoon, CEO of the CCEP Foundation, said that although government hospitals can perform similar minimally invasive procedures, from a physical point of view, Li Ling’s condition is not life-threatening, so it is common practice in government hospitals to put her on a waiting list.
“Because Li Ling has already had a stroke, the risk of a second stroke is high and could happen at any time. We had a patient in a similar situation to Li Ling, but he couldn’t get the surgery on time and had been paralyzed for life. “
She said that Li Ling is a very sensible and caring child. Her parents are old and have no source of income. And she is the breadwinner of the family. “If such a misfortune happened to Li Ling, it would be a loss to the family.
She pointed out that Li Ling’s current condition is considered very dangerous and she needs surgery as soon as possible.
##
The donation to the following banks：-
CCEP FOUNDATION
RHB 26219300009342
For inquiry: 03-7955 9999
Please send the bank-in receipt to: https://wa.link/tzmmgy
Website: ccep.org.my
～款项筹足～
29-08-2022 (星期一) 诗华日报
https://news.seehua.com/?p=869432
29-08-2022 (星期一) 星洲日报 – 砂拉越
29-08-2022 (星期一)
3岁小伊班族男孩急须筹45K购买耳蜗
（八打灵29日讯）丈夫冠病逝世，3岁的小儿子又被证实患有先天性听障，单亲妈妈为筹4万5000令吉人工耳蜗费愁哭。
来自诗巫罗莎琳（38岁，家庭主妇）本来是一个平凡的家庭主妇，有着疼爱她的丈夫已经三个分别13岁、10岁和3岁的儿子，无奈去年丈夫因新冠病逝世，让她和孩子顿时失去生活和精神依靠。
小儿子克里斯巴（Christobal）更在近期被医生诊断出患有先天性听障，必须尽快植入人工耳蜗，否则恐怕这辈子再也不会开口说话。
“其实在孩子一个月大的时候，我就有发现孩子对声音没有感觉，所以我们就和医院安排预约做检查，可惜遇上疫情检查一直被展延。”
她指出，为了此事，孩子爸爸生前非常担心，可惜截止孩子爸爸离世为止，他都没有机会陪伴孩子去做听觉检查。
“孩子爸爸去世后，我们只能依靠每月2449令吉的社会保险来维持生计，我真的没有这么大笔钱可以为克里斯巴购置人工耳蜗，我觉得很对不起孩子….”
她指出，幸好孩子的主治医生了解其状况后，将孩子的个案转介给CCEP社会扶贫基金会以及人工耳蜗公司Medei才让她和孩子看到一线希望。
“医生说只要植入人工耳蜗，克里斯巴只要植入人工耳蜗就可以恢复听觉，从而学习语言，否则这辈子都会因为听不到而无法开口说话，可是这一对人工耳蜗就要价8万5000令吉。”
经过三方协商后，人工耳蜗公司Medei将赞助其中一个耳蜗，而另一个耳蜗的费用4万5000令吉将由CCEP扶贫基金会协助筹款，以便将筹款时间缩短，方能赶上9月1日进行植入手术。
人工耳蜗Medei负责人霍万贵表示，身为一家人工耳蜗公司，我非常清楚人工耳蜗的价格不便宜。
“虽说这是一门生意，但在经验这门生意的同时，我们不能为了金钱的利益而让病患错失可以恢复听觉的机会，所以过去我们一直协助一些无法负担病患寻求政府或公众的赞助。”
他指出他在这行业13年，见证过不少病患恢复听觉的那种喜悦感动，所以多年其也努力在利润和病患利益之中尽力做出平衡。
“克里斯巴的个案，我们清楚知道他的家庭根本无法负担这笔费用，而我们也不能为了利益而白白让一个孩子错失恢复听觉和学习说话的机会。”
一对人工耳蜗的价格大约8万令吉，这数目不小，估计筹款也需要一点时间，克里斯巴的状况非常紧急，因此公司决定赞助一个价值4万令吉的人工耳，这样至少能把筹款时间减少一半。
“我们希望让公众知道，不幸的人虽多，但社会的热心人士的人士也不少，这个社会还是充满着爱。”
CCEP社会扶贫基金会执行长余宝枟指出，还好求助人获得耳蜗公司的赞助，所以目前基金会只要筹足另一半，即4万5000令吉的人工耳蜗费用，克里斯巴就可以顺利在9月1日顺利进行手术。
“现在时间已经不多，所以我们的筹款可以说是非常紧急的。”
她说，学习语言的黄金时期应该在一岁前，现在克里斯巴已经3岁，因听不见而错过了学习语言的黄金机会，所以安植人工耳蜗断断不能再拖延，否则他在术后的语言训练进度会很慢。
另外，她认为，对于贫困家庭而言，要为失聪孩子做耳蜗手术最大的困难是没有能力为孩子购买昂贵的耳蜗。
“克里斯巴的情况很是让人同情，他的父亲不幸感染新冠肺炎离开，母亲独自一人抚养着他们三兄弟，能有三餐温饱已属不易。”
CCEP扶贫基金会接到医生的推荐后，便即刻发动筹款帮助这位可爱伊班族的小弟弟，慈善是不分种族不分宗教的，这才是CCEP扶贫基金会的宗旨。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:010-2798849
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
捐款的部份注明： Christobal
3 years old boy needs RM45,000 for the cochlear implant urgently
(Petaling Jaya 29th News) The husband died of covid, 3 years old boy was diagnosed with congenital hearing impairment, and the single mother needs RM 45,000 for the cochlear fee.
Come from SIBU which name Roselind (38 years old, housewife) is an ordinary housewife, she has a husband which very loves her and has 13, 10, 3 years old sons, very sad that she husband pass away of covid last years, this causes them loses their breadwinner and emotional support.
The youngest son Christobal was diagnosed with congenital hearing impairment, hence, cochlear implantation must be done as soon as possible, otherwise, he will be unable to speak in his lifetime.
“In fact, when Christobal was one month old, I find my son no sense of sound, so we arrange a reserve auditory examination with dr as well, pity sad it is delayed due to covid pandemic. “, Roselind says.
She points out that her husband is very sad about Christobal, and pitifully sad that didn’t have a chance to accompany Christobal to do the auditory examination again.
“ We have RM2,449 from the social insurance as subsistence, but we are unable to pay the cochlear implantation fee for Christobal after my husband passes away, I feel very sorry for my son……”
She point out that the doctor understand our situation, then, the doctor referred my son to CCEP FOUNDATION and a cochlear implant company – Medei, this opened a chink of hope for them.
“Doctor says Christobal will restore hearing after cochlear implantation, so he can learn the language, otherwise he will not able to speak anymore because of hearing impaired, but this pair of cochlear implants worth RM85,000.”
After tripartite negotiation, cochlear implant company – Medei will sponsor a cochlear, the other cochlear worth RM45,000 will be in charge by CCEP FOUNDATION fundraising, so that will shorten the time of fundraising and 1/9/2022 undergoes cochlear implantation.
Cochlear implant company – hearLife’s Managing Director, Mr. Woo express that as a cochlear implant company I very clear that cochlear implant is expensive.
“Although is a business, we run a business at the same time, we cannot let patients miss out on hearing recovery for money and profit. Hence, we have helped many patients ask for government and society for a sponsor.”
Mr woo points out that he witnesses much patient hearing recovery, and he feels joyful and touchable in this industry for 13 years. So he put in the effort to balance between profit and patient benefit.
“ In this case of Christobal, we know that can’t afford the cochlear implantation fee, we also cannot let patients miss out on hearing recovery for money and profit.”
A pair of cochlear implants worth RM85,000, this is not a small figure, fundraising is also estimated to take time, Christobal situation is very urgent, hence, our company decides to sponsor a worth RM 40,000 cochlear, so this will shorten the time of fundraising.
“ We hope society will understand, although many unfortunate people, there are many social enthusiasts, this society is full of love.”
CEO CCEP FOUNDATION Madam Yee points out, that luckily we get a cochlear sponsor, CCEP FOUNDATION needs a fundraising RM45,000 cochlear implant fee, and Christobal will undergo an operation on 1/9/2022.
“Not much time now, so our fundraising was very urgent.”
The doctor says that the golden age of language learning is at 1 year old, but Christobal is 3 years old already, missing out on learning language and chance due to hearing impairment.
Moreover, she expresses that the most challenging for poor families are they unable to afford the cochlear implant fee.
“Christobal’s situation was very pity, his father died of the covid pandemic, his mother as a single mother needs to raise up 3 children, three meals are good enough is no easy.”
After CCEP FOUNDATION accept the referral by the doctor, CCEP FOUNDATION started fundraising immediately, charity regardless of race and religion, this is the purpose of CCEP FOUNDATION.
CCEP FOUNDATION
RHB 26219300009342
phone:010-2798849
receipt send to this link：https://wa.link/tzmmgy
website: ccep.org.my
referral： Christobal
～款项筹足～
20-08-2022 (星期六) 东方日报
https://www.orientaldaily.com.my/news/central
/2022/08/20/506831
20-08-2022 (星期六) 诗华日报
在24小时内，筹得马币4万令吉医药费，母子皆安！
经吉隆坡中央医院妇科医生，以及国家心脏中心医生联手开刀，来自美里，患有先天性心脏病的伊班裔妈妈纱隆（35岁，家庭主妇），以及她和华裔丈夫的首个爱情结晶已顺利完成生产手术。
纱隆丈夫廖伟鸿（39岁，复印机维修员）表示，手术历经1小时，过程非常顺利，孩子在吉隆坡中央医院观察，以及太太在国家心脏中心病房观察后，今天傍晚甫获准出院。
廖伟鸿表示，目前已经给孩子想好了名字，但太太刚刚经历手术，身体还是很虚弱，待太太精神恢复后，会和太太进行最后讨论才决定。
另外，为其发动筹款的CCEP社会扶贫基金会也捎来手术费筹足的好消息。
对此，廖伟鸿也对社会大众深表感谢，在短短一天内就帮母子俩筹足手术费。
“真的很感谢大家，也很感谢CCEP在我们最艰难的时候给予我们一家帮助，真的很感谢你们。”
据悉，今天刚刚见报的新闻，在公众的热心捐助下，患有先天性心脏病的妈妈，如今顺利產下华伊混血宝宝。
据悉，这名来自美里伊班裔的纱隆，因患有先天性心脏病，并在10年前做过更换心瓣手术，手术后身体状况良好。
3年前结婚后，终于在去年底迎来她与华裔丈夫廖伟鸿的第一个爱情结晶，无奈孕期中却发现心瓣膜已开始变窄，因此在医生建议下，必须提早破腹生产，但因为庞大的费用，公开寻求热心人士赞助，如今儿子平安出生。
18-08-2022 (星期四) 星洲日报 – 砂拉越
18-08-2022 (星期四)诗华日报
https://news.seehua.com/?p=866249
18-08-2022 (星期四)东方日报
https://newswav.com/article/A2208_80XzaU
17-08-2022 (星期三)
心脏病准妈妈用生命换生命, 急需四万接宝宝来这个世界!
(八打灵再也17日讯）距离手术不到24小时，患有先天性心脏病准妈妈和即将出生的华伊混血宝宝，却还在医院急等4万令吉手术费救命。
来自美里伊班裔怀孕准妈妈纱隆（35岁，家庭主妇）患有先天性心脏病，并在10年前做过更换心瓣手术，手术后身体状况良好。
3年前结婚后，终于在去年底迎来她与华裔丈夫廖伟鸿（39岁，复印机维修员）的第一个爱情结晶，无奈孕期中却发现心瓣膜已开始变窄，因此在医生建议下必须提早破腹产，以确保母子平安。
其丈夫廖伟鸿指出，妻子在怀孕前曾咨询医生，医生表示其妻子虽然属于高风险群，但只要密集产检以及做心脏检查，依然可以怀孕生子。
“我们也听从医生建议将太太从美里医院转到吉隆坡私人医院做检查，但碍于私人医院检查费用高昂，我们在医生转介下转到吉隆坡中央医院，同时也在国家心脏中心跟进太太的心脏状况。”
他指出，由于太太患有先天性心脏病，经吉隆坡中央医院妇产科医生担心太太在生产期间心脏无法负荷，因此建议提前在38周将小孩破腹产，以确保妈妈的状况获得控制。
“这项手术将在国家心脏中心进行，到时中央医院的妇产科医生也会前来联手进行这项手术，太太在手术后必须送入加护病房进行观察。”
他说，过去院方一直都没办法给出手术费的确实数目，截至上星期院方才告诉他手术费需要4万令吉，以其收入和储蓄状况根本没有能力在短短一星期内筹足这笔费用。
“我的月薪4000令吉，扣除房租1700令吉、每月保险800令吉以及夫妻俩的生活费，之前看病花费以及孩子即将出生的费用，我们俩的储蓄早已挖空。”
他无奈的表示，如今手术在即他是在无力承担这笔费用，所以不得不对外进行筹款。
“我现在只能祈求母子俩健康平安，毕竟我们俩也是到这个年纪才迎来自己的第一个孩子，没想到太太却要冒着如此大的生命危险，我不想孩子一出生就没有了妈妈，而我也从此失去一个好太太。”
CCEP执行长余宝枟表示，基于求助个案情况紧急，基金会唯有暂时以担保信件为求助人做担保，先让病患进行手术；与此同时，该会将与HOC慈善之心一起联手同步展开筹款。
“很感谢院方的体谅，破例让手术先进行再付款，毕竟这个个案和过去的个案不同，生小孩这事真的不能等。”
她指出，虽然手术可以降低其自然产的风险，但孕妇依然面临手术期间心脏停止的可能性，所以即便是动手术也不是百分百的安全。
“女性生产就是一命搏一命的博弈，而且关乎2条可贵的性命，希望大家可以慷慨解囊，帮助他们一家渡过这次的难关。”
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/9e6uw7
A pregnant Iban mother in desperate need of childbirth surgery
(Petaling Jaya, 17 October) Less than 24 hours before the operation, the mother-to-be with congenital heart disease and her soon-to-be-born Sino-Iranian mixed-race baby is still in the hospital waiting for the RM40,000 operation fee to save their lives.
A pregnant mother-to-be from Miri Iban, Sharon Agot Anak Jemat (35 years old, housewife) has a congenital heart defect and had a heart valve replacement operation 10 years ago, after which she is in good health.
After getting married three years ago, she finally welcomed her first child with her husband Liao Wei Hong (39, a photocopier repairer) at the end of last year, but during the pregnancy, it was discovered that her heart valves had started to narrow and she had to have an early cesarean section on doctor’s advice to ensure a safe mother and child.
Her husband, Liao Wei Hong, pointed out that his wife had consulted a doctor before she became pregnant and was told that although she was in a high-risk group, she could still get pregnant and have a baby as long as she had intensive maternity check-ups and heart tests.
“We also followed the doctor’s advice to transfer my wife from Miri Hospital to a private hospital in Kuala Lumpur for check-ups, but due to the high cost of private hospital check-ups, we were referred by the doctor to Kuala Lumpur Hospital and also followed up on our wife’s heart condition at the Institut Jantung Negara (IJN).”
He pointed out that due to his wife’s congenital heart disease, the obstetrician and gynecologist at the Kuala Lumpur Hospital were concerned that his wife’s heart would not be able to cope during labor and therefore recommended that the baby be delivered early at 38 weeks to ensure the mother’s condition was under control.
“The operation will be performed at the Institut Jantung Negara (IJN), gynaecologist from the Kuala Lumpur Hospital will also join with the operation, after the operation there will send my wife to ICU.”
He said that the hospital only last week they told him that the operation would cost RM40,000, which he could not afford.
” my monthly salary of RM4,000, after deducting the rent of RM1,700, monthly insurance of RM800 and living expenses, previous medical expenses, and the impending birth of our child, we have both long dug into our savings.”
He reluctantly said that now that the operation was imminent he was unable to afford the cost, so he had to raise money externally.
“All I can do now is pray that both mother and child are healthy and safe, after all, we both only welcomed our first child at this age and I never thought that my wife would have to risk her life so much, I don’t want the child to be born without a mother and I will lose a good wife from now on.”
++
Chief Executive Officer of CCEP Foundation, Ms. Yee Poo Yoon said that due to the urgency of the case, the CCEP Foundation had to temporarily guarantee the patient with a letter of guarantee to allow the patient to undergo surgery first; in the meantime, they will work with HOC Heart of Charity to raise funds simultaneously.
“I am grateful to the hospital for their understanding and making an exception to allow the operation to proceed before payment, after all, this case is different from past cases and the matter of delivering the baby really cannot wait.”
She points out that although the surgery reduces the risk of her having a natural birth, the pregnant woman still faces the possibility of her heart-stopping during the operation, so even having the surgery is not 100 percent safe.
“Women giving birth is a life-for-life game and with 2 precious lives at stake, I hope people can be generous and help the family through this difficult time.”
Donations can be made directly to the following banks.
CCEP FOUNDATION
RHB 26219300009342
Inquiries: 03-7955 9999
To request an Official Receipt please WhatsApp to : https://wa.link/9e6uw7
～款项筹足～
28/07/2022 (星期四)
款项已筹足，停止代收捐款 ! 小峻宇可以出院回家啦!
（八打灵再也28日讯）患有遗传性听障4岁男童李峻宇，日前已成功完成人工耳蜗植入大脑手术；与此同时CCEP社会扶贫基金会也捎来手术费筹足的双重好消息。
来自新山李峻宇（4岁，遗传性听障），早前透过CCEP社会扶贫基金会对外筹募9万6000令吉人工耳蜗手术费，已在昨日已经成功达标。于此同时进行的植入手术也已度过手术观察期，小峻宇预计很快就可以出院。
其父亲李江龙（34岁，工厂操作员）表示，儿子手术后因麻醉药副作用出现呕吐症状，但随着药效消退后情况已有好转；如今峻宇偶尔会因伤口疼痛有些小哭闹，但医生也表示孩子整体康复进度良好，已经可以准备出院。
“虽然人工耳蜗已经植入大脑，但是还需等待伤口复原后才能戴上耳机，所以现在峻宇还是处于无声的状态当中。之后我们需要每个星期回来复诊以及进行语言治疗，之后医生再根据峻宇的情况进行调音。”
他说，他和太太等待了4年，如今非常期待峻宇能开口清楚的叫一声“爸爸和妈妈”，并且希望峻宇在未来能拥有一个健康的人生。
“清晰的声音是大众们给峻宇的，我做父亲的在此感谢各位乐捐人士。但愿峻宇长大后能像正常人一样回馈社会回馈大众，一起做个对社会有贡献的人。”
他披露，筹款新闻刊登以后，他也接获一些失联年多朋友的电话，亲友们的关心让他深深感受人间温暖，对此他也希望透过媒体向大家表示感谢。
“接下来每个星期我们都要陪着峻宇接受各种不同的治疗，碍于太太本身也有听障问题，发音也不十分正确，因此在其工作期间姐和我就会负责教导峻宇发音，希望能把峻宇之前的进度给追回来。”
图说：
CCEP社会扶贫基金会执行长余宝枟也在手术后，前往马来西亚国立大学专科医院（HUKMSC）探访小峻宇，并与院方紧密的跟进小峻宇术后的状况。
17/07/2022 (星期日)
不幸患上遗传性听障的4岁男童，急需9万6000令吉进行人工耳蜗手术
（八打灵再也16日讯）不幸患上遗传性听障的4岁男童，急需9万6000令吉进行人工耳蜗手术，以免再一次错过开口说话的机会。
来自新山李峻宇（4岁，遗传性听障），大约在1岁的时候，被诊断遗传其母亲先天性听觉障碍。
其父亲李江龙（34岁，工厂操作员）表示，儿子的状况较太太严重，即便佩戴耳机声音也无法清晰传递至大脑，这也导致儿子在听不清的状况下无法学习讲话。
“这2年因行管令，我被困在新加坡无法回来，期间又遇上妈妈患上大肠癌和肾病，待我可以回来以后儿子还需要做许多检查等以上种种问题堆积，以致峻宇错过了最佳植入人工耳蜗的时机。”
他说，医生有告知他，人工耳蜗植入时机越早越好，尤其1至2岁期间的孩童正大脑正处于语言的发展阶段；听觉直接影响孩童语言的学习能力、社交以及整体发展。
“峻宇很聪明活泼，但是因为他无法听到清晰的言语，导致他4岁了都无法和我们正常沟通，我们也只能从他的表情和简单的手语猜测他要表达的意思，所以造成他有时会比较孤僻，不想沟通。”
他指出，医生说只要植入人工耳蜗，峻宇就可以像正常小孩一样成长，但手术一定要尽快进行，以追回他的学习进度，否则将会错过他学讲话的时机。
“身为父亲，我没有给他生一对健全的耳朵，如今我希望可以给他买一对耳蜗，让他有个健全的人生。”
CCEP扶贫基金会执行长余宝枟解释，求助人本来在国大医院接受治疗，但是考虑到小孩已4岁了，为了争取时间，医生建议将这项手术转到马来西亚国立大学专科医院（HUKMSC）进行。
“如果在政府医院排期的话，真的不知道要排到几时，轮到的时候可能小孩就会错过学习语言的黄金时期了；所以我们现在必须跟时间赛跑，帮峻宇把之前失去的时间追回来。”
她说，购买人工耳蜗费用为8万3000令吉，手术费1万3000令吉，总计此次筹款目标为9万6000令吉。
“根据我们调查，李江龙是家庭的唯一收入来源，前两年其母亲洗等肾已经耗尽家里全部积蓄了，所以现在才不得已要对外筹款；当然我们也考虑到之后峻宇还要长期接受语言治疗，每次费用都要上百令吉，长期而言也不是一笔小数目，所以连通手术费也一并对外筹募。”
基于时间紧迫，小峻宇将在7月26日进行手术，希望能在改日期之前就能筹足以上费用，好让手术能顺利进行。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
17/07/2022 (星期日)中国报
18/07/2022 (星期一)东方日报
https://www.orientaldaily.com.my/news/central
/2022/07/18/499635
4-year-old boy needs a cochlear implant urgently
Born with hearing impairment a 4-year-old boy is urgently in need of Rm96K to undergo a cochlear implant to give him the opportunity of being able to speak.
Roy Lee Jun Yu from Johor Baru is 4 years old and has had hearing impairment from birth， He was diagnosed to be hearing impaired when he was about 1-year old which he, unfortunately, inherited from his mother who is a hearing impaired.
His father Mr. Lee Kang Long 34years old is a factory worker who shared that his son’s condition is more serious than his wife’s.
“In these 2 years, because of MCO, I was trapped in Singapore. It was also during this period my mother was diagnosed to be suffering from Colon cancer and kidney failure. When MCO was finally lifted there are multiple medical check-ups are needed to ascertain his condition. Because of all these factors, we missed the best opportunity for Roy Lee Jun Yu to have his cochlear transplant for the best results.
He said doctors advised him that a cochlear implant should be done as early as possible, best between 1 to 2 years old because this is the time when the brain’s function on hearing begins which eventually affects the speaking abilities.
The litter boy Roy is smart and active but because of his hearing disability, he was not able to pick up sounds which resulted in his disability to speak even though he is 4 years old. We only communicate through sign language and his facial expressions to guess his feelings. His constraints to express himself cause him to be withdrawn and refuse to communicate.
He expressed that Doctors have advised that with the cochlear implant Roy will be able to live a normal life as any other child but the implant should be done soonest so as not to lose the opportunity to learn to speak.
As a father, I did not give him normal hearing and it is my only hope to rectify the situation by getting him cochlear to give him the opportunity to lead a normal live.
Ms. Yvonne Yee, Chief Executive Officer of CCEP FOUNDATION reiterated that the cochlear implant procedure was initially scheduled to be done in HUKM, Roy needs to queue for his turn, and no one knows how long the wait will be. Doctors advised that Roy, who is now 4 years old, is racing for time so as not to miss the golden opportunity for him to speak and suggested that the procedure be done in HUKMSC.
She elaborated that the cost of the cochlear is RM83k and the cost for the procedure is RM13k totaling RM96k which is needed.
From our investigation, Mr Lee Kang Long is the sole breadwinner. The treatment over the last 2 years for his mother’s kidney problem has used up his savings leaving him having no choice but to appeal for a donation. We also take into consideration the cost incurred for his long-term post-operation medical follow-up costs which can come up to hundreds of Ringgit per follow-up.
Because of the urgency, Roy Lee Jun Yu is scheduled for 26 July 2022. Hopefully, we hope to be able to raise the required cochlear implant cost before the procedure date so that Roy can get the procedure done as scheduled.
Donations can be done via:
CCEP FOUNDATION
RHB 26219300009342
For inquiries please call: 03-7955 9999
kindly post your transaction slip to https://wa.link/tzmmgy
website: ccep.org.my
A pregnant Iban mother in desperate need of childbirth surgery
(Petaling Jaya, 17 October) Less than 24 hours before the operation, the mother-to-be with congenital heart disease and her soon-to-be-born Sino-Iranian mixed-race baby is still in the hospital waiting for the RM40,000 operation fee to save their lives.
A pregnant mother-to-be from Miri Iban, Sharon Agot Anak Jemat (35 years old, housewife) has a congenital heart defect and had a heart valve replacement operation 10 years ago, after which she is in good health.
After getting married three years ago, she finally welcomed her first child with her husband Liao Wei Hong (39, a photocopier repairer) at the end of last year, but during the pregnancy, it was discovered that her heart valves had started to narrow and she had to have an early cesarean section on doctor’s advice to ensure a safe mother and child.
Her husband, Liao Wei Hong, pointed out that his wife had consulted a doctor before she became pregnant and was told that although she was in a high-risk group, she could still get pregnant and have a baby as long as she had intensive maternity check-ups and heart tests.
“We also followed the doctor’s advice to transfer my wife from Miri Hospital to a private hospital in Kuala Lumpur for check-ups, but due to the high cost of private hospital check-ups, we were referred by the doctor to Kuala Lumpur Hospital and also followed up on our wife’s heart condition at the Institut Jantung Negara (IJN).”
He pointed out that due to his wife’s congenital heart disease, the obstetrician and gynecologist at the Kuala Lumpur Hospital were concerned that his wife’s heart would not be able to cope during labor and therefore recommended that the baby be delivered early at 38 weeks to ensure the mother’s condition was under control.
“The operation will be performed at the Institut Jantung Negara (IJN), gynaecologist from the Kuala Lumpur Hospital will also join with the operation, after the operation there will send my wife to ICU.”
He said that the hospital only last week they told him that the operation would cost RM40,000, which he could not afford.
” my monthly salary of RM4,000, after deducting the rent of RM1,700, monthly insurance of RM800 and living expenses, previous medical expenses, and the impending birth of our child, we have both long dug into our savings.”
He reluctantly said that now that the operation was imminent he was unable to afford the cost, so he had to raise money externally.
“All I can do now is pray that both mother and child are healthy and safe, after all, we both only welcomed our first child at this age and I never thought that my wife would have to risk her life so much, I don’t want the child to be born without a mother and I will lose a good wife from now on.”
++
Chief Executive Officer of CCEP Foundation, Ms. Yee Poo Yoon said that due to the urgency of the case, the CCEP Foundation had to temporarily guarantee the patient with a letter of guarantee to allow the patient to undergo surgery first; in the meantime, they will work with HOC Heart of Charity to raise funds simultaneously.
“I am grateful to the hospital for their understanding and making an exception to allow the operation to proceed before payment, after all, this case is different from past cases and the matter of delivering the baby really cannot wait.”
She points out that although the surgery reduces the risk of her having a natural birth, the pregnant woman still faces the possibility of her heart-stopping during the operation, so even having the surgery is not 100 percent safe.
“Women giving birth is a life-for-life game and with 2 precious lives at stake, I hope people can be generous and help the family through this difficult time.”
Donations can be made directly to the following banks.
CCEP FOUNDATION
RHB 26219300009342
Inquiries: 03-7955 9999
～款项筹足～
07/07/2022 (星期四)
/central/2022/07/07/497355
07/07/2022 (星期四)
(八打灵再也7日讯)“王晴筹款新闻出街以后，我们收获很多关心和支持；在云云捐款者当中不乏来自癌症和罕见病病患家属捐款，我们知道他们本身已相当困难，但依旧对我们伸出援手，这种感动我们会铭记一辈子。”
患上罕见动脉肝脏发育不良综合症2岁女婴王晴，在筹款新闻发布短短3天已成功筹获15万令吉手术费，为此CCEP扶贫基金会及HOC慈善之心发表文告宣布筹款停止。
王晴父亲王宇轩（30岁，剪辑师）指出，在收到CCEP扶贫基金会及HOC慈善之心发来手术费筹足消息的那一刻，夫妻俩终于可以卸下心里的大石，同时夫妻俩也希望透过媒体向每一个曾经协助过女儿的人士深表感谢。
“在众多善款当中，其中一名是我的高中同学，他母亲是一名脑癌末期病患，他在新加坡得知王晴的情况后，二话不说给我们捐款；我知道这名朋友要负担母亲的医药费自己的生活也很不容易，但他毫不犹豫的在这时候给我援助，这份人情真的很暖。”
他披露，除了本地的亲友和热心人士踊跃捐款，其早年在台湾留学的同学和学长姐，也在台湾发起筹款，虽然来该笔款项估计来不及转入大马，但这种跨国的热情让他和家人感动不已。
“还有一名捐款给我们的妈妈，不单给我们捐钱，还亲自联系我，跟我们分享孩子多年前在新加坡进行换肝手术的经验，这给了我们很大的信心。”
他透露，医生目前暂定8月为王晴进行活体肝脏移植手术，王晴姑姑已经准备就绪随时做出肝脏捐赠，但确实的手术日期还有待一系列详细检查报告出炉后医生才能决定。
“我们也对马大医院的医生有信心，他们除了在医疗上给予我们很专业协助，更在知道我们的经济状况后，帮我们联系慈善组织解决了手术费的问题，”
04/07/2022 (星期一)
姑姑大爱捐肝救小侄女 2岁女童急需15万换肝
（八打灵再也4日讯）2岁女婴患上罕见病阿拉吉歐症候群，为了拯救其性命远在台湾工作的姑姑不惜辞工返马准备为其捐肝，目前唯一欠缺的是15万令吉手术费。
王晴父亲王宇轩（30岁，剪辑师）指出，王晴在出生47天曾做过肝脏的葛西手术，可惜手术后情况不见改善，而且短短1年之内孩子全身再度变黄，经检查后确认患上罕见病阿拉吉歐症候群。
在最近的检查当中医生又在其肝脏以及胰脏发现疑是肿瘤，但进一步检查后胰脏肿瘤为0.4公分水瘤，因此无需对胰脏进行手术；虽然如此，肝脏的部分仍需进行移植方可确保保命。
没睡上一天好觉
由于肝脏无法正常运作，导致胆汁堆积的关系导致王晴每天都得忍受皮肤瘙痒的困扰，以致她没法睡上一个安稳的觉。
“从她7个月大至今，我每天晚上都得帮她挠痒，才可以勉强让她稍微舒服一些可以入睡，可是现在她痒的情况越来越严重，有时为了止痒甚至抓到破皮。”
王宇轩解释，基于身体状况特殊，因此王晴每次发烧生病都得入住医院，有一次因为抓伤，小小的伤口流血5小时没办法止血，结果只能送往医院挂急诊。
他透露，这2年夫妻俩为了医治孩子，花费了不下数万令吉储蓄早已捉襟见肘，有时甚至要和父亲借钱周转。
罕见病只能见招拆招
“其实王晴的病症也有可能影响其大脑血管，但是目前我国的医药水平暂时无法对此做出检验，所以目前我们只能依据她目前的状况来做处理。”
他说，基于无法吞咽，王晴出生至今都以流质食物为主，少了咀嚼运动也间接影响其语言发展，而且吸收不好也使其缺乏维他命D吸收，造成其小腿弯曲必须在辅助的情况下才能站立。“原本医生还担心该病症会影响其智力，但很幸运连医生也证实她是个很聪明的宝宝，而且个性十分开朗，每每看到她开心就是我们最大的安慰。”
王晴姑姑是最合适的捐赠人
经全家进行检查后发现王晴婆婆以及姑姑的肝脏都适合王晴，碍于王晴婆婆年事已高，出于安全考量医生建议将其列为候补人选，并以年轻的姑姑作为主要捐赠人。
“我妹妹远在台湾工作，她知道王晴的情况后，就马上在台湾进行检验，确认其肝脏合适之后就立马辞职回国以便随时给王晴做移植。”
对此，他非常感激妹妹对女儿的无私付出，并对妹妹为了拯救女儿的性命，放弃原有的高薪厚职深感内疚。
希望每年都可以来张全家福
“这2年我们来来往往最多的地方就是医院，转来马大医院后我们几乎每星期都得往返马大和柔佛两地，由于请假次数太，我也被劝说主动离职换了好几份工作。”
最近因其太太工作调动，加上为了方便女儿就近就医，所以全家索性搬来蕉赖定居，希望减少请假次数也希望给女儿最近的照顾。
“王晴出生至今那里都没有去过，所以我很希望待她手术康复以后，每年都可以带她去拍一张全家福记录她的成长过程；当然我们也希望可以带她去动物园、水族馆等地方，陪着她去探索这个世界。”
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话: 03-7955 9999 / 010-2798849（Ms. Yee)
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
04/07/2022 (星期一)东方日报
https://www.orientaldaily.com.my/news/central
/2022/07/04/496910
04/07/2022 (星期一)中国报
04/07/2022 (星期一)星洲日报
Baby girl needs liver transplant soon
(Petaling Jaya, July 4th)
A 2-year-old girl has end-stage liver disease Alagille syndrome. The patient’s aunt who was working in Taiwan resigned and returned to Malaysia to donate a liver, but the only thing missing was the RM150,000 liver transplant surgery fee.
The father of baby girl Gene Ong, Mr. Ong Yi Shen (30 years old, editor) told that Gene had undergone the Kasai procedure only 47 days after birth, but the situation has not changed, and within a year Gene turned yellow again. After the examination that the baby had a rare genetic condition called Alagille Syndrome.
During a recently checking, the doctor found a suspected tumor in Gene’s liver and pancreas, after further checking, the pancreas was a 0.4 cm water tumor, so pancreatic surgery was not requested. Still, the liver needs a transplant to survive.
Even can’t sleep for a day
With the liver not functioning properly, the buildup of bile causes the baby to suffer from itching and even sleep peacefully.
“From 7 months to now, I have to help her scratch it every night, and I can barely sleep a little more comfortably, but now the itching is getting worse, and sometimes it is only after scraping.”
Mr. Ong told that due to the special physical condition of baby Gene, every time he had a fever or fell ill, he had to be hospitalized. Once, because the bruise, was just a small wound, and the flow continued for five hours, but it still couldn’t stop. We had brought her to the emergency unit.
He revealed that in the past two years, he and his wife have spent tens of thousands of dollars in medical expenses for genes, and their savings have almost been used up. Sometimes, he needs to borrow money from his father.
Uncommon diseases can only fight back with every move
Actually, baby Gene’s disease may affect her cerebral blood vessels, but our country’s medical level has not been able to check, so we can only deal with her current situation.”
Mr. Ong said that because Gene is genetically unable to swallow, from birth to the present, liquid food has been her main food, and the lack of chewing exercise has indirectly affected her speech. Development and lack of vitamin D capture caused her calves to bend, and Gene had to be helped by standing only.
” The doctor was worried that the illness would affect her intelligence, but luckily, the doctor proved that she is a very cheerful person. Every time we see her happy, our greatest comfort.”
Gene’s aunt is the most suitable donor
After the family blood test, the livers of Gene’s grandmother and aunt were suitable for Gene, but Gene’s grandmother was too old, and considering safety, the doctor suggested Gene’s aunt as a donor.
“My sister works in Taiwan. After learning about Gene’s condition, she immediately went for a check-up. After confirming that the liver is suitable, she resigned and came back immediately.
For this, he is very grateful to his sister for her selfless contribution to her daughter, and also feels sorry for her sister to give up such a high salary and a good job to save her daughter’s life.
Hope to take family portraits every year
“In the past two years, the hospital was the place we went to the most. After transferring to UMMC, we had to go back to Johor and Kuala Lumpur almost every week. Because of taking too much leave, I was advised to leave. I have changed a few jobs. “
Recently, because of my wife’s job transfer, it is also convenient for Gene to seek medical treatment, so we moved to Cheras, hoping to reduce the number of leaves.
“Gene hasn’t been anywhere since she was born, so I really hope to take a family photo with her after she recovers from surgery to record her growth; of course, we also hope to take her to zoos, aquariums, accompany her to discover the world. “
For donations, transfers can be made to the following banks: –
CCEP FOUNDATION
RHB 26219300009342
Inquiry Telephone no. :03-7955 9999 / 010-2798849（Ms. Yee)
Bank-in slip please WhatsApp to：https://wa.link/tzmmgy
Website: ccep.org.my
～款项筹足～
19/06/2022 (星期日)
2小时内筹足手术费
（八打灵再也19日讯）乌雪13岁S骨少女筹款新闻发布短短2小时即达成筹款目标。
该13岁S骨少女徐佩晏脊椎弯曲达70巴仙，所需手术费为3万5000令吉。
社会扶贫基金会执行长余宝枟解释，在新闻发布前，慈善团体以及地方团体发动内部筹款，已筹获2万2600令吉；新闻发布后的短短2小时就筹集到剩余1万余令吉。
“其中一个捐款人就捐出了9000令吉，这也是这次这么短时间完成目标的主因。”
她说，捐款人非常低调，只留下一句“只要能帮到人就好”。
此外，少女父亲徐应昌（61岁，煤气代理）在接获此消息时声声感激大家的帮忙。
他指出，目前女儿还必须完成心脏一起其他一系列详细检查后，医生才能定下确实的手术日期。
无论如何如今手术费问题已获得解决，也让徐家卸下心头重担。
18/06/2022 (星期六)
S骨少女急筹手术费
“如果能筹足手术费让佩晏尽早动手术的话，就是我今年父亲节最好的礼物了….”
来自武吉伯伦东的徐应昌（煤气代理，61岁）表示，大约在3年前，他发现女儿徐佩晏（13岁，学生）的左边胸部和臀部凸起，而且走路的姿势犹如长短脚一拐一拐。
“带她看医生后，我们才知道她有S骨的问题；可惜那时遇上行管令，我们只能就近医治但效果不大，直到今年辗转之下才来到马大医院。”
检查后，医生告知其女儿的S骨问题相当严重，弯曲程度已达70巴仙，倘若不早点手术纠正，担心会伤及要害并影响其发育成长。
“其实我之前就有察觉到这女儿特别喜欢趴睡，现在我才知道除了趴睡外，其他睡姿会让她觉得不舒服，更不知道她身体其实已经出现了异样。”
他说，基于自己迟婚，所以近半百才有这么一对儿女，小女儿本来个性就少话，当中也不排除S骨问题让其更加内向。
可是，3万5000令吉的手术费对他们家可是一笔沉重负担。
“我是家里唯一的经济支柱，家里的经济来源都靠我开罗里给餐厅、咖啡店、住家等送煤气一点一点来赚取；家里除了太太和一对儿女还有一个86岁的老母亲。”
还好身边的人得知他的状况后，立马给予的协助，在其对外筹款前就发动内部筹款，并在短时间内凑获2万4600令吉；距离目标还有1万400令吉左右。
“我女儿对于自己要手术她是很害怕的，但我一直安慰她，只要手术后整体的体态都会变得好看起来，所以她现在也抱着这个信念期待自己变得漂亮。”
目前已筹获的款项如下：
武吉丁雅华小 – Rm 9653.00 29献爱心组织 – Rm 13000.00 善心献爱组织 – Rm 2000.00
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
07/06/2022 (星期二)
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光明日报
長期洗腎+經濟陷困 盲腎友急需3.6萬生活費
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话: 03-7955 9999 / 010-2798849（Ms. Yee)
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
05/06/2022 (星期六)
失明洗肾男子急需医疗费用
（八打灵再也05日讯）患有先天性糖尿病并造成肾病和失明青年，因妹妹失业全家失去唯一的收入来源陷经济困境！
来自怡保的39岁青年张坚行，在中学时期就被检验出患有先天性糖尿病，随着年龄增长糖尿病情况恶化，并导致其35岁开始眼睛逐渐失明，并且需要长期洗肾。
为了方便洗肾脏父母卖掉的怡保老家的木屋，举家搬到吉隆坡居住。原本一家四口靠着母亲的一点积蓄、妹妹以及教会的补贴，省吃俭用日子还勉强可以过活；无奈今年妹妹面临失业，教会也无法长期补贴的双重打击下一家人的生活顿时陷入困顿。
“我在失明以前一直都在点心店的厨房工作，失明后眼睛看不见，每星期有3天需要到洗肾中心洗肾，所以正常上班的工作我都没办法做。”
他指出，他曾要求盲人中心传授其按摩的手艺，但中心以洗肾病患力气不足，不适合从事盲人按摩所以拒绝。
“最近我有找到朋友的老师教我针织，这也我可以在家织一些衣服、帽子、包包来卖，可惜该老师目前身处新加坡，必须待其回来以后才能开始授课。”
他透露，其每月洗肾费用虽有社会保险补助，但还是有些费用如：胶布、补针等需要自己承担，加上父亲无法接送时还需要乘坐电召车去洗肾，单是这些费用每月至少需要1000令吉。
“现在我们租的房子，房东打算收回，所以我们打算搬到更便宜的房子和别人合租房间节省开销。”
之前其教会和福利部每月也有给予300令吉的补助，但教会的补助只是暂时性的，所以长远来说，他还是希望可以学习一技之长自力更生。
“如果你们有适合我的工作，或者学习技能的机会，我也很希望大家提供这方面资讯给我，我愿意学习并且配合工作，毕竟我的父母已经6、70岁了，我希望我有自给自足的能力。”
筹款目标3万6000令吉
社会扶贫基金会执行长余宝枟表示，基于张坚行的病情以及一家人都没有收入的考量，该会希望为其筹集3万6000令吉的善款以作他和家人为期2年的生活费。
“基金会将会以每月2500令吉的方式给他，希望能协助他和家人渡过这个艰难时期。”
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
A young blind dialysis patient needs help
A young man with congenital diabetes, kidney disease, and blindness is struggling financially as his sister loses her job and his family loses their only source of income!
Cheong Kin Hung, a 39-year-old youth from Ipoh, was diagnosed with congenital diabetes in secondary school. As he got older, his diabetes worsened, causing him to become progressively blind in his eyes at age 35, and requiring long-term kidney dialysis.
To facilitate Kin Hung dialysis needs, his parents sold their house in Ipoh and shifted to Kuala Lumpur. Originally, the family of four relied only on little savings from their mother and sister, plus the subsidy from the church, and barely survived on a frugal diet. Unfortunately, the younger sister was unemployed and the church was unable to provide long-term subsidies. For a time, the family’s life was in trouble.
“Before I went blind, I was working in the kitchen of a snack shop, I couldn’t see because of my blindness, and I was on dialysis 3 times a week, so I couldn’t work properly,” said Kin Hung.
He said that he had asked the blind center to teach him massage techniques, but they refused because the dialysis patients were not physically strong enough to massage the blind.
“I recently found a teacher to teach me how to knit. I can knit some clothes, hats, and bags for sale at home. Unfortunately, the teacher is now in Singapore and must wait for him to come back before he can start teaching.”
Move to ease rent burden
He said that while his monthly dialysis costs were subsidized by Socso, there were still costs such as tape, and needles nneds to be paid. Also, he needs to take a Grab for dialysis when his dad can’t pick him up. These costs are around RM1,000 per month.
“Now the house we are renting, the landlord is going to take it back, so we are going to move to a cheaper house and share a room with someone else to save money.”
Previously, the church and social welfare gave a monthly subsidy of RM300, but the subsidy from the church is only temporary, so in the long run, he still hopes to learn the skills of self-reliance.
“If there is a job that suits me or an opportunity for me to learn skills. I will be willing to learn. After all, my parents are old.
CCEP Foundation will provide assistance
CCEP Foundation CEO Ms. Yee Poo Yoon said that in light of Cheong Kin Hung’s illness and his family’s lack of income, the foundation hopes to raise RM36,000 for Kin Hung and his family to cover expenses for two years.
“The CCEP foundation will provide him with RM2,500 a month in hopes of helping him and his family through this difficult time.”
For kind donations, please donate to:
Account Name: CCEP FOUNDATION
Account: RHB 26219300009342
Enquiry：03-7955 9999 /010-2798849（Ms. Yee)
Transaction slip please WhatsApp: https://wa.link/tzmmgy
～款项筹足～
28/05/2022 (星期六)
款项已筹足，停止代收捐款
（八打灵再也28日讯）8岁胆道闭锁女童苏乐敏的14万换肝手术费筹足了！
来自怡保万里望的乖巧女童苏乐敏，自2020年手术后身体状况每况越下身体也越发显黄，肚子也开始肿胀起来；2个月前经医生检验后发现其肝脏功能降低，建议其尽快进行肝脏移植。
其母亲林嘉慧（33岁，小贩）经检查后被医生确认为合适的捐肝者，无奈单亲妈妈一人赚钱养育4个孩子，不久前又经历行管令生意低潮期如今又遇上女儿生病的各种生活打击下，不得不对外求助。
此事经由CCEP扶贫基金会接手处理后，联合星报基金会及HOC慈善之心迅速对外展开筹款，经各方的不懈努力，5天内便筹获14万令吉。
++
CCEP扶贫基金会执行长余宝枟透露，当中还有一名来自槟城的老人捐出1万令吉的款项。
“当时他打来基金会询问捐款详情时，通话的线路非常差，但他仍耐心的写下我们的转账户口号码，然后透过其亲人的协助将这笔捐款捐给乐敏，真的很有心的一个老人家。”, 社会上需要真的充满着爱。
Funds have been raised
We’ve raised enough money for Natalie’s medical fund
The 8-year-old Natalie Soo Lok Min case raised RM140,000 for a liver transplant! She suffered from decompensated liver disease with biliary atresia.
Natalie is a well-behaved girl from Menglembu, Ipoh in Perak. She has undergone several surgical procedures but her condition worsened after the last surgery in 2020. Due to her reduced liver function, her body and eyes have turned yellow. To prevent further complications, doctors recommended that she needs to undergo a liver transplant.
Natalie’s mother works two jobs as a food hawker full-time and a seafood seller on social media part-time, she only earns around RM3,000 per month. The mother of four cannot afford the transplant cost.
The CCEP Foundation, Star Foundation, and HOC Charity of Heart had launched fundraising. With the unremitting efforts of all parties, RM140,000 was raised within 5 days.
CCEP Foundation CEO Ms. Yee Poo Yoon revealed that one of the elderlies from Penang donated RM10,000. “When he called us, the line was poor, but he patiently wrote down the details, and with the help of relatives, he had donated money to help Natalie.” He is a very caring old man. And we believe that our society needs more genuine love.” Said Ms. Yee.
21/05/2022 (星期六)
小乐敏急需14万做肝脏移植手术
（八打灵再也21日讯) “我和乐敏说，你的肚子有虫，虫子现在变大了，所以现在医生需要把妈妈部分的肝放进你的肚子，帮你一起消灭那个虫。乐敏听了很期待手术，因为她希望自己可以康复，只是以我目前的收入来说14万的手术费，真的无能为力。”
来自怡保万里望的苏乐敏（8岁），出生不久就患上胆道闭锁，为了续命在58天大的时候就进行了肝門腸道吻合手術(葛西氏手術)，但近期因手术后遗症导致其肠道粘黏，所以2020年再次进行手术。
2020手术后情况变差
其母亲林嘉慧（33岁，小贩兼职直播海鲜主播）表示，2020年手术后，乐敏的身体状况每况越下身体也越发显黄，2个月前经医生检验后发现其肝脏功能降低，建议其尽快进行肝脏移植。
“我和肝脏非常适合移植给乐敏，我也随时做好这个准备，只要能让乐敏健康长可以把部分肝脏给她，可是14万的手术费我的确没有这个能力。”
自从行管令后，我的面档生意大不如从前，收入只有以前的一半，虽然开放后生意额有提升，我也在卖鱼的脸书平台兼职主播，每月收入大约3000令吉。目前其与孩子住在娘家，扣除每月4个孩子的生活开销和汽车贷款，所剩下的钱根本负担不了乐敏的手术费。
她指出，目前其与丈夫处于分居状态，丈夫也只是一个电召车司机收入十分不稳定，所以过去都由她来承担孩子的一切费用。
懂事乖巧得让人心疼
“乐敏从小就是一个很听话懂事的孩子，就算从小生病经常要打针吃药，可是他从来不需要我担心，反过来她在我生病的时候还会照顾我这个妈妈，她是上天派来给我的天使。”
生性乖巧的乐敏不但是妈妈心中的乖小孩，也深得兄姐的疼爱，尽管如此非但没有半点娇纵的个性，什么东西都愿意跟大家分享。
“对于移植手术她没有什么概念，所以我只能用说故事的方式告诉她，她肚子里有虫，所以需要移植我的肝脏进去帮忙她消灭虫，这样她就会康复起来；她听到自己会康复就很开心，我们说好了一起消灭她肚子的虫，但现在最大的问题就是钱。”
林嘉慧透露，虽然要从自己身上移植部分肝脏给女儿，但她并没有打算休息太久，毕竟四个孩子还嗷嗷待哺，所以手术后依旧会维持工作，只是尽量不要太劳累或提重物即可。
“乐敏移植后长期要吃药，每月医药费大约1500令吉，这个费用我可以自己承担，所以我也不打算休息太久。”
为能尽快筹获目标CCEP扶贫基金会将与星报基金会及HOC慈善之心联手一同协助筹款，期盼能赶在手术前达成目标，好让苏乐敏能如期的进行移植手术。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话: 03-7955 9999 / 010-2798849（Ms. Yee)
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
偉大媽媽欲捐肝救女 只缺14萬移植手術費
Little girl urgently needs liver transplant
(Petaling Jaya, 11th 2022) “I told Natalie that she had a worm in her stomach and the worm got bigger, so the doctor needs to put part of the mummy’s liver into her stomach to kill the worm. Natalie is looking forward to the surgery as she hopes to recover. But with my current income, the surgery fee of RM140k is impossible for me.” told Natalie’s mother.
Natalie Soo Lok Min is from Belembung, Ipoh (8 years old), she suffered from Bile Duct Obstruction after birth, in order to continue her life, she underwent cholangiostomy (KASAI operation) after 58 days of birth, However, due to the sequelae of the operation, her intestines were sticky recently, so surgery was performed again in 2020.
Her condition got worse after surgery in 2020
Natalie’s mother, Lim Jia Hui (33 years old, a hawker part-time live seafood anchor). Mdm Lim said that after the operation in 2020, Natalie’s physical condition became worse and more yellow. After being examined by a doctor 2 months ago, it was found that her liver function was reduced. So, doctors recommend a liver transplant as soon as possible.
“My liver is very suitable for transplanting to Natalie, and I’m ready at any time. As long as Natalie can grow healthy, I can give her a part of my liver, but it will cost RM140,000 for the operation. I really don’t have that ability. “
Since MCO, my noodle stall business isn’t as well as before, and my income is only half of before, although business increased after MCO opened, I also do live host selling fish on social media, and my monthly income was around RM3k. My children and I live in my parents’ home, and after deducting the living expenses and car loan for my 4 children, the rest of the money can’t afford Natalie’s surgery.”
She said that she and her husband were separated, and her husband was just an online e-hailing driver with an unstable income, so she had been bearing all the expenses of her children.
She is sensible and well-behaved
“Natalie has been a sensible and well-behaved child since she was a child. Although she always gets injections when she is sick, she does not need me to worry once. On the contrary, she will take care of me when I am sick. She is my angel sent by God.
Natalie didn’t know what a liver transplant was, so I just told her a story. She had worms in her stomach, so I needed to get my liver transplanted, help her kill the worms, and she’d recover. She was very happy to hear that she would recover, and we promised to kill the bugs together, but now the biggest problem is money. ” Said Mdm Lim
Mdm. Lim said that although she wants to transplant part of her liver to her daughter, she does not plan to rest for too long, because she has to raise 4 children, and she has to continue to work after the operation and will need to try not to be overworked.
Natalie needs long-term medication
After post- transplant, her monthly medical fees are around RM1500
For kind donations, please donate to:
Account Name: CCEP FOUNDATION
Account: RHB 26219300009342
Enquiry：03-7955 9999 /010-2798849（Ms. Yee)
Transaction slip please WhatsApp: https://wa.link/tzmmgy
https://www.thestar.com.my/metro/metro-news/2022/05/27/girl-needs–rm140000-for-liver-transplant
～款项筹足～
21/05/2022 (星期六)
男婴急需心脏手术
(八打灵再也21日讯) 保险余额不足，1岁心脏有孔男婴尚欠5000令吉手术费；社会扶贫基金会决定伸出援手。
社会扶贫基金会执行长余宝枟表示，来自彭亨的莫哈末哈利目前只有1岁零1个月大，在出生6个月后，被断定患有心脏有孔，目前需要4万5000令吉手术费。
在莫哈末哈利数月大时，其母亲罗拉西京发现孩子，每每呼吸都非常困难，而且身体非常虚弱，每次出门回家必定高烧不退，几经多次检查后被断定患有心脏有孔。
“医生说有时小孩太小一些症状比较难被发现，而且莫哈末哈利的的洞孔也比较大，因而建议尽快动手术，否则小孩的心脏时快时慢，身体也较一般小孩来得虚弱，担心情况恶化危及性命。”
她指出，莫哈末哈利是家中的老幺，上有两个分别8岁和6岁的姐姐，爸爸在油棕厂工作每月收入1500令吉，母亲原本在路边售卖熟食，可是为了照顾情况特殊的莫哈末哈利被迫暂停工作。
“莫哈末哈利的父亲早前有为他购买医疗保险，但保额不高；加上莫哈末哈利在今年3月不幸感染新冠病毒入院治疗，已经使用了5000令吉的保险金，目前保险余额只有4万令吉，所以另外5000令吉的费用需要自行承担。”
她表示，基金会经调查和了解后，确定其家庭确实无力承担这笔费用，加上莫哈末哈利情况危急，目前已在医院等待手术，所以该会决定直接拨出5000令吉为其埋单。
“虽然这次无需对外发动筹款，但基金会的钱每一分都是来自社会大众的热心人士，所以我们必须公开交代这笔款项的去向。”
A baby boy needs heart surgery urgently
(Petaling Jaya, 21st) The 1-year-old baby with a hole in the heart (VSD – Ventricular septal defects) still owes RM5,000 for the surgery cost and the insurance is insufficient to pay for it. The CCEP Foundation decided to lend a helping hand.
Ms. Yee Poo Yoon, CEO of CCEP Foundation, said that Muhammad Harith Lutfi bin Sharun Hisham from Pahang is currently only 1 year and 1 month old. Six months after he was born, he was diagnosed with a perforated heart and currently requires RM45,000 for surgery.
When Muhammad Harith was a few months old, his mother found that the child had difficulty breathing and was very weak. Every time he came home, he would have a high fever. After several examinations, it was determined that he had a hole in the heart.
“Doctor form IJN (National Heart Institute of Malaysia) said that sometimes symptoms in too young children are hard to detect. and Muhammad Harith’s hole is also relatively large, so it is recommended to operate as soon as possible, otherwise, the child’s heart will be fast and slow, and the body will be weaker than ordinary children, fearing that the situation could deteriorate and endanger his life.”
She told that Muhammad Harith is the youngest in the family, with two sisters aged 8 and 6. His father works in an oil palm factory and earns RM1,500 a month. His mother supported the family by selling cooked food on the roadside. But in exceptional circumstances, she was forced to stop her work.
” Muhammad Harith’s father bought him a health insurance earlier, but the amount of insurance is insufficient; and Muhammad Harith was unfortunately hospitalized with diagnosed the Covid in March this year, and he has used the RM5,000 insurance claim. The current insurance balance is only RM40,000 left, so the remaining RM5,000 needs to be borne by themselves. “
Ms Yee said that after the investigation of the case, the CCEP foundation determined that her family was indeed unable to afford the cost of the surgery. In addition, currently Muhammad Harith was in critical condition, so the we decided to allocate RM5,000 to pay for it.
” Although there is no need to launch fundraising for Muhammad Harith’s case, every cent of the foundation’s funding comes from the public, so we must publicly of funds for the whereabouts of the funding. ” For more information and further inquiry, please do hesitate to contact Ms. Yee at 010-2798849
款项已筹足，停止代收捐款
https://www.thestar.com.my/metro/metro-news/2022/05/19/publics-swift-response-helps-teen-get-overdue-surgery
（八打灵再也13日讯）消息发布不足24小时，芙蓉马口S骨印裔少年林葛斯瓦仁已成功筹足4万令吉手术费！
余宝枟表示，少年筹款进度非常快速，这包含各族群善心的力量才能达到如此效果：基金会也宣布就此停止筹款。
CCEP扶贫基金会执行长余宝枟表示，S骨少年的新闻刊登后，马上受到大家的关注，其中1名善心人士更直接捐款1万3000令吉，这也让少年的手术费的筹款直接达标。
“这些善款来自各个种族，大家不分你我的热血相助，真的让我们觉得很感动。原本我们预计可能还需要多半天的时间才可以达成目标，没想到其中一位善心人士直接转来1万3000令吉，也是这笔款项让我们在24小时内即可宣布停止捐款。”
她指出，除了这个大笔款项以外，还有一位80多岁的老婆婆直接捐款4000令吉，就是希望少年能尽快接受手术治疗早日恢复健康，这样举动真的温暖了我们每个人的心。
她披露，该少年70度的脊椎弯度已经到随时压迫心脏的程度，但碍于家境贫穷加上遇上疫情导致其手术已经拖延了将近3年，导致其无法正常上学以及睡个好觉，如今家人都期盼着希望手术后可以恢复正常的生活，并变成以往自信快乐的样子。
“如今少年的医药费已经筹足，我们也会和医生安排他如期进行手术，在此我们也代表少年以及他的家人感谢大家的帮助。”
A young man who was diagnosed with Adolescent Idiopathic Scoliosis and did not undergo surgery due to family poverty; should have had the surgery sooner. His spine was curved 70 degrees and will be compressing his heart at any moment. His family hopes to raise RM40,000 for his corrective surgery in May.
Indian youth Lingeshwaren A/L Kannan from Bahau, Negeri Seremban, with complained of spinal deformity when he was 11 years old. His uncle and aunt took him to Seremban Hospital for a checkup and were diagnosed with scoliosis.
Afterward, Seremban Hospital recommended him to Hospital HUKM for further examination, and clinical examination revealed a thoracic hump. The radiograph showed severe thoracolumbar scoliosis. Doctors advised him to undergo corrective surgery.
In fact, the operation was originally scheduled for 2019, but due to financial difficulties, his parents had to postpone the operation, and then met the MCO, they postponed Lingeshwaran’s operation until now.
In an interview with CCEP Foundation, Lingeshwaran’s aunt said that Lingeshwaran is a lively boy who likes outdoor activities. His family has stopped his outdoor activities for safety because of his scoliosis issue. In addition, his physical condition is getting worse day by day, and he can only go to school alternately, so as not to be uncomfortable for a long time.
“Now, he can only sit for half an hour, even sleeping in one position, otherwise, the compression of the spine will make it difficult for him to breathe. In recent years, he has not been able to sleep well for a day. We noticed it, and distressed this child.”
He was obedient and sensible but was bullied at school
Lingeshwaren’s auntie expressed Lingeshwaren’s school results as quite good, he was obedient and sensible at home, his 19 years old sister got 7A and 3B in SPM, and 17 years old brother also top in results.
“Actually, Lingeshwaren’s grades are also good, but after the scoliosis problem, he can’t go to school every day, which also affects his learning progress. And we believe that if he recovers, he must be an all-around child.”
She revealed that because Lingeshwaren could not bear heavy loads, his parents let him use the child’s trolley bag, and he was laughed at by his classmates and had low self-esteem.
Poor family needs relatives’ help
Lingeshwaren’s father was a school security guard, and his monthly salary is RM1,650. His mother is a rubber tapper. The monthly salary is RM800 to RM1,000. After deducting the mortgage and family living expenses, the parents have no extra money to use for medical expenses.
“As for enabling Lingeshwaren’s siblings to continue their studies, his siblings live in my house and another relative’s house and also help to subsidize their studies because they are good and we also hope they can change their family’s future for the better.
The aunt revealed that she and her husband also helped to subsidize Lingeshwaren’s medical examination fee, but they couldn’t afford the RM40k surgery fee, so they had to turn to ask for help from the public.
“Originally, the doctor at Hospital HUKM arranged the Lingeshwaran operation on May 10, but we couldn’t afford the operation fee. Fortunately, a kind doctor recommended CCEP Foundation to us, so we decided to postpone the operation to May 24, so, we have more time to raise funds to solve our big problems. “
For kind donations, please donate to:
Account Name: CCEP FOUNDATION
Account: RHB 26219300009342 Enquiry：010-2798849（Ms. Yee)
Transaction slip please WhatsApp: https://wa.link/tzmmgy
星洲日报 / 中国报 – 17/04/2022 (星期日)
12/04/2022 (星期二)
产妇需2万令吉心脏手术费
（雪兰莪12日讯）因先天性心脏病，产妇需2万令吉手术费，以避免心脏肿大进一步恶化。
来自文冬的叶佩君（34岁，家庭主妇）2个月前才刚刚顺利产下一名男婴，虽然一家都沉浸在新生儿到来的欢乐，但产妇的健康却又为这个幸福的小家庭笼罩一层乌云。
“我在17岁身体检查时才发现原来自己患有先天性心脏病，根据医生当时的检查问题并不严重，只要生活日常稍加注意即可；去年在我怀孕做产检时，医生发现心脏一边偏大，而且血管内有个4mm的漏洞，因此建议我进行手术以防止情况进一步恶化。”
她指出，行动管制令前是一名美术老师，丈夫从事销售业，夫妻俩都有稳定的收入和工作，无奈疫情的影响；其在管制令期间就停止了教学工作，丈夫也在最近刚刚转换工作，因此家庭收入十分不稳定。
“原本医生怀疑是因为怀孕所以导致心脏血流量增加从而导致心脏肿大，在我生产之后心脏肿大并未随之消失，所以医生断定这和我怀孕没有直接关系。”
她透露，目前家里只靠从事销售行业的丈夫工作来维持家里开销，最近丈夫才刚刚转换新公司，佣金制度每月的收入都不稳定，而且还得承担家里所有的开销，因此无法承担2万令吉的手术费。
“国家心脏中心的医生预计让我在5月8日进院准备手术，希望手术手术后再也不需要依靠抗生素，每次提心吊胆担心心脏受到感染。”
身为一名妈妈她也希望手术后有个健康身体，能陪伴和照顾孩子成长，这也是每个为人母的小心愿。
为能尽快筹获目标CCEP扶贫基金会将与HOC慈善之心联手一同协助筹款，期盼能赶在手术前达成目标，好让叶佩君能安心接受治疗。
欲捐款的善心人士，可直接汇款致以下银行：-
CCEP FOUNDATION
RHB 26219300009342
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
Maternal need RM20,000 for heart surgery
Because of congenital heart attack, maternity needs RM20,000 operation fees, to avoid heart enlarging further worst.
Yap Pui Kuan is from Bentong (34 years old, housewife) and gave birth to a baby boy 2 months ago. Although the family is very happy, the health of Ms. Yap has cast a dark cloud over this happy little family.
“When I was 17 years old, I found out that I had congenital heart disease. The doctor said at the time that the situation was not serious, but I should pay attention to life in daily life. Last year, when I did a pregnancy test, the doctor found that one side of the heart was a bit bigger, and there was a 4mm leak in the tumor. So, the doctor advised me to have surgery to prevent the situation from getting worse. ”
Unemployment due to MCO
She pointed out that before the MCO, she was an art teacher, her husband was in the sales industry, and both husband and wife had stable jobs and income, but they were powerless due to the impact of Convid-19. She stopped teaching during the MCO, and her husband just changed jobs recently, so their family income is very unstable.
“Before that, the doctors suspected that the blood flow to the heart increased and that the enlarged heart was due to pregnancy, but after I gave birth, the enlarged heart did not go away. So, the doctor confirmed that this was not directly related to my pregnancy. “
Ms. Yap revealed that currently, only her husband’s income supports the family expenses. My husband just changed to a new job. It is a commission system. The monthly income is unstable, and the income has to bear the expenses of the whole family. They cannot afford the 20k operating fee.
Hope to be able to accompany children with healthy after operation
“The doctor at IJN estimated that I admitted it on May 8 and was preparing for the operation. I hope I don’t have to rely on antibiotics every time after the operation and worry about my heart being infected.”
As a mother, she also hopes that she will have a healthy body after the operation, and be able to accompany and take care of the child’s growth, which is also a small wish of every mother.
In order to achieve the donation faster, CCEP Foundation and HOC Charity Heart will be fundraising together, hope that donation can be achieved before Ms. Yap operation, hopefully, Ms. Yap can feel at ease to do the treatment.
For kind donations, please donate to:
Account Name: CCEP FOUNDATION
Account: RHB 26219300009342 Enquiry：010-2798849（Ms. Yee)
07/03/2022 (星期一)
13岁少年急于进行心瓣修补手术
(八打灵再也07日讯) 经过13年的漫长等待，患有先天性心脏病13岁少年陈泳铨急终于等到进行心瓣修补手术机会；无奈5万5000令吉手术费让单亲家庭的经济状况再度雪上加霜。
单亲妈妈母亲卓惠玲（38岁，工厂女工）表示，儿子在出生后就被发现患有先天性心脏病，其心瓣狭窄以及不能关闭，过去长久以来一直靠药物控制病情。
“因为当时我儿子太小了，医生只能帮她做2次简单的小手术暂时保命，若是要长久性解决问题就唯有等他长大以后才能进行更大的手术；所以这么多年来我们都必须很频密的往返吉隆坡和槟城医院做检查，并严格控制他的饮食以及生活习惯，避免举重物以及激烈运动，生活的每一个步骤都必须小心翼翼。”
卓慧玲表示，其实儿子对于篮球、羽球等的球类运动非常有兴趣，无奈基于安全考量，他从小到大只能坐在旁边观看，始终没有机会下场，所以儿子非常期待在完成手术后可以尽量过更正常的生活。
“当然这一切还得看医生的建议以及儿子康复状况而定，但是如果不进行手术的话，永铨的心脏就像个不定时炸弹随时都会发生“故障”，甚至心脏会越来越衰弱。”
她指出，经过13年的等待后，在最近一次的检查后，医生终于给她捎来可以动手术的好消息。
卓惠玲在接受扶贫计划协会访问时表示，基于其与丈夫离婚多年，自己在工厂工作每月收入1700令吉，虽然前夫每月有给与数百令吉的抚养费，扣除她、孩子以及母亲的生活费所剩无几，因此不得不对外求助。
“这手术如果成功的话，医生说永铨的心脏至少可以持续使用25至30年，之后依据情况再进行手术，这对一个母亲来说无疑是一个很大的希望，我希望孩子的生活可以健康，并像一般孩子那样开朗自信。”
她指出，国家心脏中心的医生暂定4月18日进行手术；目前扶贫计划协会将联通慈善之心（HOC）以及星报基金（The Star Foundation）3方联手合作进行筹款，希望能加快筹款的速度，早日达到5万5000的筹款目标。
欲捐助患有先天性心脏病少年手术费的善心人士，可以将善款转入以下户口：
Persatuan Kebajikan CCEP
CIMB 8009425456
询问电话:03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
网站: ccep.org.my
A 13-years-old boy need the heart surgery
After 13 years of waiting, Tang Bak Zhuan, a 13-year-old boy who was diagnosed with Congenital Heart Disease (Bicuspid Aortic Valve, Coarctation of Aorta, Patent Ductus Arteriosus, Severe Aortic Regurgitation, Mild to Moderate Aortic Stenosis.) Bak Zhuan finally got the chance to repair his heart valve. But the operation fee of RM55,000 made the single-parent family even more terrifying.
The single mother Teah Hoo Ling (38yrs, factory worker) said that her son Tang Bak Zhuan was born with congenital heart disease, a narrowed heart valve that cannot be closed. In the past, he needs medicine to control his condition.
“During that time, my son was too young to performed major surgeries, and the doctor could only do two minor surgeries to save his life. Therefore, in recent years, we have had to go from Penang to Kuala Lumpur Hospital for medication and follow-up visits. And he needs to strictly control his diet and living habits, avoid heavy objects, and exercise vigorously.
Teah Hoo Ling said that, in fact, Bak Zhuan is very interested in basketball, badminton, and other ball sports, but considering the safety of his heart condition, he can only sit and watch, there is no chance for him to joins any of the games, so she is looking forward to her son can live a normal life after surgery.
“Of course, it all depends on the doctor’s advice and my son’s recovery conditions. But without undergoing the surgery, Bak Zhuan’s heart is like a ticking time bomb. It will malfunction at any time, and the heart will become weak and weaker. “
She said that, after waiting for 13 years, finally during the recent examination, the doctor told her good news that Bak Zhuan was ready for surgery. In an interview with CCEP Association, Mdm. Teah said that she has been divorced for many years. Her monthly salary as a factory worker is RM1700. Although her ex-husband pays a few hundred a months, after deducting the living expenses of her mother, herself, and her son, it’s left very little, that’s why she asked for public help.
“The doctor told that after the surgery, Bak Zhuan’s heart can be performed well for at least 25 to 30 years, This is great hope for me and my son, and I hope my son can live a healthy life like an ordinary person.
She said that doctor of the National Heart Institute (IJN) temporarily fixed his operation on April 18th. Currently, CCEP Association, HOC (Heart of Charity), and The Star Foundation will jointly raise funds, hoping to speed up the fundraising speed and reach the RM55k fund as soon as possible.
Anyone who would like to donate to help Bak Zhuan undergo his heart surgery, kindly transfer the donation to the following account:
Persatuan Kebajikan CCEP
CIMB 8009425456
For more inquiries please contact CCEP Association at 03-7955 9999
08/02/2022 (星期二)
因患上骨髓增生异常综合症，一家之主倒下了
Mohammad Norhaslam Lam Bin Abdullah (林志成， 52岁，保安经理)今年5月被诊断患上骨髓增生异常综合症，急需移植骨髓以免情况进一步恶化。
他在受访时表示，目前的身体状况非常容易感到疲惫和喘气，经常都处于呼吸苦难缺氧的状态，血量也严重不足，因此必须经常大量输血。
因此安邦医院医生建议进行骨髓移植，方能有效的改善身体状况；可惜家属中找不到合适的骨髓捐赠，因此必须向新加坡骨髓银行寻找合适的捐赠。
虽然已经成功找到合适的配对骨髓，但运送骨髓的费用却高达10万令吉，让他一家再次陷入绝望之中。
“在转来安邦医院之前，我在私人医院已经接受了一阵子的治疗，过程花费了6万令吉的储蓄，就连公司给我的保险也动用了也还是不足；坦白说我们家现在的状况几乎连3000令吉的现金都难以凑足，何况是10万令吉。”
他指出，病发前其担任保安公司经理每月收入约5000令吉，加上太太担任书记的4000令吉，应付一家6口的生活费、贷款以及孩子的教育费只是刚好够用，如今看病耗尽储蓄所以才不得不对外求助。
“很感谢Dr Yong体恤我的状况，协助我联系CCEP扶贫计划协会以及HOC慈善之心会来帮我，我很感谢他们 。我的大女儿刚刚踏出社会，其他三个孩子还在读书，你叫我去哪里找这笔钱？太太的收入如今还要应付房贷和、车贷以及家里的日常开销。”
目前院方已经在新加坡寻获合适的配对骨髓，所以待其完成4次化疗疗程后，预计明年2约就可以将骨髓运来马来西亚在安邦医院进行骨髓移植手术。
他指出，目前他在疗养院中进行修养，每天都需要打针，必要时还需要大量输血，尽管如此还是无法提起重物，而且常有喘不过气和疲劳的感觉。
如果不进行骨髓移植的话，这病根本没法痊愈，因此其接纳了骨髓移植的建议，希望社会大众能给与协助，让他回复健康重返职场，一家人的生活才能恢复正常。
欲捐款的民众，可以将捐款转入：
Persatuan Kebajikan CCEP
CIMB 8009425456
询问电话：03-7955 9999 或游览网站: ccep.org.my
https://wa.link/tzmmgy
请把您的汇款单据发上来 Please provide your remittance slip 如果您需要收据，请提供您以下资料:- If you need an official receipt, please provide the particular of below 中英文姓名 Name 电话号码 Contact number 电邮地址 Email address 我们是以E收据方式发送给您 We will send E receipt for you 备注: 收据是没有扣税的 Remark: official receipt w/o tax exemption.
The family lost financial support, due to myelodysplastic syndrome
Mohammad Norhaslam Lam Bin Abdullah (52 years old, a security manager), he was diagnosed with Multilineage Dysplastic Myelodysplastic Syndrome in May 2021 and he required an urgent bone marrow transplantation.
He said in an interview that his current physical condition makes him tired, and has difficulty breathing, he has been in a state of dyspnea and hypoxia and is also severely ischemia, which is why he needs frequent blood transfusions.
Doctors at Hospital Ampang suggested that he need to undergo a bone marrow transplant. Unfortunately, his siblings did not match, and now needs to look for unrelated bone marrow donors from overseas.
Although he had recently found a suitable donor, the bone marrow harvest cost needs RM100,000, which makes his family once again hardly suffered.
“Actually, I was treated in a private hospital before I was transferred to Hospital Ampang. I used my savings of RM60,000, including the insurance policy the company gave me, but it was still not enough. To be honest, now, my family can’t even get RM3,000 in cash, let alone RM100,000”
Mohammad Norhaslam Lam Bin Abdullah said that before he fell ill, his monthly salary as a security manager was RM5,000, plus his wife’s monthly salary as a clerk was RM4,000, it’s just enough to feed his family of 6, including living expenses, loans, and children’s education fee, and now that he has spent all his savings on the medical treatment, he has no choice but needs to seek help from the public.
“I am very grateful to Dr. Yong from Ampang Hospital for understanding my situation and helping me to contact CCEP Association and HOC (Heart of Charity), for helping me to raise the medical funds. My eldest daughter just has her first job, and the other 3 children are still studying, I don’t know where can I find the funding for my further treatment? And my wife’s income now just enough to pay the mortgage, car loan, and daily expenses for the family.”
At present, we have found a suitable match of bone marrow donors, once Mohammed had completed 4 circles of chemotherapy, we will arrange him for a bone marrow transplant in February 2022. said, Dr. Yong.
Mohammed told that he is currently recuperating in a nursing home and needs daily injections and blood transfusions when needed. Even so, he can’t lift heavy objects, and always has difficulty breathing and feeling difficult.
If doesn’t undergo the transplant, Mohammed won’t have the chance to recover, now he has accepted the bone marrow transplant suggestion. We hope that the public will help him to recover and return to work so that his family life can return to normal.
For contribution, kindly donate to following bank account:
Persatuan Kebajikan CCEP
CIMB 8009425456
For more inquiries, please contact 03-7955 9999 websites: ccep.org.my
09/01/2022 (星期六)
医生今天说许文成先生不能进行肝移植
PPUM (UMMC) 医生今天告知肝硬化病者许文成不能如期进行手术，原因是供体不适合做捐赠手术. CCEP扶贫计划协会及HOC慈善之心即时停止代收捐款。
CCEP扶贫计划协会及HOC慈善之心将協助支付这段期间许文成在政府医院所接受治疗的医疗, 药物及住院的费用。余额善款将转捐给帮助其他需要的病人。
The doctor said today that Mr. Khor Boon Seng can’t proceed with a liver transplant
Told by the PPUM (UMMC) doctor today, Mr. Khor Boon Seng was unable to perform the liver transplant as scheduled because the donor was not suitable for donation surgery.
Therefore, the CCEP Asociation and HOC Association need immediately stop fundraising,
We will help to pay for the medical treatment, medicines, and hospitalization that Mr. Khor Boon Seng received at the government hospital during this period. The remaining funds will be used to help other patients in need.
06/01/2022 (星期三)
只有2星期，必须进行肝脏移植保命
“医生说，目前叔叔的肝脏已经100%不能运作了，必须在2星期内移植肝脏，否则性命将不保，可是要在2星期内凑足12万对我们来说实在太困难了。”
肝硬化完全无法运作
许文成（59岁，家禽看顾工）在去年12月28日因身体不适到槟城鹰阁专科医院入院检查才惊觉自己是B型肝炎患者，而且肝脏已经完全硬化以致无法运作，必须即刻进行肝脏移植手术保命，因此被转到马大医院准备进行肝脏移植手术。
其侄儿许毅献（31岁）在接受访问时表示，叔叔许文成身体一向硬朗，12月中才开始向婶婶申述头晕、反胃、胃胀风、手脚无力等症状，入院检查后才发现已经病入膏肓。
叔叔从事家禽看顾工，工资以每小时计算，每月薪金大约2500至2900令吉，身为家庭主妇的婶婶在家兼职奶妈每月收入大约800令吉。
“去年才刚刚还完房子贷款，原以为可以轻松下来，怎知叔叔的健康突然亮起红灯，让一家人措手不及。”
四孩子只有一人有收入
他指出，叔叔共有4个孩子中，目前仅有老大和老二有工作，老三因疫情影响目前仍在待业中，怀有身孕的小女儿则在家安胎。
“老二本来也有固定收入，但他也是这次手术的肝脏捐赠者，为了照顾父亲也暂停了工作，现在一家人只有老大有收入。”
虽然如此，身为老大的孩子去年才刚结婚生子，虽然远在新加坡当人厨师，但其收入也只是勉强足够开销，因此面对父亲在这么急迫的情况下要筹足12万令吉的手术费都感到束手无策。
“12万只是手术费，这还不包括病患和捐赠者在手术后的住院费和医药费，这些费用估计也要3万令吉，这个部分我们将会自行处理。”
病情严重手术越快越好
他指出，他也会向家族其他成员筹募这笔款项，只是碍于时间以及家人能力有限；所幸获得CCEP扶贫计划协会及HOC慈善之心的协助对外筹款，希望集合大家的力量让叔叔可以尽早进行手术。
“这几天我来探望叔叔，叔叔都一直跟我说，他人很辛苦呼吸也很困难，身为侄儿我看了也是很难过，他现在的状况真的是在和时间赛跑。”
预定星期四手术
他透露，医生已经将手术日期定在星期四进行，万事具备但却缺乏足够的手术费。
“我的叔叔为人老实憨厚，一辈子兢兢业业的做人做事，为人也不怕吃亏。他好不容易把四个儿女拉拔长大，孩子也陆续在这几年踏出社会和组织小家庭，原以为终于可以卸下肩上重担了，没想到一个噩耗，让叔叔一家陷入困境之中。”
因此他希望广大民众能慷慨解囊，协助其叔叔争取时间，尽快进行手术。
欲捐款的民众，可以将钱转入：
Persatuan Kebajikan CCEP
CIMB 8009425456
询问电话：03-7955 9999
Must have a liver transplant within 2 weeks,
“The doctor said that my uncle’s liver failure became worse. He must have a liver transplant within 2 weeks, otherwise, he will die, but it is difficult for us to find RM120,000 in funding within 2 weeks.”
Liver cirrhosis does not have any function
Mr. Khor Boon Seng (59 years old, poultry caregiver). On December 28th last year, he was admitted to Gleneagles Hospital Penang due to his health. After examination, he has diagnosed as a hepatitis B patient. His liver had been completely hardened and could not work properly. Now that he has been admitted to UMMC, he has to undergo a liver transplant to save his life immediately.
His 31-year-old nephew Jason Khor said in an interview that his uncle is a poultry breeder and his salary is calculated by the hour. His monthly salary is between RM2.5K and RM2.9K. The aunt is a housewife and also a part-time childcare worker with a monthly salary of about RM800.
“My uncle just paid off the mortgage last year. They thought life could become easier than before. But now his health suddenly deteriorated and his whole family was caught off guard.”
His four children only one has income
The nephew pointed out that the uncle has 4 children, only the eldest and the second are still working, and the third is unemployed due to the epidemic, and now the younger daughter is pregnant.
“In fact, the second son has a fixed income. He will be the liver donor for this transplantation. In order to take care of his father, he had temporarily stopped working.” However, the eldest son just got married and had children last year. He was a chef in Singapore and his income was just enough for his own family expenses. Faced with such a desperate need to raise RM120,000 for his father’s medical issue, the family feels helpless now.
“RM120K is just only the liver transplantation cost. It does not include the hospitalization expenses of patients and liver donors and also the medical expenses after the transplant. These expenses for those are around RM3K, and we will try to solve it out by ourselves.”
Now the liver has deteriorated and needs to be transplanted as soon as possible
Jason pointed out that he would also raise some medical funds from other relatives, but due to time constraints, and our relatives’ ability is also limited. Fortunately, we got the support from CCEP Association and HOC Association to help to raise these medical funds. I hope that my uncle can have the liver transplant as soon as possible.
The doctor has scheduled the transplant for Thursday
Jason said that the doctor has set a date for the operation on Thursday and everything is ready, but the funds for the transplant are still not enough.
“Mr. Khor Boon Seng has always been very healthy. He started complaining to his wife in mid-December 2021, about dizziness, nausea, abdominal distension, weakness in hands and feet, etc. It was only after examination that he was found to be very sick.
My uncle is a very honest person, he works very hard. It is not easy for him to grow up with 4 children. In the past few years, his children have entered society and have their own families. He thought eventually he could reduce the burden, but now the bad news embarrassed his family.
Jason really hopes that the public can donate generously to help his uncle fight against time and perform the liver transplant as soon as possible.
For donation, kindly donate the funds to the following：
Persatuan Kebajikan CCEP
CIMB 8009425456
Telephone：03-7955 9999
Teen needs funds urgently for surgery
Second from left: CCEP chief executive officer Yvonne Yee Poo Yoon, Adilah, Aiman and HOC chairman Yong Wing Cheong and secretary Yap Swee Seong.
LIKE most boys his age, Muhammad Shahrul Aiman, 13, likes to watch and play football.
But the ninth of 11 siblings is no longer able to play as he has been diagnosed with biliary atresia.
This congenital condition is a blockage in the ducts that carry bile from the liver to the gallbladder.
Aiman, as he is fondly known, is awaiting surgery at University Malaya Medical Centre (UMMC) in Kuala Lumpur but needs RM130,000 for the procedure.
Two charities are helping to raise funds, namely the Community Care Enrichment Programme (CCEP) and HOC Charity Heart.
His father, Zulkifli Mamat, 56, told a local daily that they hoped to raise the funds by Nov 17 as that is when his son is due to undergo surgery.
“Currently, only 20% of Aiman’s liver is working.
“There is no guarantee that he will make it.
“But my wife and I have not lost hope that our son will get better,” he said.
Zulkifli, who works as a driver, is also supporting four children, aged 10 to 18. The youngest is disabled.Aiman, who weighs only 24kg, also needs special formula, which costs RM100 a tin and it lasts about a week.
His elder sister Nur Adilah said doctors had advised them to ensure he gets the right formula.
“My other siblings are unable to help as they have low-paying jobs,” she said.
Those wanting to assist can donate through CCEP (CIMB – 8009425456) or HOC Charity Heart (CIMB – 8008072195).
For details, call 017-988 5804 (Nur Adilah). — By FARID WAHAB
https://www.thestar.com.my/metro/metro-news/2021/11/09/teen-needs-funds-urgently-for-surgery
小友族同胞Aiman急需手术费，请给他一个重生的机会
“我们不单只是负担不起13万令吉的医药费，我们就连给弟弟购买奶粉的钱都没有，目前弟弟喝的奶粉是别人赠送的，医生说这只适合年纪较小的儿童，可是我们没有多余的钱给他购买营养奶粉，也只能这样了。
Mond. Shahrul Aiman 一个13岁喜欢足球的少年，无奈患上先天性胆道闭锁，在接受Kasai手术后原本多年病情都受到控制，可惜今年因感染导致病情急转，必须尽快接受肝脏移植手术，否则随时有生命危险。小儿肝脏专科 医生伍瑞腾接受访问时表示，Aiman在这一年里因细菌感染，才从哥达巴鲁医院才将他转来马大医院求医。
今年已经2次进行急救，目前虽然已经离开了紧急病房，当如果不把握时间进行移植手术的话情况也不是很乐观。“我们已经帮他安排了下个月17日进行手术，他18岁的姐姐将捐献部分肝脏给他。
”医生也透露，目前Aiman的营养和体重都不达标，因此院方正努力的加强其营养的吸收，希望让他有更好的状态去应付这次的手术。“目前他的肝脏功能只剩下20%，手术后他是有几乎康复的，只是需要长期吃药维持就可以了，我们也基于他的家庭经济状况，在帮他和政府申请药物赞助，希望能减轻他们家庭的负担。
Aiman来自吉兰丹一个贫穷家庭，爸爸是名的士司机，每月收入仅有RM600-700，患有忧郁症的妈妈是名家庭主妇，家里共有11个兄弟姐妹，其中最小的还是一名瘫痪儿。Aiman的二姐Dilah在接受扶贫基金访问时表示，其兄弟姐妹介于30岁至10岁，当中4个姐妹嫁人后都成为家庭主妇完全没有经济收入。
虽然家中4名兄弟姐妹已就业，但都刚踏出社会不久，多数从事普通的销售员或工厂员工，扣除个人生活开销后也所剩无几。“目前家里只有Aiman和13岁的弟弟还在念书，我们各自有家庭，打工的弟妹收入也不高，每月凑合起来能给爸爸的家用大约只有RM400，如今弟弟急病我们真的无力承担这么大笔的医药费。
她透露，弟弟饮用的特殊奶粉，每罐要加RM100多，每星期消耗至少1罐，这还不包括购买其奶袋；基于家里的经济条件不允许，现在弟弟喝的奶粉也是别人捐赠的。“医生有告诉我们，弟弟现在喝的儿童奶粉并不合适，他需要换成成人的奶粉，可是我们实在无力负担购买奶粉的费用，所以也只能硬着头皮先让弟弟把现有的奶粉喝完再做打算。
”Dilah解释，其本身虽然有个小档口从事饮食小买卖，但为了陪同爸爸到吉隆坡照顾住院的弟弟，也只能暂时关闭，收入也成问题。“目前我们手上只剩一点钱可以应付我们在吉隆坡的日常开销，以及家里的基本费用，弟弟的医药费我们真的无能为力，但又不能眼睁睁看着他的情况一天比一天还差。
她说，弟弟本是一个开朗活泼的孩子，在校的成绩也属中等，一直以来都不用家里烦心，虽然身体有些状况但固定吃药就可以了。“他很喜欢足球，碍于他的健康考量，学校老师都不让他做太激烈的运动，所以他每次都跟着朋友在旁边看，他很希望自己可以下场去跟他们玩。”她说，为了实现这个愿望，弟弟也愿意接受这个手术，而我们家的老8也愿意捐赠部分肝脏给他，但是家里却筹不出这笔费用，一家人都很难过，我们不想失去他。
目前有两个慈善单位将会协助Aiman筹款，其中包括：
- 扶贫计划协会
2. HOC慈善之心
为此“扶贫计划协会”也特别申明，本会协助的个案将以其需求以及迫切程度为标准，所有个案都经调查小组审核以及调查后批准，确定其真伪才给予协助，不论种族、肤色、宗教信仰，本会都一视同仁。
扶贫计划协会户口如下:-
Persatuan Kebajikan CCEP
CIMB 8009425456
询问电话: 03-7955 9999
捐款单据请发至：https://wa.link/tzmmgy
The 13-year-old boy needs a liver transplant urgently
” We not only can’t afford RM130k(thousand) of medical fees, we can’t even afford to buy milk powder for Aiman, the milk powder he is drinking now is someone else’s FOC, the doctor said it is suitable for small age children only, and we have no extra money to buy him nutritious milk powder, “
Shahrul Aiman, a 13-year-old boy who likes football, but he suffers from congenital biliary atresia. After the KASAI operation, his condition was controlled. However, he suffered a bacterial infection this year and his condition worsened and had to undergo liver transplantation.
The doctor from University Malaya Medical Center (UMMC), Associate Prof. Dr.Ng Ruey Terng ( Department of Paediatrics Faculty of Medicine) said that due to bacterial inffection, Aiman was transferred from Hospital Kota Bharu to UMMC. Moreover, he has done first aid twice, and has left the ICU, the situation is not optimistic if he does not perform the liver transplant as soon as possible.
“We have arranged to perform liver transplant surgery on him on November 17, and his 18-year-old sister will donate part of her liver to him.”
In addition, the doctor said that Aiman’s nutrition and weight are still not fulfilling the transplant requirements yet, so they are working hard to improve Aiman’s physical condition to absorb nutrients, hope it will be helpful to the operation.
“Now, Aiman liver function is only 20% left. After the transplant, he will almost be recovered. The only issue is that he needs to take long-term medication to maintain his condition.
Due to their financial constraints, we are also helping Aiman apply for government medical subsidies, hoping to reduce their family burden.
Aiman comes from a poor family in Negeri Kelantan. His father is a taxi driver with monthly income of RM600~700 only, and his mother is a housewife suffering from depression many years. The family has 11 brothers and sisters, and the youngest one is paralyzed child.
In an interview with a journalist from the CCEP Association, Aiman’s second sister, Dila said that her siblings are between 10 and 30 years old, and four of them are married and are housewives with no income at all. Although the four brothers and sisters are working, they are just entering society. Most of them are ordinary salespersons or factory workers. After deducting personal expenses, there is not much left.
“Now, Aiman and his 13-year-old brother are still studying, and we have our own family. Although our brothers and sisters are part-timers, they have earning very little, they only can give their father a very small amount of money per month. Aiman is ill now, and we are really can’t afford his huge medical expenses. “
She revealed that Aiman’s special milk powder needs more than RM100 per can, and he needs at least 1 can per week, which does not include buying his milk bag. Aiman’s milk powder is now even given by others.
“The doctor also told us that the children’s milk powder that Aiman is currently drinking is not suitable for him, but we really can’t afford to change it, we can only wait for Aiman to finish drinking it.
Dila explained that although she used to run a small stall for business, but now she needs to accompany her father to Kuala Lumpur to take care of Aiman who is hospitalized. The stall has to be closed temporarily and income has become a problem.
” We have very little money left to cover our basic expenses. We really can’t afford Aiman’s medical expenses, but we are seeing Aiman’s condition getting worse every day.”
She said that Aiman is actually a cheerful and lively child, and his grades in school are also moderate. although have some health problems, but if takes medicine regularly the condition is considered stable.
“He likes football very much. But considering his physical condition, the teacher does not allow him to do too exciting sports, he can only sit on the side every time. He really hopes to play football with his classmates.”
Dila said that in order to make the dream come true, Aiman is willing to undergo a liver transplant. And his sister is willing to donate part of her liver to him, but we could not find the fundings. We all are very upset. We don’t want to disappoint Aiman.
Recently, 2 charities will assist Aiman in fundraising, including
- CCEP Association
2. HOC Charity Heart
The CCEP Association hereby declares that assistance in each case is based on patients’ needs and emergencies. All approved are reviewed and investigated by a professional team. Regardless of race, color, or religion, The CCEP Association treats all cases equally.
CCEP Association bank account as follows:
Persatuan Kebajikan CCEP
CIMB 8009425456
Any inquiries, please contact: 03-7955 9999
23/10/2021 (星期六)
款项已筹足，停止代收捐款
感恩各位捐款人，小薛纳的手术费在短短36个小时内筹足，感恩您们让小薛纳重生的机会，是您们救了小薛纳。
21/10/2021 (星期四)
小薛纳急需18万前往印度做手术
1岁半胆道闭锁女宝宝，今年7月已被医生发出病危通知，如今急需筹募18万令吉医药费，以尽快到印度进行换肝手术，否则将引发其他器官受损以及生命危险。
农薛纳（英文名：Careena Leong，1岁半）在出生2个月后因全身发黄，被HUKM医生确定她有胆道闭锁的问题，并进行了Kasai手术；但今年7月份起，肝受到细菌感染，引发高烧和多次出内出血，情况相当危急。
病患妈妈王芳旎(地产经纪，34岁)在受访时表示，原本她与丈夫农力琦 (保险经纪，36岁）原本去年5月就决定让女儿在马大医院进行有关手术，无奈遇上疫情手术从去年一直拖延至今。“当时医院也同意让我们以分期付款的方式摊还10万令吉的手术费，可如今薛纳突然受到感染，原本受控的病情快速恶化，今年7月医生告诉我们以目前马大医疗团队的技术已无法应付孩子的状况了，建议我们将她送往中国上海仁济医院或者印度接受换肝手术，否则长时间使用高剂量的抗生素控制病情将可能导致孩子其他器官受到影响，并且错失了移植的机会。
”她指出，目前薛纳的肝功能只剩下40%，倘若前往印度移植肝脏的成功率达90%，只要筹足医药费将即刻出发。她指出，经配对后，薛纳的19岁的表哥的血型和条件都适合给薛纳做肝脏捐献，无奈18万令吉的医药费成了他们前进的一大障碍。
“我和薛纳的爸爸虽然都有工作，但我们收入并不稳定，每月夫妻家庭收入大约8000至9000令吉，原本还属于幸福小康家庭；无奈薛纳生病后，每月医药费、每天饮用的特殊奶粉以及消耗的奶袋等费用，每月就要7000-8000令吉，加上家里还有2个孩子和其他家庭开销，这1年半我们积蓄已经所剩无几了。
”她说，原本上海仁济医院已经接纳了薛纳的病历，无奈疫情关系中国政府至今都不对外开放，为了和时间赛跑医生建议我们只能将目标转可以随时都可以进入的印度；如今医院的部分已经解决，但是医药费不足所以迟迟无法启程。“18万这个数目只是医药费，这还不包括我、薛纳、捐赠肝脏的表哥、以及表哥妈妈共4个人的往返费用，初步估计大约需要10万令吉，所以这部分我和丈夫会想办法自己承担，我们也明白不能什么都依靠别人协助。
”她指出，基于疫情的关系机票价格高昂，加上薛纳的病情考量，医生建议他们找直飞班机以最快的速度抵达，以免薛纳注射抗生素时间相隔太久而引发其他问题，否则就需要另外安排医护人员一同随行，到时费用将会更高。她解释，这趟行程大约需要1个月时间，当中包括手术后，医院需要密切追踪孩子的状况，待确定一切稳定后方能回国；而且移植手术完成后，孩子这辈子都必须长期服药，每月的医药费和特殊奶粉等费用，夫妻俩才不得不对外求助。
“基于薛纳的爸爸从事保险行业，因此孩子在肚子里的时候就已经购买了医药保险，但有些费用不在保险保障范围的部分，我们必须自己承担，如今孩子情况恶化必须出国进行移植，这个部分不在保险公司保障范围之内，所以我们只能和时间赛跑为孩子争取更多机会。
”她形容薛纳是一个很勇敢而且董事的孩子，为了输入药物和奶粉，全身上下都被插满管子，几乎体无完肤都不曾有过抱怨，如今医生也找不到空隙可以再插管，所以接下来只能做个小手术将管子放入体内，这些看在爸爸妈妈的心里非常不忍。
“我也很感激我的小姑，同意让她唯一的孩子给我们的薛纳捐助肝脏，同样身为人母我对她以及侄儿的付出深表感谢，希望薛纳完成移植后可以赶快回家，家里的哥哥和妹妹都在等她回去相聚。
”这是一场生命和时间赛跑的竞赛，为了加速农薛纳筹款早日达标，这次共有3个慈善单位同步协助筹款其中包括：
1) 扶贫计划协会
2) HOC慈善之心
3) 中国报慈爱人间
扶贫计划协会户口:-
Persatuan Kebajikan CCEP
CIMB 8009425456
转账注明：Careena Leong
询问电话:03-7955 9999 (10.00am – 5.00pm)
Baby girl urgently need RM180K for Liver Transplantation
A 1.5 years old biliary atresia baby girl, doctor has issued referral letter on 2021 July, she urgently need RM180K medical fees to go to India for liver transplantation.
Careena Leong, 1.5 years old (baby girl), turned yellow when she was 2 months old. HUKM’s doctors confirmed that the baby girl’s biliary tract was atresia and underwent Kasai surgery. However, starting from July 2021, her liver was infected by a bacterial infection. it caused her high fever and internally blooding many times.
Careena’s mother Ms. Wang（property agent, 34 years old）said that actually she and her husband Mr. Leong（insurance agent, 36 years old）decided to let their daughter to do liver transplant in UMMC last year May, but delayed due to Convid-19.
“The hospital agreed to pay RM100,000 for medical expenses in installments, but Careena is now affected and her condition is deteriorating very quickly. In July this year, the doctor told us that the current technology of the UMMC cannot afford our daughter’s situation.
She said that Careena’s liver usage rate is only 40%. If their daughter goes to India for a liver transplant, the success rate is 90%. Once the medical expenses are raised enough, Careena can go to India immediately.
She also said that after matching, Careena’s 19-year-old cousin’s blood type and conditions were suitable as Careena’s liver donors, but they had to be unable to move forward because of the RM180,000 medical expenses.
“Although Careena’s father and I both are working, but our income is not stable. Our monthly income is between RM8,000 and RM9,000. After Careena fell ill, the monthly medical care fee plus daily special milk powder plus used for milk bags and other expenses, we need RM7,000 to RM8,000 per month, and we also have 2 children and other expenses. Currenlty our savings are almost over. “
“RM180 thousand only medical fees, it doesn’t include me, Careena, cousin brother who is the liver donor, and his mother, preliminary estimated about RM100 thousand for 4 person for all expenses, me and my husband will find way to solve it. We understand that can’t everything rely on other people. “
Ms. Wang said that due to Convid-19, the price of air tickets is too high, and considering the situation of Careena, the doctor advised them to look for direct flights that can reach India in the fastest time, so as to avoid Careena’s time issues causing other problems. If it is not too long to inject antibiotics separately, they must arrange two medical staff to accompany them. At that time, the cost is higher.
She explained that the trip will take about 1 month. Including the operation, the hospital needs to closely follow Careena’s postoperative situation and confirm that everything is stable before returning. Moreover, after the transplant, Karina also has to take lifelong medicine, monthly medical expenses, special milk powder, and other expenses. The couple had no choice but to ask for help.
She described Careena as a brave and sensible child, stuffed with tubes filled with medicine and milk powder, but she didn’t complain at all. And now the doctor could not find an empty place to re-intubate, so the doctor had to perform a small operation and put it in her body. Parents can’t bear to see all this.
“I am grateful to my sister-in-law for allowing her only child to donate liver to Careena. As a mother, I thank her and nephew and hope that Careena will go home as soon as possible after the transplantation. Her siblings are waiting for her Gather. “
This is a contest between life and time.
In order to make Careena’s fundraising as soon as possible, there are three charity units to help raise funds this time. They are:
1) CCEP Association
2) HOC Charity Heart
3) Yayasan NanYang Press（China Press ）
CCEP Association account as below:-
Persatuan Kebajikan CCEP
CIMB 8009425456
Transfer specify：Careena Leong
Enquiry telephone number : 603-7955 9999
18/08/21 (星期三)
CCEP扶贫计划协会感恩各界人士热心的捐助，让郑芷湄可以顺利购买骨髓 。
{ 叔叔阿姨，哥哥姐姐，救救芷湄，让芷湄活下去}
活泼好动的小女生郑芷湄(8岁)，不幸在5月份被诊断得了严重性再生性贫血症，需要做骨髓移植手术。
此病是一组由多种病因所致的骨髓造血功能衰竭性综合征，以骨髓造血细胞增生减低和外周血全血细胞减少为特征，临床以贫血、出血和感染为主要表现。
2020年3月份其父亲发现芷湄的身体一直出现淤青，上学读书也经常没有把功课做完，有一天因为某种原因，芷湄的手掌严重的淤青，她父亲觉得事态严重，立刻前往附近诊所看医生，验血后医生发现她的血小板和红血球跌到危险的水平，医生即刻要她父亲安排救护车即刻送她进院，当时送去加影政府医院，住院一个星期依然不清楚是患了什么病？而后转去另外一家医院，医生帮了她的报告后，确定她是患了“严重性再生障碍性贫血症”，医生说，唯一的方法是必须尽快做移植骨髓，已经在台湾找到吻合的骨髓，需要12万马币购买骨髓。
芷湄父母离异，她与父亲郑光耀(54岁)相依为命，自从去年行管令开始至今，其父亲可以说是是没零收入，靠向亲友借钱帮忙过日子，由于没有了收入，目前已经欠下两个月租金。
当得知女儿需要那么多钱来购买骨髓，郑光耀急如热锅上的蚂蚁，只好寻求慈善组织的帮忙，希望活动热心人士的慷慨解囊，为芷湄筹到钱购买骨髓。郑光耀委托CCEP扶贫计划协会及HOC慈善之心为其女儿郑芷湄筹募购买骨髓的费用。
捐款请直接汇款至以下银行户口：Persatuan Kebajikan CCEPCIMB 8009425456任何询问，请直接联系 : https://wa.link/e0zqo6
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