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The cost of surgery for hydrocephalus and S-curve correction amounts to RM50,000. Chee Pei Yan’s family hopes for public assistance

The S-bone girl, Chee Pei Yan, originally planned to undergo S-curve correction surgery once she raised RM35,000 for the surgery fees by 2022. However, during preoperative examination, it was discovered that she had cerebellar ptosis. The initial RM35,000 could only cover the expenses for treating the cerebellar ptosis and hydrocephalus. Now, she needs to undergo S-curve correction surgery again, facing a surgical fee of RM50,000, plunging the whole family into despair.

Chee Yen Chong (63 years old, gas delivery worker), her father, stated that with the assistance of CCEP  Foundation and others in 2022, they successfully raised RM35,000 for her surgery. However, before the surgery, routine examinations revealed that Chee Pei Yan had congenital cerebellar ptosis. If not treated immediately, her limbs would eventually be affected.

“So we had no choice but to immediately proceed with her surgery. We thought that after the surgery, we could reschedule the S-curve correction surgery. Little did we know that after the surgery, Pei Yan developed hydrocephalus, and the doctors had to arrange for another operation to implant a shunt to drain the fluid from her brain.”

He pointed out that the process from two surgeries to recovery unknowingly took more than a year. It wasn’t until this year that the doctors brought good news again, stating that Pei Yan’s body was ready for the S-curve correction surgery.

“However, the money raised for us previously has already been used for the surgeries related to cerebellar ptosis and hydrocephalus. Now, the surgical fee for the S-curve correction has increased to RM50,000, which is an even larger sum for us.”

He revealed that ever since Pei Yan was discovered to have spine problems at the age of 11, she has never been able to sleep lying down flat until dawn. The pressure on her spine caused pain when carrying a school bag, exacerbating her silence during her adolescence.

“Peiyan’s issues were discovered long before the pandemic. However, due to lockdown measures, we were unable to seek medical help. After the restrictions were lifted, the surgery was delayed until now. If further delayed, it will impact her bone and psychological development, and she will miss out on her growth period.”

He also hopes to express gratitude through the media to CCEP, the 29 Charity Association, residents of Sungai Buloh, and kind-hearted individuals who have been assisting his daughter all along. Without everyone’s strong support, he and his family would not have been able to afford the surgery for his daughter.

Yee Poo Yoon the CEO of the CCEP  Foundation, stated that due to Peiyan’s spinal curvature increasing from 63 degrees to 78.3 degrees, the difficulty of the surgery and the number of iron plates and screws required have also increased, resulting in an increase in the surgical fee compared to 2022.

“The RM35,000 we helped them raise previously has almost been depleted after two surgeries, so we need to raise funds again.”

She believes that Pei Yan has been suffering from her condition for six years since diagnosis, and further delay is extremely detrimental to her situation. Therefore, the urgent priority now is to get her surgery done as soon as possible.

“The doctors have scheduled her surgery for April 7th, so we hope to gather the strength of the public to quickly raise this surgical fee, lest the night be long and full of worries.”

“Those willing to donate can call 010-2798849 to inquire with the foundation. Donation receipts should be sent to: Link, the foundation’s website is ccep.org.my.”

脑积水加S骨矫正手术费需5万　徐佩晏家人盼公众伸出援手

吉隆坡2日讯）原定在2022年凑足3万5000令吉手术费就进行S骨矫正手术的S骨少女徐佩晏，在术前检查被发现小脑下垂，原有的3万5000令吉只能用来处理小脑下垂以及脑积水的手术费，如今要重新接受S骨矫正手术面对5万令吉的手术费，令全家又陷入愁云惨淡的困境。

其父亲徐应昌（63岁，送煤气）表示，2022年在CCEP扶贫基金会等造协助下，女儿已成功筹获3万5000令吉的手术费，奈何手术前的例行检查医生发现女儿有先天性小脑下垂的问题，倘若不立即手术，女儿的手脚迟早也会有问题。

“所以我们只能立即让她先进行手术，原以为手术后就能重新安排S骨矫正手术，怎知手术后佩晏脑积水，医生只能再安排软管植入手术，将脑里的水排出来。”

他指出，2个手术下来至康复的过程不知不觉耗费了1年多了，直到今年医生再次捎来好消息，佩晏的身体准备好了，可以接受S骨矫正手术。

“可是之前大家筹给我们的钱，已经用作小脑下垂和脑积水的手术费了，如今S骨矫正的手术费已经增加到5万了，对我们来说又是一个更庞大的数字了 。”

他披露，佩晏自从在11岁被发现脊椎有问题后，就从未以平躺的姿势一觉到天明，由于脊椎的压迫上学背书包就会感觉疼痛，加上少女青春期发育，让本来就 内向的她更加沉默。

“佩晏的问题早在疫情之前就发现了，奈何碰到管制令我们也无法求医，开放后又因手术拖到现在，如果再拖下去对她的骨骼和心理成长都会造成影响，并错过 了发育时期。”

他也希望透过媒体，感谢一直以来给予女儿协助的CCEP、29爱心老板、双溪毛糯的居民以及善心人士，若非大家的鼎力相助他和家人也无法让女儿接受手术治疗。

CCEP扶贫基金会执行长馀宝枟表示，基于佩晏的脊椎倾斜程度从之前的63度已经变成了78.3度，手术的难度以及所需的铁片和螺丝数量也增加，以致手术费也比2022年 增加了。

“之前我们的帮他们筹到的3万5000令吉，其实经历2次手术下来已经所剩无几了，所以才要再次筹款。”

她认为，佩晏从被诊断至今已经6年了病情一拖再拖，这对佩晏的情况非常不利，所以当下之急就是赶快让进行手术。

“医生已经为她安排了4月7日进行手术，所以希望可以筹集民众的力量，尽快筹集这笔手术费，免得夜长梦多。”

“有意捐款者可拨电010-2798849向基金会谘询，捐款单据请发至：https://wa.link/tzmmgy，基金会网站为ccep.org.my。”